named programs · 3 · from sources
What they call their work
Direct Financial Grants
Provides unrestricted financial assistance to people living with ALS for home health care, medical expenses, insurance, and home accessibility modifications.
Rock-A-Relief
Benefit concert series supporting ALS patients, with proceeds funding care and equipment needs.
Tim Sheehy Gala and Softball Classic
Annual fundraising event featuring a gala and softball tournament to raise money for ALS patient care and support.
activities · 5 groups
What they do
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Honor and Memorial Recognition Programs 1 activity
- Facilitating commemorative donations and cause-related sales partnershipsSupports fundraising through commemorative card programs for honor and memorial donations and receives a portion of sales from cause-related partnerships, such as the ONEHOPE Wine Tasting event where 10% of proceeds benefit ALS care.
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Genetic and Neurological Disease Research Funding 1 activity
- Funding direct financial assistance for individuals with ALSProvides unrestricted financial grants to individuals living with ALS to cover essential needs such as home healthcare, medical and insurance expenses, and home modifications. The organization has distributed hundreds of grants annually and raised over $3 million since 2006.
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Charity Event Organization 1 activity
- Organizing fundraising events for ALS care and supportHosts annual and one-time events such as the Tim Sheehy Classic softball game and benefit concerts to raise funds for ALS patient care, with over $1 million raised between 2006 and 2017.
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Patient and Family Support Services 1 activity
- Partnering with organizations to expand ALS care and technology accessCollaborates with Team Gleason to support people living with ALS through care services and assistive technology, enhancing access to critical resources and support networks.
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Direct Financial Assistance to Individuals 1 activity
- Providing direct financial assistance and support services to individuals with ALSOffers direct financial aid and in-kind support to individuals living with ALS to improve quality of life, including assistance during financial hardship, provision of communication devices, assistive equipment, and funding for life-changing adventures. Between 2006 and 2017, over $1 million was raised for these services.
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financials · form 990 · fy2025
revenue
Total revenue$274K
Contributions & grants$273K100%
Program service revenue$00%
Investment income$1K1%
Other revenue$0
expenses
Total expenses$240K
Program expenses75%
Admin / overhead25%
Fundraising0%
Salaries & benefits$89K
Grants paid out$114K
Largest expense lineCompensation
balance sheet
Total assets$174K
Cash$162K
Investments$12K
Liabilities$677
Net assets$173K
Liquid reserves8.7 mo
5 years on record · 2020–2025 · YoY revenue -62.0%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Katherine Sheehy | Director | 10 | $80K |
board members · 5
- Christopher Myers — Trustee
- Jon Sciambi — Trustee
- Justin Towey — Trustee
- Mike Rosen — Trustee
- Sean Litton — Trustee
relationships · 5
Who they work with
- ONEHOPE Partner — Collaborates on a wine tasting event where a portion of sales supports ALS-related efforts.
- Team Gleason Partner — Co-hosts the Tim Sheehy Gala and Softball Classic to raise funds for people with ALS.
- Team Gleason Partner — Collaborates with Project Main St. to distribute grants and provide support to individuals living with ALS.
- Team Gleason Partner — Partnership to continue Project Main Street's mission of supporting people living with ALS through care services and technology.
- Team Gleason Partner — Partnership to continue the mission of supporting those living with ALS.
strategies · 1
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Unrestricted Financial Grants for ALS Caremethodology: unrestricted_grantmakingBy providing unrestricted financial grants to individuals living with ALS, the organization enables recipients to address critical and immediate needs related to healthcare and living expenses, thereby improving quality of life because financial instability is a key barrier to sustained care and dignity.