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PARKINSON'S FOUNDATION INC
NEW YORK, NY · EIN 131866796 · Form 990 · FY2024 · NTEE H800 · Medical Research · Very Large (>$50M) · parkinson.org
revenue
$84.2M
expenses
$69.0M
net assets
$48.3M
employees
202
volunteers
3,630
program ratio
86%
mission · from form 990

MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE.

profile · synthesized from sources

Parkinson's Foundation improves care and advances research toward a cure for Parkinson's disease. The organization supports people with Parkinson's through a national network of care centers, professional training, and free educational resources including a toll-free helpline and virtual wellness programs. It funds research, community grants, and hosts grassroots fundraising events like Moving Day walks across the U.S.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $18.79M
    PILLAR 3 - EDUCATING AND EMPOWERING THE PARKINSON'S COMMUNITY: WE PROVIDE A VARIETY OF IN-PERSON AND VIRTUAL RESOURCES, HELPING EVERYONE LIVE BETTER WITH PARKINSON'S. THE FOUNDATION IS THE FIRST ORGANIZATION TO FORM A PARKINSON'S ADVISORY COUNCIL AND THE FIRST TO TRAIN PEOPLE WITH PD TO PARTNER WITH SCIENTISTS ON RESEARCH. WE HELP PEOPLE LIVE WELL WITH PD BY PROVIDING FREE RESOURCES, INCLUDING AN INTERACTIVE VIRTUAL SERIES, PD HEALTH @ HOME, WHICH FEATURES EVENTS FOCUSED ON WELLNESS, EXERCISE AND MENTAL HEALTH, A NEWLY DIAGNOSED GUIDE DESIGNED TO HELP PEOPLE WITH PARKINSON'S AND THEIR LOVED ONES GET STARTED ON THEIR PD JOURNEY AND A TOLL-FREE HELPLINE STAFFED BY PARKINSON'S SPECIALISTS WHO ANSWER QUESTIONS IN ENGLISH AND SPANISH ON NEARLY 25,000 CALLS ANNUALLY. WE ALSO FUND COMMUNITY GRANTS ANNUALLY TO SUPPORT PROGRAMS THAT FURTHER THE HEALTH, WELLNESS AND EDUCATION OF PEOPLE WITH PARKINSON'S DISEASE IN LOCAL COMMUNITIES ACROSS THE U.S. WE BRING LOCAL COMMUNITIES TOGETHER THROUGH MOVING DAY, A WALK FOR PARKINSON'S. THIS NATIONAL GRASSROOTS EVENT HAS RAISED $50.2 MILLION SINCE INCEPTION TO SUPPORT PARKINSON'S RESEARCH AND LOCAL WELLNESS PROGRAMS ACROSS THE COUNTRY.
  2. #2 $10.20M
    PILLAR 1 - ENSURING BETTER CARE FOR EVERYONE: WE SET STANDARDS FOR EXPERT PARKINSON'S CARE THROUGH A GLOBAL CARE NETWORK. OUR DESIGNATED CENTERS ARE RENOWNED FOR OUTSTANDING PERFORMANCE IN PARKINSON'S RESEARCH, CARE AND OUTREACH. WE CONTINUE TO GROW THIS NETWORK AND FACILITATE INNOVATIVE SOLUTIONS LIKE TELEMEDICINE CARE TO REACH THE 90% OF PEOPLE WHO ARE NOT RECEIVING CARE FROM TRAINED SPECIALISTS. RESPONDING TO A NATIONWIDE SHORTAGE OF TRAINED SPECIALISTS, WE ARE CLOSING THE GAP IN PD PROFESSIONAL TRAINING BY EDUCATING PHYSICIANS, NURSES, PHYSICAL THERAPISTS, SPEECH LANGUAGE THERAPISTS AND SOCIAL WORKERS. THE NEXT GENERATION OF HEALTHCARE PROFESSIONALS MUST BE EQUIPPED WITH THE KNOWLEDGE AND SKILLS NECESSARY TO PROVIDE COMPREHENSIVE CARE WITH A FOCUS ON THE SPECIFIC NEEDS OF INDIVIDUALS LIVING WITH PD. WE ALSO PROVIDE A LIFE-SAVING HOSPITAL SAFETY GUIDE THAT CONTAINS TOOLS AND INFORMATION IN ENGLISH AND SPANISH TO PROTECT, PREPARE AND EMPOWER PEOPLE WITH PARKINSON'S DURING HOSPITAL STAYS.
named programs · 6 · from sources

What they call their work

Community Grants Program
Annual grants supporting local programs that promote health, wellness, and education for people with Parkinson's across the U.S.
Global Care Network
Network of designated Parkinson's Centers of Excellence that set standards for expert care and expand access through telemedicine
Moving Day Walk for Parkinson's
National grassroots fundraising event held across the U.S. to support Parkinson's research and local wellness programs
PD Health @ Home
Interactive virtual series featuring events focused on wellness, exercise, and mental health for people with Parkinson's
Parkinson's Foundation Helpline
Toll-free helpline staffed by Parkinson's specialists who answer questions in English and Spanish, receiving nearly 25,000 calls annually
Professional Training
Program to educate healthcare professionals including physicians, nurses, and therapists on Parkinson's-specific care
activities · 8 groups

What they do

  • Parkinson's Disease Research and Support 4 activities
    • Deliver educational resources and digital tools
      Produces and distributes educational content including podcasts, fact sheets, newsletters, blogs, and digital tools on diagnosis, treatment, non-motor symptoms, mental wellness, nutrition, and daily living strategies for people with Parkinson's.
    • Facilitate peer support and online communities
      Offers PD Conversations, a support group program and online community platform, enabling people with Parkinson's, care partners, and the newly diagnosed to connect and share experiences.
    • Provide mental wellness programs and resources
      Offers a virtual Mental Wellness Series, expert briefings, podcasts, and tip sheets addressing cognition, mood, sleep, and stress management for people with Parkinson's.
    • Support individuals newly diagnosed with Parkinson's
      Provides a Newly Diagnosed Guide, five-step living-well framework, and targeted resources to help individuals and families understand Parkinson's and prepare for medical care.
  • Genetic and Neurological Disease Research Funding 2 activities
    • Award community grants for local wellness programs
      Provides annual community grants to support health, wellness, and education programs for people with Parkinson's in local communities across the U.S., aiming to operate in all 50 states.
    • Fund research on Parkinson's disease mechanisms and treatments
      Funds more than $10 million annually in research grants to scientists studying Parkinson's disease mechanisms, treatments, and epidemiology, including studies on incidence and prevalence.
  • Rare Genetic Disease Research and Advocacy 2 activities
    • Conduct and publish epidemiological research on Parkinson's
      Conducts and publishes research including the Prevalence Project and studies estimating new annual diagnoses, contributing to national understanding of Parkinson's disease burden.
    • Provide free genetic testing and counseling through PD GENEration
      Offers free genetic testing and counseling for Parkinson's-related genes via the national PD GENEration initiative, supporting individuals and advancing research.
  • 24/7 Crisis and Warmline Support Services 1 activity
    • Operate multilingual Helpline for Parkinson's support
      Runs a toll-free Helpline staffed by Parkinson's specialists, providing answers to questions in English and Spanish and responding to nearly 25,000 calls annually.
  • Charity Event Organization 1 activity
    • Organize national fundraising and awareness event (Moving Day)
      Organizes Moving Day, a national grassroots walk event that has raised $50.2 million since inception to support Parkinson's research and local wellness programs.
  • Short-Term Rehabilitation Therapy 1 activity
    • Promote exercise and physical therapies for symptom management
      Recommends and provides access to exercise, physical therapy, occupational therapy, and speech therapy to maintain mobility, independence, and daily functioning for people with Parkinson's.
  • Medical Professional Education & Training 1 activity
    • Train healthcare professionals in Parkinson's care
      Provides professional training for physicians, nurses, therapists, and social workers to improve Parkinson's care delivery; trained over 800 professionals through Centers of Excellence.
  • Uncategorized 2 activities
    • Deploy AI-powered information tool (PAM/Ask PAM)
      Operates an AI chat tool called PAM (or Ask PAM) to deliver on-demand information and support about Parkinson's disease to patients and care partners.
    • Operate Global Care Network for expert Parkinson's care
      Designates and supports specialized care centers across the U.S., including telemedicine expansion, to improve access to expert Parkinson's care; expanded to include first-ever centers in Missouri, New Jersey, and Washington state.
financials · form 990 · fy2024
revenue
Total revenue$84.18M
Contributions & grants$73.39M87%
Program service revenue$00%
Investment income$10.79M13%
Other revenue$0
expenses
Total expenses$69.04M
Program expenses86%
Admin / overhead4%
Fundraising11%
Salaries & benefits$21.28M
Grants paid out$18.03M
Largest expense lineCompensation
balance sheet
Total assets$62.66M
Cash$30K
Investments$52.87M
Liabilities$14.37M
Net assets$48.28M
Liquid reserves9.2 mo
3 years on record · 2020–2024 · YoY revenue +50.4%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 14
NameTitleHours/wkCompensation
JOHN L LEHR PRESIDENT & CEO 40 $638K
MERI MARGARET DEOUDES SVP, CHIEF OPERATING OFFICER (THRU 09/2024) 40 $329K
KAYLN HENKEL EVP, CHIEF ADVANCEMENT OFFICER 40 $325K
JAMES BECK EVP, CHIEF SCIENTIFIC OFFICER 40 $296K
MARK KEAVEY SVP, CHIEF FINANCIAL OFFICER 40 $284K
LEILANI PEARL SVP, CHIEF COMMUNICATIONS OFFICER 40 $280K
CHRISTIANA EVERS VP, CHIEF COMMUNITY ENGAGEMENT OFFICER 40 $260K
SHEERA ROSENFELD VP, CHIEF STRATEGIC INITIATIVES OFFICER 40 $258K
YASNAHIA CORTORREAL SVP, CHIEF HR ADMIN OFFICER 40 $243K
ELIZABETH POLLARD VP, CHIEF TRAINING AND EDUCATION OFFICER 40 $241K
SARA O'HARE VP, OPERATIONS 40 $205K
NICOLE LESSARD VP, CHIEF CLINICAL AFFAIRS OFFICER 40 $202K
ALEJANDRO BLANCO AVP, FINANCE 40 $194K
AJAY SHARMA AVP, CONTROLLER 40 $184K
board members · 11
  • ADAM WOLFBERG — BOARD MEMBER
  • ALESSANDRO DI ROCCO MD — BOARD MEMBER
  • ANDREW B ALBERT — VICE CHAIR
  • CHRISTINA WEAVER JACKSON — BOARD MEMBER
  • CONSTANCE W ATWELL PHD — SECRETARY
  • DAN CAMPBELL — BOARD MEMBER
  • G PENNINGTON EGBERT — BOARD MEMBER
  • HOWARD D MORGAN — IMMEDIATE PAST CHAIR
  • J GORDON BECKHAM — CHAIR
  • JANIS MIYASAKI MD — BOARD MEMBER
  • JOHN THOMOPOULOS — BOARD MEMBER
relationships · 18

Who they work with

  • CND Life Sciences Partner — Manufactures and processes the Syn-One Test for Parkinson's diagnosis.
  • Centers for Disease Control and Prevention Government — Cited as a source for data on Parkinson's disease mortality.
  • Centers of Excellence Network — Network of healthcare centers trained in palliative care and providing high-quality Parkinson’s care.
  • Duke Health Government — Collaborates with Duke Health, a Parkinson's Foundation Center of Excellence, for expert review of medical content.
  • Global Care Network Network — Network of designated centers providing high-quality Parkinson's care, recognized and expanded by the Parkinson's Foundation.
  • Institute for Clinical Evaluative Sciences Partner — Co-supported a 2022 study on Parkinson's disease incidence in North America.
  • International Parkinson and Movement Disorder Society Partner — Collaborates on diagnostic criteria for Parkinson's disease.
  • Parkinson's Advisory Council Partner — Advisory body composed of people with Parkinson's who partner with scientists on research.
  • Parkinson's Foundation Network — Member of its own network as the central organization providing resources and education.
  • Parkinson’s Foundation Chapters Network — Local chapters that deliver support groups, wellness classes, and education programs for people with Parkinson’s and care partners.
  • Parkinson’s Foundation Global Care Network Network — Designated interdisciplinary centers within the Global Care Network provide comprehensive, team-based Parkinson's care.
  • The Michael J. Fox Foundation for Parkinson’s Research Partner — Co-supported a 2022 study on Parkinson's disease incidence in North America.
  • University of Florida Government — Collaborates with the University of Florida's Norman Fixel Institute for Neurological Diseases, a Parkinson's Foundation Center of Excellence, for expert review of medical content.
  • University of Florida Partner — Collaborates with the University of Florida, a Parkinson’s Foundation Center of Excellence, for expert review of medical content.
  • University of Florida Partner — Collaborates with the University of Florida, a Parkinson’s Foundation Center of Excellence, for medical review of content.
  • University of Florida Partner — Hosts a Parkinson’s Foundation Center of Excellence where medical professionals review Foundation content.
  • University of Florida Partner — Movement Disorders Neurologist from University of Florida serves as medical reviewer for Parkinson's Foundation content.
  • University of Michigan Partner — Collaborates with clinical and movement disorders experts for reviewing educational content.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Early Intervention and Holistic Management
    methodology: early-intervention_wellness
    By initiating rehabilitation, wellness programming, and emotional support at diagnosis, we preserve function and well-being because early, comprehensive care addresses both motor and non-motor symptoms before they become debilitating.
  • Exercise as Core Treatment
    methodology: exercise-as-medicine
    By prescribing structured exercise as a primary intervention, we slow disease progression and improve motor and non-motor symptoms because physical activity has neuroprotective and mood-stabilizing effects in Parkinson's disease.
  • Integrated Multidisciplinary Care
    methodology: team-based care
    By coordinating neurologists, therapists, and care partners in a team-based model, we improve symptom management because Parkinson's requires simultaneous intervention across motor, cognitive, and emotional domains.
  • Patient-Partnered Research and Knowledge Empowerment
    methodology: patient-partnered research
    By engaging people with Parkinson's as research partners and providing accessible information, we accelerate discovery and improve self-management because empowered patients contribute data, shape research priorities, and make informed care decisions.
  • Personalized, Patient-Centered Care
    methodology: patient-centered care
    By tailoring treatment plans and care teams to individual symptom profiles and preferences, we improve quality of life because personalized, shared decision-making increases adherence and addresses the heterogeneous nature of Parkinson's.