named programs · 5 · from sources
What they call their work
Bereavement Support
Offers emotional support and resources to families during and after the loss of a loved one to ALS
Caregiver Support Program
Hosts monthly caregiver support groups and provides emotional and practical support to families
Financial and Treatment Support Grants
Provides grants to help ALS patients and families manage treatment-related and ongoing expenses
Healthcare Navigation and Advocacy
Provides consultation with licensed social workers and nurses to help families navigate the healthcare system and advocate with providers
Home Accessibility Assistance
Offers guidance and support for barrier-free housing renovations, including installation of ramps and durable medical equipment
activities · 6 groups
What they do
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Patient and Family Support Services 3 activities
- Advocacy services for ALS patientsProvides patient advocacy services to support individuals with ALS in navigating the healthcare system, understanding medical options, and advocating in interactions with healthcare providers.
- Information and resource referrals for ALS patientsProvides information about resources related to nutrition, VA healthcare benefits, and other support services for people with ALS and their families.
- Providing direct support services for people with ALS and familiesProvides direct services including emotional and practical support, care navigation, home visits, and assistance with advance healthcare directives through licensed social workers and nurses to help people with ALS and their families manage disease progression and care needs.
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Grief Support Groups and Counseling 1 activity
- Bereavement support for ALS-affected familiesOffers bereavement support services to families who have lost loved ones to ALS, providing emotional and psychological care during the grieving process.
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Direct Financial Assistance to Individuals 1 activity
- Financial assistance for ALS treatment and care expensesProvides financial grants to help individuals with ALS manage treatment-related and ongoing care costs, enabling access to necessary medical and home-based support.
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Genetic and Neurological Disease Research Funding 1 activity
- Funding ALS survivorship and quality-of-life programsFunds programs that enhance survivorship and quality of life for individuals and families affected by ALS, supporting initiatives aligned with the organization’s philanthropic mission.
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Home Accessibility Modifications 1 activity
- Support for barrier-free housing and durable medical equipment accessProvides guidance on barrier-free home renovations and facilitates access to durable medical equipment such as hospital beds, commodes, shower chairs, and recliner chairs for people with ALS.
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Website Accessibility Implementation 1 activity
- Website accessibility improvementsContinually revises and enhances its website to improve digital accessibility for all users in accordance with Web Content Accessibility Guidelines (WCAG).
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financials · form 990 · fy2024
revenue
Total revenue$186K
Contributions & grants$157K84%
Program service revenue$00%
Investment income$13K7%
Other revenue$17K
expenses
Total expenses$175K
Program expenses61%
Admin / overhead34%
Fundraising5%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$264K
Cash$264K
Investments$0
Liabilities$0
Net assets$264K
Liquid reserves18.1 mo
6 years on record · 2019–2024 · YoY revenue -17.7%
leadership · form 990 part vii · fy2024
Who runs it
board members · 6
- CATHY GLENNON — OFFICE
- JOSEPH LEMKIN — BOARD MEMBER
- KELLY CORWEN — PRESIDENT
- PAUK WOLDAR — TREASURER
- RICH SHEEHY — BOARD MEMBER
- RICHARD KLEIN — SECRETARY
relationships · 14
Who they work with
- Angie Espinoza, LCSW from Queens Partner — Licensed social worker who provides direct support to clients of MAC Angels.
- Bank of America Partner — Richard Klein, a board member of MAC Angels Foundation Inc, is employed as a Senior Managing Director at Bank of America.
- Colgate University Partner — Richard Klein, a board member of MAC Angels Foundation Inc, holds a BA from Colgate University.
- Feeding America Network — Member of national food bank network
- Friends of Claire Foundation Partner — Collaborated with the Friends of Claire Foundation to provide support for Claire and her family during her battle with ALS.
- Givebutter Partner — Platform used to host fundraising events including the Ice Bucket Challenge and Banded Together Against ALS in memory of Joe Luistro.
- JP Morgan Partner — Richard Klein, a board member of MAC Angels Foundation Inc, previously spent 23.5 years at JP Morgan in a senior banking role.
- National Panhellenic Conference Partner — Served as chair and advisor for the unit in Reading, PA, providing program development and organizational support.
- New York University Partner — Richard Klein, a board member of MAC Angels Foundation Inc, holds an MBA from New York University.
- New York’s Office of Victim Services Government — Collaborated on coordinating culturally responsive services to survivors of violence.
- Office on Violence Against Women Government — Collaborated on coordinating culturally responsive services to survivors of violence.
- Queens President Donald Richardson’s Hate Crime Task Force Partner — Member of the task force addressing hate crimes and related issues in Queens, NY.
- VA Government — Provides information about VA healthcare benefits for veterans with ALS.
- eJoinMe Partner — Platform used for managing MAC Angels Foundation wristband sales and donations.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Clinician-Informed Patient Advocacymethodology: clinician-informed advocacyBy integrating clinical nursing expertise into advocacy, the organization improves patient and family outcomes during medical crises because frontline clinical insight enables more effective navigation of complex healthcare systems and timely access to appropriate care.
- Early Nutritional Intervention as Clinical Strategymethodology: early_nutritional_interventionBy intervening early and aggressively with nutritional support, the organization improves survival in ALS patients because malnutrition is a modifiable risk factor and timely nutritional management slows disease progression and supports metabolic resilience.
- Service-Gap-Filling Complementaritymethodology: service-gap-fillingBy identifying and filling unmet needs in the ALS support ecosystem, the organization increases overall system effectiveness because it complements rather than duplicates the work of research-focused organizations, ensuring holistic support for patients and families.
- Targeted Grantmaking for Disease-Specific Supportmethodology: targeted grantmaking for disease-specific supportBy directing grants to programs that address the unique needs of people affected by ALS, the organization improves survival and quality of life outcomes, because focused funding accelerates access to effective, specialized care and support services.