COMMON MAPS
Map version new-york activity top-down
Main site Contact
Menu
↑ parent activity group ·
research dossier

ALS OF UTICA
MARCY, NY · EIN 412096774 · Form 990EZ · FY2024 · NTEE P20 · Human Services · Micro (<$100K) · alsutica.org
revenue
$30K
expenses
$34K
net assets
$321K
employees
—
mission · from form 990

ALS OF UTICA IS COMMITTED TO PROVIDING PALS (PERSON WITH ALS) AND THEIR FAMILIES A GUIDE TO: 1. MANEUVER A DIAGNOSIS OF ALS.2. TO INSPIRE THEM TO BELIEVE THAT THEIR LIFE DOES NOT HAVE TO BE OVER, JUST DIFFERENT THAN PLANNED.3. ASSURANCES THAT TECHNOLOGY AND NUTRITION CAN HELP TO LIVE LONGER, FULFILLING LIVES.4. PROVIDE SKILLS BY WHICH FAMILIES AND FRIENDS CAN RAISE MONEY FOR PALS.5. ALONG WITH KNOWING THAT NO ONE WILL EMBARK ON THIS JOURNEY ALONE,WE ARE ON HAND TO GIVE EMOTIONAL AND FINANCIAL SUPPORT ALL WHILE PRESERVING THE DIGNITY OF EACH PATIENT.

profile · synthesized from sources

ALS of Utica supports individuals with amyotrophic lateral sclerosis (ALS) and their families in Central New York. The organization provides emotional and financial support, guidance on nutrition and technology use, and assistance with legal and caregiving planning. Founded in 2003, it operates entirely through volunteers and focuses on preserving patient dignity while helping families navigate life with ALS.

named programs · 6 · from sources

What they call their work

Clean Up Your Diet
Provides guidance on maintaining a healthy, anti-inflammatory diet for ALS patients, emphasizing fresh fruits and vegetables, healthy fats, and avoidance of processed foods and common allergens
Emotional Support
Offers emotional well-being resources including support groups, gratitude practices, sleep hygiene tips, and connections to online communities for patients and caregivers
Protect Your Assets
Provides guidance on estate planning and connects families with elder law attorneys; offers an Estate Planning Grant to cover legal costs for qualifying families in Oneida and Herkimer Counties
Reversing ALS
Shares information about non-traditional therapies, functional medicine, and documented cases of ALS symptom reversal or stabilization to encourage hope and informed decision-making
TRAID Center Loan Closet Partnership
Collaborates with the Traid Center at UCP to provide access to medical equipment such as wheelchairs and home accessibility devices for ALS patients in the local area
Utilize Technology
Advises on using eye-gaze communication devices, voice banking, and home modifications to maintain independence and quality of life as ALS progresses
activities · 8 groups

What they do

  • Disease-Specific Clinical & Patient Education 2 activities
    • Provides guidance on nutrition and feeding tube use
      Offers education and recommendations on the use of feeding tubes and suitable nutrition supplements such as Liquid Hope for individuals with ALS who have difficulty eating or swallowing.
    • Supports non-traditional care protocols for ALS patients
      Provides information and support to individuals with ALS who are exploring non-traditional protocols that may help stabilize disease progression or extend life beyond predicted timelines.
  • Direct Financial Assistance to Individuals 1 activity
    • Covers costs of medications, supplements, and non-insured care items
      Provides financial assistance to pay for medications, supplements, and other medical expenses not covered by insurance for people living with ALS.
  • Durable Medical Equipment Loan Programs 1 activity
    • Facilitates access to medical equipment through loan programs
      Partners with the Traid Center Loan Closet to provide individuals with ALS access to refurbished and maintained medical equipment, reducing out-of-pocket costs.
  • Genetic and Neurological Disease Research Funding 1 activity
    • Funds estate planning services for ALS families
      Provides grant funding to cover the cost of estate planning services for families affected by ALS through direct payments to partner attorneys.
  • Peer-Led Mental Health Support Groups 1 activity
    • Hosts support groups for ALS caregivers
      Organizes a monthly support group specifically for caregivers of individuals with ALS to provide emotional support, information sharing, and community connection.
  • Charity Event Organization 1 activity
    • Organizes community events for fundraising and awareness
      Hosts annual events including the ALS Golf Classic and Walk to raise funds and increase community awareness about ALS. These events also serve to engage local supporters and families affected by ALS.
  • Patient and Family Support Services 1 activity
    • Provides emotional, financial, and practical support to ALS patients and families
      Offers comprehensive support services including emotional counseling, financial assistance for medications and home modifications, guidance on nutrition and medical technology, and educational resources to help patients and families navigate ALS care. Services are targeted to individuals in the local area, particularly around Utica, NY.
  • Home Accessibility Modifications 1 activity
    • Provides financial assistance for home modifications and mobility needs
      Offers direct financial support for home modifications such as entrance ramps and funds handicap van rentals to improve mobility and independence for individuals with ALS.
financials · form 990EZ · fy2024
revenue
Total revenue$30K
Contributions & grants$24K82%
Program service revenue——
Investment income$6K18%
Other revenue—
expenses
Total expenses$34K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$25K
balance sheet
Total assets$322K
Cash—
Investments—
Liabilities—
Net assets$321K
5 years on record · 2020–2024 · YoY revenue -22.4%
leadership · form 990 part vii · fy2024

Who runs it

board members · 5
  • DANIELLA PADULA — DIRECTOR
  • DAVID ABDOO — DIRECTOR
  • DR JOANNA JOSEPH — DIRECTOR
  • JUDY GALIMO — DIRECTOR
  • JULIE MCCARTHY — DIRECTOR
relationships · 7

Who they work with

  • ALS Worldwide Partner — Collaborates on sharing research and clinical information, including specific dosing protocols for methyl B12 in ALS treatment.
  • Advanced Tool Partner — Provides building space in Marcy, NY for ALS of Utica to operate without rent, utility, or phone expenses.
  • Elder Law Attorneys Partner — Partner attorneys provide estate planning services to ALS families, with ALS of Utica paying directly upon approval.
  • Facebook Partner — Recommends and utilizes Facebook as a platform to connect individuals with ALS to anonymous, supportive online communities for emotional expression.
  • Sherry DePerno Partner — Executive Director and Board President providing leadership and guidance for the organization
  • Sherry DePerno Partner — Founder, Board President, and Executive Director of ALS of Utica
  • Traid Center Loan Closet at UCP Partner — Collaborates with ALS of Utica to provide, store, and maintain medical equipment for individuals with ALS in the local area.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Comprehensive Support Model
    methodology: comprehensive_support_model
    By providing integrated emotional, financial, educational, technological, and nutritional support, the organization helps individuals and families adapt to life after an ALS diagnosis because holistic, coordinated care improves quality of life and ensures no one faces ALS alone.
  • Emotional and Spiritual Wellbeing as Clinical Factor
    methodology: emotional-and-spiritual-wellbeing
    By prioritizing emotional and spiritual wellbeing, the organization improves health outcomes in ALS patients because internal emotional states are believed to directly influence physical resilience and longevity.
  • Integrated Legal and Financial Care
    methodology: integrated_legal_and_financial_support
    By integrating legal planning with financial support, the organization improves access and asset protection for ALS families because expert legal services reduce systemic barriers and enhance long-term stability.
  • Nutrition as Medical Intervention
    methodology: food_is_medicine
    By promoting anti-inflammatory, whole-foods, plant-based diets, the organization supports physical strength and slows disease impact in ALS patients because nutrition is treated as a modifiable factor in disease progression.
  • Technology-Enabled Autonomy
    methodology: technology_integration
    By leveraging assistive technologies like eye-gaze communication and voice banking, the organization preserves independence and personal identity for individuals with ALS because maintaining communication capability sustains dignity and connection.