organizations
Organizations in this activity group · 105
showing 20 of 50
| # | Organization | State | Revenue | Activities ↓ | |
|---|---|---|---|---|---|
| 1 | ZTTK SON-SHINE FOUNDATION ZTTK SON-SHINE FOUNDATION supports individuals with ZTTK syndrome, a rare genetic disorder. The organization funds research initiatives, including drug repurpo… | NY | $524K | 9 | |
| 2 | KIF1AORG INC KIF1AORG INC is a global nonprofit dedicated to improving the lives of individuals affected by KIF1A-associated neurological disorder (KAND) and accelerating r… | NY | $295K | 7 | |
| 3 | THE BARTH SYNDROME FOUNDATION The Barth Syndrome Foundation promotes awareness, supports research, and advocates for patients and families affected by Barth syndrome, a rare genetic disorde… | NY | $1.9M | 7 | |
| 4 | G6PD DEFICIENCY FOUNDATION The G6PD Deficiency Foundation is a nonprofit organization dedicated to providing educational resources and support for individuals with G6PD deficiency, their… | NY | $7K | 6 | |
| 5 | RIAAN RESEARCH INITIATIVE INC Riaan Research Initiative is a nonprofit organization dedicated to advancing treatments for Cockayne Syndrome, a rare and fatal genetic disorder. The organizat… | NY | $616K | 6 | |
| 6 | Tatton Brown Rahman Syndrome Community Inc The Tatton Brown Rahman Syndrome (TBRS) Community supports families affected by the rare genetic disorder TBRS and advances research toward effective intervent… | NY | $309K | 6 | |
| 7 | YELLOW BRICK ROAD PROJECT INC Nonprofit organization led by parents of patients, dedicated to advancing research, raising awareness, and connecting families affected by HNRNPH2 mutations. T… | NY | $2K | 6 | |
| 8 | Cri Du Chat Research Foundation Inc The Cri Du Chat Research Foundation Inc is a nonprofit organization dedicated to advancing research and support for individuals affected by Cri du Chat Syndrom… | NY | $135K | 5 | |
| 9 | ELLYS TEAM INC Ellys Team Inc is a foundation founded by parents of a child diagnosed with NEDAMSS, a rare neurodevelopmental disorder caused by mutations in the IRF2BPL gene… | NY | $0 | 5 | |
| 10 | HUNTERS CMT4B3 RESEARCH FOUNDATION INC HUNTERS CMT4B3 RESEARCH FOUNDATION INC is a nonprofit dedicated to funding scientific research for Charcot-Marie-Tooth Disease Type 4B3 (CMT4B3), an ultra-rare… | NY | $609K | 5 | |
| 11 | THE MARFAN FOUNDATION INC The Marfan Foundation provides education, support, and resources for individuals and families affected by Marfan syndrome, Loeys-Dietz syndrome, vascular Ehler… | NY | $7.8M | 5 | |
| 12 | GWW NLSDM CORP DBA GABBY'S WONDERFUL WORLD Gabby's Wonderful World is a nonprofit organization dedicated to raising awareness about Neutral Lipid Storage Disease with Myopathy (NLSD-M), a rare genetic d… | NY | $165K | 4 | |
| 13 | LEO'S LIGHTHOUSE FOUNDATION INC Leo's Lighthouse Foundation is a nonprofit dedicated to finding a cure for Bainbridge-Ropers Syndrome (BRS), a rare genetic disorder caused by ASXL3 gene mutat… | NY | $0 | 4 | |
| 14 | OVERCOMING MULTIPLE SCLEROSIS USA INC Overcoming Multiple Sclerosis USA Inc is a nonprofit focused on providing evidence-based information about multiple sclerosis management, particularly the inte… | NY | $6K | 4 | |
| 15 | SALLA TREATMENT AND RESEARCH FOUNDATION INC SALLA TREATMENT AND RESEARCH FOUNDATION INC supports research, education, and awareness for Salla disease and free sialic acid storage disorders (FSASD), a gro… | NY | $289K | 4 | |
| 16 | APS TYPE 1 FOUNDATION The APS Type 1 Foundation supports individuals affected by Autoimmune Polyglandular Syndrome Type 1 (APS Type 1), a rare autoimmune disorder. The organization … | NY | $126K | 3 | |
| 17 | DIAMOND BLACKFAN ANEMIA FOUNDATION The Diamond Blackfan Anemia Foundation supports patients and families affected by Diamond Blackfan Anemia Syndrome while advancing research toward better treat… | NY | $499K | 3 | |
| 18 | DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION The Familial Dysautonomia Foundation supports medical care, research, social services, and public education for people affected by or at risk for familial dysa… | NY | $1.6M | 3 | |
| 19 | FOXG1 Research Inc FOXG1 Research Inc is a nonprofit organization based in Sands Point, NY, focused on advancing research and finding treatments for FOXG1 Syndrome, a rare geneti… | NY | $6.9M | 3 | |
| 20 | FRIENDS OF TELETHON FOUNDATION ITALY INC FRIENDS OF TELETHON FOUNDATION ITALY INC, operating as Daybreak Children’s Rare Disease Fund, supports research into rare genetic diseases by raising awareness… | NY | $9K | 3 |