What they call their work
What they do
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Rare Genetic Disease Research and Advocacy 1 activity
- Establishing and managing programs for congenital diaphragmatic hernia (CDH) awareness and researchDesigns and operates programs aimed at increasing awareness of congenital diaphragmatic hernia (CDH) and advancing research to improve survival rates and quality of life for affected individuals.
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Pediatric Medical Care and Research Support 1 activity
- Funding CDH awareness and research initiatives through grants and contributionsSecures grants and donations to support organizational objectives focused on congenital diaphragmatic hernia (CDH) awareness and research advancement.
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Who runs it
- BRYANNA FUCCI — DIRECTOR
- KRISTIN POLIZZI — BOARD CHAIR
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Research and Awareness Programmingmethodology: collaborative_research_and_awarenessBy establishing and managing targeted programs—either independently or in partnership—we advance research and increase awareness for congenital diaphragmatic hernia (CDH), because coordinated, focused initiatives accelerate knowledge dissemination and improve survival rates and quality of life for affected individuals.