organizations
Organizations in this activity group · 8
showing 8 of 8
| # | Organization | State | Revenue | Activities ↓ | |
|---|---|---|---|---|---|
| 1 | PRIMARY BILIARY CHOLANGITIS ORGANIZATION Primary Biliary Cholangitis Organization is a nonprofit based in Rochester, NY, dedicated to education and support for individuals affected by primary biliary … | NY | $66K | 6 | |
| 2 | ASSOC OF BLACK GASTROENTEROLOGISTS The Association of Black Gastroenterologists and Hepatologists (ABGH) is a nonprofit founded in 2021 to address health care disparities in gastrointestinal and… | NY | $1.3M | 2 | |
| 3 | AL D RODRIGUEZ LIVER FOUNDATION The Al D. Rodriguez Liver Foundation (ADRLF) is a nonprofit organization focused on liver health education and resource referral. The foundation promotes aware… | NY | $102 | 1 | |
| 4 | AMERICAN FRIENDS OF SHAMIR (ASSAF HAROFEH) MEDICAL CENTER Shamir Medical Center (Assaf Harofeh) in Israel is a major medical facility providing advanced healthcare across numerous specialties including internal medici… | NY | $2.6M | 1 | |
| 5 | FOUNDATION FOR INTEGRATED MEDICINE Nonprofit organization dedicated to educating the public and medical professionals about integrated medicine, with a focus on the gut microbiome, circadian hea… | NY | $105K | 1 | |
| 6 | IMMILAND ORG INC Organization identified as IMMILAND ORG INC, based in New York, with a mission focused on education regarding liver disease. The NTEE classification indicates … | NY | — | 1 | |
| 7 | NARROWS INSTITUTE FOR BIOMEDICAL RESEARCH INC The Narrows Institute for Biomedical Research and Education (NIBRE) is a nonprofit 501(c)(3) organization established to support and facilitate VA-approved res… | NY | $5.0M | 1 | |
| 8 | PETER & TOMMY FUND INC The Peter & Tommy Fund Inc is a nonprofit organization based in Buffalo, NY, dedicated to supporting and fostering clinical research and treatment of pediatric… | NY | $704 | 1 |
approaches
Strategies used in this activity group
Approaches extracted from orgs working in this activity group and the groups nested inside it.
- Patient-Centered Education and Empowerment 3 orgsBy providing accessible, expert-guided education and fostering lived-experience networks, patients become more informed and activated in their care, because knowledge, emotional support, and self-advocacy skills increase engagement, adherence, and health literacy. This strategy centers on equipping patients with credible information, peer support, and tools for self-advocacy to improve health outcomes. It distinguishes itself from purely clinical or provider-focused models by treating patient agency as a primary driver of change, integrating emotional resilience, health literacy, and systemic navigation. Unlike top-down education efforts, it emphasizes bidirectional learning, incorporating patient voices into program design and policy advocacy.AL D RODRIGUEZ LIVER FOUNDATIONFOUNDATION FOR INTEGRATED MEDICINEIMMILAND ORG INC
- Early Detection and Prevention 1 orgBy promoting accessible screening and preventive interventions, the organization enables early identification and management of kidney disease, because timely action slows or prevents disease progression. This strategy centers on intercepting kidney disease at its earliest, most treatable stages through widespread education, low-barrier testing, and risk reduction. It distinguishes itself from treatment-focused or advocacy-driven approaches by prioritizing upstream clinical intervention—before irreversible damage occurs—and leverages tools like community screenings, genetic testing, and behavioral nudges to enable proactive care. While other strategies address systemic equity or patient empowerment, this approach hinges on the clinical and public health principle that early diagnosis significantly improves long-term outcomes.PRIMARY BILIARY CHOLANGITIS ORGANIZATION
- Holistic Integration Model 1 orgBy integrating medical, psychological, social, and spiritual supports within a unified, person-centered framework, organizations improve recovery outcomes, because addressing the full spectrum of an individual’s needs leads to more sustainable engagement and resilience than isolated interventions. This strategy centers on treating individuals as whole persons rather than focusing on discrete symptoms or diagnoses. It distinguishes itself from narrower clinical models by intentionally weaving together behavioral health, social services, family systems, peer support, and trauma-informed practices into a coordinated continuum of care. Unlike single-modality approaches, the Holistic Integration Model assumes that lasting recovery emerges from aligning multiple domains of well-being—biological, emotional, relational, and systemic—within a culturally responsive and client-driven process.FOUNDATION FOR INTEGRATED MEDICINE
- Integrated Research-Clinical Model 1 orgBy embedding research within clinical care and training environments, we accelerate medical innovation and improve patient outcomes, because continuous feedback between discovery and practice enables rapid translation and real-world validation of new knowledge. This strategy unifies scientific inquiry, clinical delivery, and education into a single, iterative system where discoveries are rapidly implemented and refined based on patient data and frontline experience. Unlike standalone research or clinical models, it depends on structural integration—shared teams, infrastructure, and leadership—across science and practice to close the loop between bench and bedside. It is distinct from siloed approaches by treating clinical settings as living laboratories for innovation, ensuring that advances in medicine are both evidence-driven and immediately actionable.AMERICAN FRIENDS OF SHAMIR (ASSAF HAROFEH) MEDICAL CENTER
- Integrated, Culturally Affirming Care 1 orgBy integrating medical, behavioral, and social services within culturally affirming and community-rooted models, we improve health and social outcomes because trust, accessibility, and holistic support are essential for engagement among marginalized populations. This strategy combines structural integration of services—such as co-locating care and coordinating interdisciplinary teams—with deep cultural attunement, including language access, trauma-informed practices, and alignment with community values. What distinguishes it from narrower models is its dual emphasis on system-level coordination and cultural legitimacy, ensuring that care is not only accessible but also trusted and relevant to the lived experiences of the populations served. It emerges consistently across organizations working with vulnerable elders, refugees, and urban underserved communities, reflecting a shared theory that integration without cultural affirmation fails to reach those most in need.PRIMARY BILIARY CHOLANGITIS ORGANIZATION
- Patient-Centered Integration 1 orgBy integrating care across disciplines and centering patient agency, preferences, and lived experience, organizations produce improved health outcomes and engagement, because holistic, coordinated, and personalized approaches address the full spectrum of medical, emotional, and social needs while fostering trust and adherence. This strategy unifies models that combine structural integration of services—such as co-located care, multidisciplinary teams, and home-based delivery—with a deep commitment to patient partnership, shared decision-making, and individualized planning. What distinguishes it from narrower operational models is its dual focus on system-level coordination and patient-level empowerment, treating both clinical integration and personal agency as essential to effective care. Unlike purely logistical or educational approaches, this strategy assumes that sustainable health improvement arises from aligning clinical expertise with the patient’s values, environment, and lifeAMERICAN FRIENDS OF SHAMIR (ASSAF HAROFEH) MEDICAL CENTER
- Patient-Centered Research Acceleration 1 orgBy integrating patients and families as active partners in research design, governance, and data collection, we accelerate the development of meaningful therapies, because lived experience ensures scientific priorities align with real-world needs, improves study relevance, and increases participation and trust. This strategy places patients not just as subjects but as co-creators of research, leveraging their insights to shape everything from research questions to trial design and resource allocation. Unlike traditional models that treat patient engagement as outreach or recruitment, this approach embeds patient perspectives into the scientific process itself, increasing the speed and relevance of therapeutic development—particularly critical in rare and genetic diseases where data is scarce and misaligned incentives can stall progress. It distinguishes itself from broader collaboration models by centering identity-driven expertise (patients/families) rather than institutional or discPRIMARY BILIARY CHOLANGITIS ORGANIZATION
- Representative Workforce Development 1 orgBy increasing representation of underrepresented racial, ethnic, and cultural groups in the healthcare workforce, we improve health equity and community trust, because shared identity enhances cultural competence, patient engagement, and care quality. This strategy centers on diversifying the medical profession to mirror the communities it serves, with the belief that a representative workforce improves both patient outcomes and systemic accountability. It goes beyond general diversity initiatives by emphasizing lived experience and cultural alignment as active mechanisms for reducing disparities. Unlike broader workforce development models, this approach specifically links provider identity and community belonging to improved health access and equity.ASSOC OF BLACK GASTROENTEROLOGISTS
- Research-Focused Medical Advancement 1 orgBy funding and coordinating scientific research and innovation in pediatric health, we improve child health outcomes and advance medical knowledge, because targeted investment in evidence-based discovery drives progress in diagnosis, treatment, and prevention of serious pediatric conditions. This strategy centers on advancing pediatric medical care through deliberate, sustained financial and organizational support for research. It distinguishes itself from broader grantmaking or service delivery models by focusing specifically on high-impact biomedical innovation—particularly in rare or underfunded areas—where market failures limit private-sector engagement. The shared belief across organizations is that catalyzing expert-led research and technology development is the most effective path to transforming clinical outcomes for children.PETER & TOMMY FUND INC
- Root-Cause Healing 1 orgBy identifying and addressing underlying physiological, systemic, and environmental causes of illness rather than managing symptoms, organizations produce lasting health improvements, because resolving root causes leads to more effective, personalized, and sustainable outcomes. This strategy emphasizes a paradigm shift from symptom suppression to deep healing by focusing on innate biological repair mechanisms, holistic integration, and individualized assessment. It unites diverse organizations around a shared belief in the body’s self-regulating capacities and the importance of treating the whole person—physically, mentally, and spiritually. Unlike conventional or purely operational models, this approach prioritizes functional medicine, patient empowerment, and scientific validation of holistic practices to achieve transformative health outcomes.FOUNDATION FOR INTEGRATED MEDICINE