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research dossier

OVERCOMING MULTIPLE SCLEROSIS USA INC

BROOKLYN, NY · EIN 473299789 · Form 990EZ · FY2020 · NTEE H40 · Medical Research · Micro (<$100K) · overcomingms.org
revenue
$6K
expenses
$5K
net assets
$36K
employees
mission · from form 990

TO PROVIDE THE LATEST RESEARCH EVIDENCE TO THE MULTIPLE SCLEROSIS COMMUNITY AROUND THE WORLD. THE PRINCIPLE OBJECTIVES OF THE ORGANIZATIONARE TO RELIEVE PEOPLE WITH MULTIPLE CLEROSIS AND TO PROMOTE PUBLIC HEALTH.

profile · synthesized from sources

Overcoming Multiple Sclerosis USA Inc is a nonprofit focused on providing evidence-based information about multiple sclerosis management, particularly the integration of medication and lifestyle changes. It serves the global MS community by disseminating research and practical tools to support informed treatment decisions. The organization emphasizes optimizing quality of life through personalized disease-modifying therapies and symptom management strategies.

named programs · 2 · from sources

What they call their work

Live Well Hub
Online community platform where people with MS can connect with experts and peers to discuss treatment options and share experiences
Medication Decision Support
Provides evidence-based resources and tools to help individuals understand and choose appropriate disease-modifying therapies for MS
activities · 5 groups

What they do

  • Rare Genetic Disease Research and Advocacy 4 activities
    • Advocating for standardized medication reviews for people with MS
      Advocates for annual comprehensive and medication-specific reviews for all people with MS in accordance with NICE 2022 guidance.
    • Delivering a comprehensive lifestyle program for people with MS
      Offers a structured, evidence-based lifestyle program with seven pillars—including diet, exercise, stress management, and vitamin D supplementation—to help individuals live well with multiple sclerosis. The program includes downloadable guides, habit planners, and expert-led resources.
    • Facilitating medication optimization and informed decision-making
      Provides information and promotes regular discussions to help individuals with MS make informed choices about disease-modifying and symptom-management medications.
    • Providing vitamin D education and supplementation guidance
      Recommends daily vitamin D supplementation, testing after diagnosis, and one-time megadoses under medical supervision for people with MS. Offers downloadable guides to support patient-provider conversations and explain vitamin D's role in the program.
  • Parkinson's Disease Research and Support 1 activity
    • Hosting community events and interactive online sessions
      Hosts an annual in-person and online event featuring expert insights, practical support, and personal stories, along with bi-monthly live online sessions and interactive 1-hour webinars through the Live Well Hub for the MS community.
  • Fitness Training and Group Exercise Programs 1 activity
    • Providing exercise and physical activity support for people with MS
      Offers a 6-month program in the Live Well Hub to help individuals develop a step-by-step exercise routine, along with downloadable guides explaining the physical activity component of the Overcoming MS Program.
  • Spiritual Development & Meditation Programs 1 activity
    • Supporting stress management and mindfulness for people with MS
      Provides a 6-month stress management program, 30-day mindfulness and stress management plans, free guided meditations, and monthly wellbeing resources through the Live Well Hub and other platforms.
  • Uncategorized 1 activity
    • Conducting and promoting research on lifestyle interventions for MS
      Conducts research on the effects of lifestyle modifications, including on partners of people with MS, and promotes a research-based lifestyle program informed by scientific evidence and personal experience. Received PIF TICK certification in 2026 for trusted, evidence-based health information.
financials · form 990EZ · fy2020
revenue
Total revenue$6K
Contributions & grants$6K100%
Program service revenue
Investment income
Other revenue$18
expenses
Total expenses$5K
Program expenses
Admin / overhead
Fundraising
Salaries & benefits
Grants paid out
balance sheet
Total assets$38K
Cash
Investments
Liabilities
Net assets$36K
1 years on record · 2020–2020
leadership · form 990 part vii · fy2020

Who runs it

board members · 1
  • JANINE STASIOR — BOARD MEMBER
relationships · 17

Who they work with

  • Barts-MS Partner — References the Barts-MS DMT comparison tool as a clinical decision-making resource.
  • Heather Carrasco Partner — Individual with MS whose experience is shared to illustrate program impact and encourage participation.
  • Heather O’Neil Partner — Overcoming MS Facilitator who provides expert insights on stress management and its interaction with MS.
  • Karen Lee Partner — Nutritionist who collaborated on developing budget-friendly strategies for the Overcoming MS diet.
  • Live Well Hub Network — Hosts Discover Overcoming MS events on its free online platform.
  • MS Society Partner — References the MS Society DMT decision tool as a resource for people with MS.
  • MS Trust Partner — References the MS Trust's MS decisions aid as a tool to help finalize medication decisions.
  • Medicines and Healthcare products Regulatory Agency Government — References MHRA licensing of DMTs for MS in the UK as part of treatment information.
  • NHS Government — References NHS recommendations for vitamin D supplementation during pregnancy.
  • National Institute for Health and Care Excellence Government — References NICE 2022 guidance on annual reviews for people with MS.
  • Overcoming MS Network — Global community supporting people with MS through shared experience and lifestyle-based approaches.
  • Overcoming MS Community Network — Facilitates connection and peer support among individuals following the Overcoming MS Program through the Live Well Hub.
  • PIF Online Government — Recognized as a PIF TICK certified organization for providing trusted, evidence-based health information.
  • Professor George Jelinek Partner — Key figure in developing the Overcoming MS Program based on research and personal experience with MS.
  • Sam Josephs Partner — Nutritional therapist who collaborated on developing budget-friendly strategies for the Overcoming MS diet.
  • United States Federal Drug Administration Government — References FDA approval status of DMTs for MS as part of treatment information.
  • healthcare practitioners Partner — Collaborates with healthcare practitioners to support personalized vitamin D supplementation plans for people with MS.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Family and Community-Supported Behavior Change
    methodology: family_centered_support
    By engaging families and peer communities in lifestyle adoption, the organization improves adherence and sustainability because shared social environments normalize healthy behaviors and provide motivational reinforcement, making individual change more achievable and durable.
  • Integrated Lifestyle and Medical Management for MS
    methodology: integrated_care
    By combining evidence-based lifestyle modifications with optimized medication and therapies, the organization improves health outcomes and quality of life for people with MS, because integrated approaches address both biological and behavioral drivers of disease progression more effectively than medication alone.
  • Plant-Based Nutrition as a Core Disease-Modifying Intervention
    methodology: plant_based_nutrition
    By promoting a plant-based, wholefood diet low in saturated fat and dairy, the organization aims to improve MS outcomes because such dietary patterns are believed to reduce inflammation and modulate immune function, thereby slowing disease progression and improving symptom control.
  • Stress Management as a Biological and Symptomatic Intervention
    methodology: stress_inflammation_link
    By integrating stress reduction into MS care, the organization reduces symptom exacerbation and improves mental health because chronic stress is believed to trigger inflammation and worsen neurological outcomes, making stress a modifiable risk factor in disease management.
  • Vitamin D and Sunlight Modulation of Immune Function in MS
    methodology: vitamin_d_modulation
    By maintaining optimal vitamin D levels and encouraging natural sunlight exposure, the organization reduces disease activity and relapse risk because vitamin D modulates immune function, and sunlight provides additional holistic benefits that support neurological and mental health in MS.