named programs · 8 · from sources
What they call their work
Aqua Therapy and Land Exercise Grants
Grants to promote physical activity and wellness through structured exercise programs
Educational Programs
Workshops and informational sessions on MS management, drug therapies, and related topics for patients, families, and healthcare professionals
Equipment Loan Closet
Lends durable medical equipment from available inventory to support mobility and independence
Financial Assistance
Provides funding for home modifications and other needs based on eligibility and available resources
Lending Library
Provides books, DVDs, and educational materials about MS for borrowing by clients and families
Men’s and Women’s Retreats
Weekend retreats designed to foster camaraderie, share experiences, and offer respite for individuals with MS
Support Groups
Monthly support groups for individuals with MS, family members, friends, and caregivers held in various locations across Central New York
Transportation Assistance
Offers transportation to neurology appointments when no other options are available
activities · 11 groups
What they do
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Parkinson's Disease Research and Support 2 activities
- Hosts support groups for individuals with MS and their networksConducts monthly and bi-monthly in-person support groups in Syracuse, Chittenango, and Broome County for individuals diagnosed with multiple sclerosis, as well as their families, friends, and caregivers.
- Organizes retreats for peer support among MS communityHosts men's and women's retreats designed to foster peer support, exchange of ideas, and social engagement for individuals living with multiple sclerosis.
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Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Engages in advocacy on behalf of individuals with MSConducts advocacy efforts related to issues affecting clients with multiple sclerosis, promoting their needs and rights within the broader healthcare and policy environment.
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Genetic and Neurological Disease Research Funding 1 activity
- Funds aqua therapy and exercise programs for MS patientsProvides grants to support participation in aqua therapy and land-based exercise programs for individuals with multiple sclerosis.
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Charity Event Organization 1 activity
- Hosts annual fundraising events for MS support servicesOrganizes recurring events including an annual golf tournament, Mission Steps Walk, client picnic, and Poker Walk to raise funds for local multiple sclerosis services and client support.
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Durable Medical Equipment Loan Programs 1 activity
- Operates loan closet for durable medical equipmentMaintains a loan closet providing durable medical equipment to individuals with multiple sclerosis to support their independence and care needs.
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Disease-Specific Clinical & Patient Education 1 activity
- Organizes educational programs on multiple sclerosisOffers educational events and programs for people affected by MS, their support networks, and healthcare professionals, covering topics relevant to living with and treating the disease.
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Home Accessibility Modifications 1 activity
- Provides financial and home modification assistance to clientsOffers financial aid and home modification services to individuals with multiple sclerosis according to established organizational guidelines.
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Rare Genetic Disease Research and Advocacy 1 activity
- Provides information and advocacy services for MS managementOffers current medical information on multiple sclerosis and drug therapies, along with advocacy and support services to help individuals manage the disease. Also provides referrals to local agencies supporting MS care.
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Non-Emergency Medical & Essential Transportation 1 activity
- Provides transportation assistance to medical appointmentsOffers transportation support to neurology appointments for individuals with multiple sclerosis when no other options are available.
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Organizational Newsletter Production and Distribution 1 activity
- Publishes educational newsletter for MS communityProduces and distributes "The MS Chronicle" newsletter six times per year via mail and online to provide ongoing education and updates to the MS community.
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Uncategorized 1 activity
- Operates a lending library for multiple sclerosis resourcesProvides access to books, pamphlets, videos, DVDs, and CDs about multiple sclerosis, including topics on treatment, management, wellness, legal rights, and yoga resources. The collection includes at least 59 books and materials authored by individuals living with MS.
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financials · form 990 · fy2024
revenue
Total revenue$229K
Contributions & grants$213K93%
Program service revenue$9K4%
Investment income$14K6%
Other revenue$-7K
expenses
Total expenses$204K
Program expenses85%
Admin / overhead11%
Fundraising4%
Salaries & benefits$147K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$538K
Cash$124K
Investments$410K
Liabilities$28K
Net assets$511K
Liquid reserves31.3 mo
4 years on record · 2020–2024 · YoY revenue -18.0%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| DOLGESA GOSS | EXECUTIVE DIRECTOR | 40 | $76K |
board members · 12
- CARL FAHRENKRUG — PRESIDENT
- CINDI SEGOVIS — SECRETARY
- DR JOHN MACCAULL — BOARD MEMBER
- DR ROBERT DRACKER — BOARD MEMBER
- JAMES GASCON — BOARD MEMBER
- JIM DIBLASI — BOARD MEMBER
- JOANNE CATANZARITA — BOARD MEMBER
- MARBETH SWEENEY — BOARD MEMBER
- MARIA DRACKER — BOARD MEMBER
- PETER CAPPUCCILLI JR — BOARD MEMBER
- SARAH DAM — TREASURER
- TONI SGROI — BOARD MEMBER
relationships · 8
Who they work with
- Bridie Manor Partner — Host venue for the annual Poker Walk event, serving as the starting and ending point and providing space for lunch and prize activities.
- Care Fare, LLC Partner — Sponsor of the 2026 Mission Steps Walk and MS Awareness Day event.
- Denny’s Carrier Circle Partner — Hosts monthly support group meetings in Syracuse, NY.
- First Presbyterian Church Partner — Provides space for monthly support group meetings in Chittenango, NY.
- Multiple Sclerosis Resources of Central New York, Inc. Network — Member of the Multiple Sclerosis Resources network
- Tuscarora Golf Club Partner — Host venue for the annual "Tee Off Against MS" golf tournament.
- United Church of Christ Church Partner — Provides space for monthly support group meetings in Liverpool, NY.
- Wanoa Golf Course Partner — Host venue for the annual "Tee Off Against MS" golf tournament.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Barrier Reduction to Improve Access and Participationmethodology: barrier-reductionBy removing financial, physical, and privacy-related barriers, the organization increases access to services and support activities because reduced obstacles lead to higher engagement and improved quality of life for individuals with MS.
- Client-Centered Support System Engagementmethodology: support_system_engagementBy establishing a client-centered support system, the organization improves coping and disease management for individuals with multiple sclerosis because peer engagement and community connection enhance emotional resilience and practical self-management.
- Comprehensive Information and Resource Provisionmethodology: information-access_for_self_managementBy offering a centralized lending library and curated educational materials, the organization enables informed decision-making and self-management because access to reliable information empowers individuals to take control of their health journey.