who runs it
Organizations running this strategy · 8
what it looks like in practice
Activities of orgs running this strategy
A sample of programmatic activities from the orgs above — what the strategy looks like on the ground.
- Establishing and managing programs for congenital diaphragmatic hernia (CDH) awareness and research CHARLIE POLIZZI'S WARRIOR OF THE ANGELS INCdirect serviceDesigns and operates programs aimed at increasing awareness of congenital diaphragmatic hernia (CDH) and advancing research to improve survival rates and quality of life for affected individuals.
- Funding CDH awareness and research initiatives through grants and contributions CHARLIE POLIZZI'S WARRIOR OF THE ANGELS INCgrantmakingSecures grants and donations to support organizational objectives focused on congenital diaphragmatic hernia (CDH) awareness and research advancement.
- Funding pediatric research at hospitals and medical institutions Childrens Medical Research Foundation IncgrantmakingProvides financial support for pediatric research projects carried out by hospitals and medical institutions.
- Funding pediatric cardiology research and medical advances The Gunnar Frederick Woelfel Fund IncgrantmakingIdentifies and funds experts and initiatives focused on advancing medical knowledge and treatment in pediatric cardiology.
- Funding research and treatment in pediatric infectious diseases, immunology, and genetics AMANDA KANOWITZ FOUNDATION INCgrantmakingProvides financial support for research and treatment initiatives focused on infectious diseases, immunology, and genetics as they impact children.
- Supports clinical research and treatment of pediatric liver disease PETER & TOMMY FUND INCresearchProvides support for clinical research and fosters treatment initiatives focused on pediatric liver disease.
- Funding nonprofit organizations PICHICHERO FAMILY FOUNDATIONgrantmakingProvides charitable grants to support nonprofit organizations.
- Funding research initiatives PICHICHERO FAMILY FOUNDATIONgrantmakingProvides charitable grants to support research initiatives.
- Funding research and programs for congenital heart defects CHILDREN'S HEART FOUNDATIONgrantmakingFunds research and programs focused on advancing the diagnosis, treatment, and prevention of congenital heart defects. This grantmaking activity supports progress in pediatric cardiac care.
- Conducting research on pediatric heart failure therapies and devices Heart Hope for KidsIncresearchConducts long-term research and development of technologies and therapies for congenital and acquired heart failure in children, including extensive pre-clinical testing demonstrating the safety, performance, and biocompatibility of the PediaFlow device.
- Development and clinical advancement of the PediaFlow pediatric heart-assist device Heart Hope for KidsIncdirect serviceDeveloped and advanced the PediaFlow, a miniaturized implantable maglev heart pump for infants and young children with congenital or acquired heart failure, as a bridge to recovery or transplant. Conducted over 15 years of research, pre-clinical testing, and nine years of device-specific research, including optimization for low-cost manufacturing and development of clinical accessories. Established manufacturing infrastructure and initiated wider-scale clinical testing.
- Funding external research for pediatric heart failure technologies Heart Hope for KidsIncgrantmakingFunds and coordinates external research to develop medical solutions and therapies for pediatric heart failure, including supporting FDA approval efforts for new technologies such as the PediaFlow device.
- Providing family support resources for pediatric heart failure care Heart Hope for KidsIncdirect serviceProvides resources to families of children with heart failure to support shared decision-making with healthcare providers and preparation for lifestyle adjustments related to treatment and device use.