named programs · 3 · from sources
What they call their work
Liver Disease Education & Research Updates
Shares summaries of medical studies and public health reports related to liver conditions, including hepatitis C treatment access and emerging therapeutic possibilities.
Liver-Healthy Recipe Initiatives
Provides seasonal, liver-friendly recipes and meal planning resources to promote healthy eating habits for liver wellness, including holiday-specific guides and ingredient-focused cooking tips.
Screen. Vaccinate. Don’t Hesitate!
Public awareness campaign encouraging hepatitis screening, vaccination, and proactive health behaviors, especially during high-risk periods such as holiday gatherings.
activities · 8 groups
What they do
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Cancer Awareness and Education Initiatives 2 activities
- Advocacy for hepatitis screening and preventionAdvocates for hepatitis screening, prevention, and treatment as a core mission, with a focus on raising awareness about the link between chronic viral hepatitis and hepatocellular carcinoma (HCC).
- Public education on liver disease and hepatitisProvides education and referrals about liver diseases, raises public awareness about the connection between chronic viral hepatitis and liver cancer, and promotes hepatitis screening, prevention, and treatment through workshops, resources, and campaigns such as the annual "Top 10" campaign for World Hepatitis Day.
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Benefit Events for Arts and Culture 1 activity
- Benefit events for fundraisingHosts benefit events such as "Karaoke Nights" and the annual "PINES ’69" gala to raise funds for foundation initiatives, with past events raising between $8,200 and nearly $12,000.
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Liver Disease Research and Support 1 activity
- Development of non-invasive liver disease diagnosticsSupports the development of a microbiome-based, non-invasive diagnostic tool using machine learning to analyze stool samples for early detection of liver disease.
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Community Health Fairs and Screenings 1 activity
- Free hepatitis testing, vaccination, and screening clinicsOrganizes and sponsors free clinics that provide hepatitis testing, vaccinations, and liver cancer screenings, particularly targeting at-risk and underserved communities, in partnership with organizations like the Actor’s Fund / Al Hirschfeld Clinic and through events in locations such as Canandaigua and Rochester, NY.
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Alzheimer's Research and Support Services 1 activity
- Research on liver-related biomarkers and cognitive healthConducted research involving over 1,600 participants to study the relationship between liver-produced plasmalogens and cognitive health, including Alzheimer's disease, and developed specialized tests to measure plasmalogen levels.
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Peer-Led Mental Health Support Groups 1 activity
- Support groups and peer wellness programsHosts monthly hepatitis B and C support groups for diverse communities, including Chinese-speaking and English-speaking populations, and operates a weekly poetry workshop focused on harm reduction and recovery for members of the Positive Health Project.
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HIV/AIDS Prevention and Support Services 1 activity
- Weekly educational call-in programOperates a weekly toll-free educational call every Tuesday from 10:00 to 10:30 PM Eastern Time for individuals affected by Hepatitis, offering a confidential space to ask questions or listen.
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Uncategorized 2 activities
- Dissemination of research on liver cancer risk factorsDisseminates findings from multi-center studies on risk factors for liver cancer, including research on sugary drink consumption and liver cancer risk in postmenopausal women.
- Liver health lifestyle and wellness resourcesProvides liver-friendly recipes for holidays and seasonal events, and offers guidance on meditation practices to support mental, emotional, and liver health, especially during the pandemic.
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financials · form 990EZ · fy2024
revenue
Total revenue$102
Contributions & grants$102100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$27K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$25K
balance sheet
Total assets$26K
Cash—
Investments—
Liabilities—
Net assets$26K
5 years on record · 2020–2024 · YoY revenue +108.2%
leadership · form 990 part vii · fy2024
Who runs it
board members · 4
- Carlos Ortiz — Director
- Crayton Robey — Director
- Darcy Becker — Director
- Sara Ramirez — director
relationships · 27
Who they work with
- Actor’s Fund / Al Hirschfeld Clinic Partner — Partners with ADRLF to provide free hepatitis and liver cancer screenings for uninsured individuals.
- Alzheimer’s Disease Metabolomics Consortium Partner — Partners with the Alzheimer’s Disease Metabolomics Consortium to develop tests measuring liver-produced plasmalogens.
- Bellevue Hospital Partner — Collaborates with ADRLF through clinical and educational initiatives related to liver health.
- Charles B. Wang Community Health Center Partner — Collaborates to promote hepatitis screening and preventive practices in the Asian American and Pacific Islander community through creative approaches like art.
- Delicious.com.au Partner — Shared liver-friendly recipes from Delicious.com.au, including Leek and Ham Soup Pot Pies.
- Everyday Pie Partner — Featured liver-friendly recipes from Everyday Pie, including Butternut Squash, Caramelized Onion and Feta Pie.
- Gay Men’s Health Crisis Partner — Partner organization listed as a local resource for community health and support.
- Harvard T. H. Chan School of Public Health Partner — Collaborated on research analyzing sugary drink consumption and liver cancer risk in women.
- Latino Organization for Liver Awareness Partner — Partner organization focused on liver health awareness within Latino communities.
- NY Public Library Partner — Provides space for the Chinatown Asian Liver Health Support Group.
- NYU Medical Center Partner — Hosts the Midtown Manhattan Hepatitis C Support Group at its facility.
- National Heart, Lung, and Blood Institute Government — Sponsors the Women’s Health Initiative, a source of longitudinal data used in liver cancer risk research.
- New York University Clinical Cancer Center Partner — Partners with ADRLF in liver disease awareness and clinical efforts.
- Paleo Running Momma Partner — Featured liver-friendly recipe content from Paleo Running Momma, including the Paleo Apple Pie Snickerdoodle Skillet Cookie.
- Pan American Health Organization Government — Cites PAHO findings on population risk for severe COVID-19 due to underlying health conditions in the Americas.
- Ryan Community Health Network Partner — Collaborates with ADRLF on health initiatives, including clinics and educational outreach.
- Salk Institute Partner — Collaborated with Salk Institute and UC San Diego on research to develop a non-invasive microbiome-based test for liver disease.
- Salk Institute Partner — Collaborates with Salk Institute scientists in developing a microbiome-based diagnostic tool for liver disease.
- Stanford University’s Center for Compassion and Altruism Research and Education Partner — Provides guided gratitude and loving-kindness meditation resources linked by the foundation.
- Taste of Home Partner — Shared liver-friendly recipes from Taste of Home, including Spiced Eggnog Pumpkin Pie and Sweet Potato Coconut Pie.
- UC San Diego Partner — Collaborated with Salk Institute and UC San Diego on research to develop a non-invasive microbiome-based test for liver disease.
- UC San Diego Partner — Collaborates with UC San Diego researchers in developing a machine learning-based diagnostic tool using stool sample analysis.
- University of Pennsylvania Partner — Collaborates with researchers from the University of Pennsylvania on studies linking liver health to Alzheimer's disease.
- University of South Carolina Partner — Co-conducted research on the link between daily sugary drink intake and liver cancer risk in postmenopausal women.
- William F. Ryan Community Health Center Government — Community health center providing medical services and affiliated with public health initiatives related to liver disease.
- William F. Ryan Community Health Center Partner — Co-hosted the "Karaoke Nights" benefit event on April 8, 2013, to raise funds and awareness for liver disease prevention.
- World Health Organization Government — References WHO data on coronavirus cases and deaths to inform public messaging.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community-Partnered Prevention and Educationmethodology: community-partnered_outreachBy embedding hepatitis screening, vaccination, and education within trusted community settings and partnerships, we increase access and participation among at-risk and underserved populations because trust and cultural familiarity lower barriers to care.
- Culturally Tailored Peer and Creative Supportmethodology: culturally_tailored_supportBy delivering confidential, peer-facilitated education and creative expression programs, we engage individuals affected by liver disease because psychological safety and cultural relevance foster openness and recovery.
- Education and Awareness Through Engagementmethodology: health-educationBy combining public health education with entertainment and myth-busting outreach, we increase awareness and reduce stigma because accessible, engaging formats reach broader audiences than clinical messaging alone.
- Liver-Healthy Lifestyle Integrationmethodology: lifestyle_preventionBy promoting liver health through culturally adapted nutrition, movement, mindfulness, and behavioral substitution, we improve outcomes because integrating clinical prevention into daily life practices increases adherence and sustainability.
- Microbiome and Biomarker Innovationmethodology: microbiome-as-biosensorBy using the gut microbiome and plasmalogen levels as early biosensors for liver and neurocognitive health, we enable earlier intervention because these biomarkers reflect underlying metabolic dysfunction before clinical symptoms arise.