structure
19 nested activity groups
Rare Genetic Disease Research and Advocacy
HIV/AIDS Prevention and Support Services
Cancer Awareness and Education Initiatives
Disease-Specific Clinical & Patient Education
Cancer Peer Support & Wellness Programs
Patient and Researcher Conferences
Familial Support for Rare Genetic Conditions
Community Recovery Awareness Events
Living Donor Transplant Support
Parkinson's Disease Research and Support
Kidney Disease Education and Advocacy
Autism Awareness and Acceptance Initiatives
Bleeding and Blood Disorder Support Services
Neurological Disability Support & Advocacy
Pancreatic Cancer Research and Support
Cardiovascular Disease Research and Support
Alzheimer's Research and Support Services
Inflammatory Bowel Disease Research and Support
Liver Disease Research and Support
organizations
Organizations in this activity group · 764
showing 20 of 50
| # | Organization | State | Revenue | Activities ↓ | |
|---|---|---|---|---|---|
| 1 | NATIONAL KIDNEY FOUNDATION INC The provided content is a fact sheet on kidney disease in the United States, citing statistics from the CDC, NIH, and other health organizations. It covers pre… | NY | $50.1M | 10 | |
| 2 | NEW YORK CENTER FOR KIDNEY TRANSPLANTATION INC Consortium of kidney transplant centers, organ procurement organizations, and patient advocacy groups in New York State focused on education, advocacy, and col… | NY | $161K | 10 | |
| 3 | ZTTK SON-SHINE FOUNDATION ZTTK SON-SHINE FOUNDATION supports individuals with ZTTK syndrome, a rare genetic disorder. The organization funds research initiatives, including drug repurpo… | NY | $524K | 10 | |
| 4 | KIF1AORG INC KIF1AORG INC is a global nonprofit dedicated to improving the lives of individuals affected by KIF1A-associated neurological disorder (KAND) and accelerating r… | NY | $295K | 9 | |
| 5 | THE BARTH SYNDROME FOUNDATION The Barth Syndrome Foundation promotes awareness, supports research, and advocates for patients and families affected by Barth syndrome, a rare genetic disorde… | NY | $1.9M | 9 | |
| 6 | THE MARFAN FOUNDATION INC The Marfan Foundation provides education, support, and resources for individuals and families affected by Marfan syndrome, Loeys-Dietz syndrome, vascular Ehler… | NY | $7.8M | 8 | |
| 7 | HEALTHY PARKINSONS COMMUNITIES OF THE GREATER CAPITAL REGION INC Website provides educational resources about Parkinson's disease, including symptoms, treatment options, and support for patients and care partners. Content co… | NY | $87K | 7 | |
| 8 | KIDNEY FOUNDATION OF WNY INC Provides education and community awareness about kidney disease and treatment options, including dialysis and transplantation. Focuses on supporting individual… | NY | $177K | 7 | |
| 9 | PRIMARY BILIARY CHOLANGITIS ORGANIZATION Primary Biliary Cholangitis Organization is a nonprofit based in Rochester, NY, dedicated to education and support for individuals affected by primary biliary … | NY | $66K | 7 | |
| 10 | RIAAN RESEARCH INITIATIVE INC Riaan Research Initiative is a nonprofit organization dedicated to advancing treatments for Cockayne Syndrome, a rare and fatal genetic disorder. The organizat… | NY | $616K | 7 | |
| 11 | Tatton Brown Rahman Syndrome Community Inc The Tatton Brown Rahman Syndrome (TBRS) Community supports families affected by the rare genetic disorder TBRS and advances research toward effective intervent… | NY | $309K | 7 | |
| 12 | YELLOW BRICK ROAD PROJECT INC Nonprofit organization led by parents of patients, dedicated to advancing research, raising awareness, and connecting families affected by HNRNPH2 mutations. T… | NY | $2K | 7 | |
| 13 | AID FOR AIDS INTERNATIONAL INC AID FOR AIDS INTERNATIONAL is a nonprofit organization founded in New York that improves the quality of life of people living with HIV/AIDS, particularly in La… | NY | $6.9M | 6 | |
| 14 | BREAST CANCER OPTIONS INC The website content describes a commercial entity, The Harmony Company, and its product offerings of dietary supplements and health products, including discoun… | NY | $81K | 6 | |
| 15 | Cri Du Chat Research Foundation Inc The Cri Du Chat Research Foundation Inc is a nonprofit organization dedicated to advancing research and support for individuals affected by Cri du Chat Syndrom… | NY | $135K | 6 | |
| 16 | DIASPORA COMMUNITY SERVICES INC Diaspora Community Services Inc (DCS) is a Brooklyn-based nonprofit that empowers low-income individuals, immigrants, and youth through culturally sensitive he… | NY | $9.9M | 6 | |
| 17 | G6PD DEFICIENCY FOUNDATION The G6PD Deficiency Foundation is a nonprofit organization dedicated to providing educational resources and support for individuals with G6PD deficiency, their… | NY | $7K | 6 | |
| 18 | HUNTERS CMT4B3 RESEARCH FOUNDATION INC HUNTERS CMT4B3 RESEARCH FOUNDATION INC is a nonprofit dedicated to funding scientific research for Charcot-Marie-Tooth Disease Type 4B3 (CMT4B3), an ultra-rare… | NY | $609K | 6 | |
| 19 | HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC Nonprofit dedicated to improving the lives of people with Huntington's disease and their families. Provides educational resources, care guidance, and support s… | NY | $10.2M | 6 | |
| 20 | LETS WIN PANCREATIC CANCER FOUNDATION Let's Win Pancreatic Cancer Foundation is a nonprofit that provides science-based, medically vetted information to patients and caregivers navigating pancreati… | NY | $1.7M | 6 |