What they call their work
What they do
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Pancreatic Cancer Research and Support 4 activities
- Facilitate online support communitySponsors an online peer support community in partnership with Inspire.com and the Lustgarten Foundation for pancreatic cancer patients and their loved ones.
- Operate Clinical Trial Finder and Trial Navigator servicesProvides tools and support services to help pancreatic cancer patients identify and access relevant clinical trials across the United States based on their disease stage and other criteria.
- Operate Doctor Finder toolOffers a searchable tool that helps patients locate pancreatic cancer specialists by geographic location to support informed treatment decisions.
- Provide multilingual online patient information platformOperates a multilingual online platform offering up-to-date, medically vetted information about pancreatic cancer for patients, caregivers, and high-risk individuals.
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Medical Research & Education Dissemination 2 activities
- Produce PancChat PodcastProduces and distributes a podcast featuring expert discussions with researchers, clinicians, patients, and advocates on topics relevant to the pancreatic cancer community.
- Share survivor stories and patient experiencesCollects and shares personal survivor stories to provide relatable, accessible, and actionable information for newly diagnosed patients and caregivers.
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Disease-Specific Clinical & Patient Education 1 activity
- Disseminate science-based pancreatic cancer research informationPublishes and shares articles and updates on the latest pancreatic cancer research, treatments, and clinical trials to inform patients and caregivers.
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Organizational Newsletter Production and Distribution 1 activity
- Distribute educational newsletterProduces and distributes a free weekly email newsletter containing curated articles, news, and updates for the pancreatic cancer community.
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Cancer Peer Support & Wellness Programs 1 activity
- Provide emotional support resourcesOffers resources on emotional well-being and stress management techniques tailored to pancreatic cancer patients and their caregivers.
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Cancer Patient Financial and Practical Support 1 activity
- Provide treatment and care navigation resourcesOffers resources to help patients build treatment teams, find specialists, access treatment options, and understand genetic and tumor testing, including a medical glossary.
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Fundraising for Community and Charitable Initiatives 1 activity
- Support personalized fundraising initiativesCreates and manages personalized fundraising pages for individuals participating in events to raise money for the organization, including donor acknowledgment support.
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Uncategorized 1 activity
- Provide nutrition and symptom management guidanceProvides dietary guidance and resources to help patients manage digestion and maintain nutrition during treatment, along with information on symptoms and risk factors.
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Who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| CINDY PRICE GAVIN | CEO /Co-Founder | 35 | $100K |
| ALLYSON J OCEAN MD | SAB Chair | 2 | $16K |
- DAVE PRICE — Trustee
- DAVID GLAUBER — Vice Chair
- Dean Xerras MD — Trustee
- ELVIN HOWARD JR — Trustee
- HELENE ANDREWS-POLYMENIS — Trustee
- JUAN PELLERANO-RENDON — Trustee
- KERRI KAPLAN — Treasurer
- MICHAEL GREENSTEIN — Chairman
- SIDNEY LEVINSON — Trustee
- Willa Shalit — Chair Emeritus
Who they work with
- Charlotte Partner — Individual who participated in a 100-mile race to fundraise for Let’s Win Pancreatic Cancer Foundation.
- Dr. Leon Pappas Partner — Collaborates with Dr. Leon Pappas to publish expert insights on KRAS G12D inhibitor research.
- Dylan Partner — Individual who led a mitzvah project to fundraise for Let’s Win Pancreatic Cancer Foundation.
- Inspire.com Partner — Healthcare social networking platform hosting the Pancreatic Cancer Connections community, sponsored by Let’s Win and the Lustgarten Foundation.
- Lustgarten Foundation Partner — Co-sponsor of the Pancreatic Cancer Connections online support community.
- Lustgarten Foundation Partner — Kerri Kaplan, President of the Lustgarten Foundation, was part of the founding team of Let’s Win.
- NewYork-Presbyterian Hospital/Weill Cornell Medical Center Partner — Collaborates with Anne Glauber's oncologist, Dr. Allyson Ocean, who practices at this institution.
- Pancreatic Cancer Action Network Partner — Collaborates with PanCAN to produce the PancChat Podcast.
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Early Detection Through Education and Awarenessmethodology: early_detection_educationBy educating individuals about symptoms and risk factors, the organization promotes earlier diagnosis through screening, because awareness leads to timely medical consultation and intervention, which improves survival outcomes in a disease where early detection is rare and critical.
- Peer-to-Peer Knowledge and Support Modelmethodology: peer_to_peer_supportBy facilitating peer-to-peer sharing of treatment experiences and emotional support in online communities, patients gain practical insights and reduced isolation, because lived-experience exchange increases engagement, trust, and treatment adherence beyond what clinical advice alone can achieve.
- Personalized Clinical Access Systemmethodology: personalized_clinical_trial_matchingBy matching patients to clinical trials and specialized care based on individual disease profiles and geographic proximity, access to cutting-edge treatments improves, because personalized navigation reduces systemic barriers and aligns patient needs with appropriate expertise.
- Science-Driven Patient Empowermentmethodology: science-driven_patient_empowermentBy providing science-based, accessible information through digital platforms and peer-led formats, patients are empowered to actively participate in treatment decisions and engage with innovative options, because informed patients are more likely to pursue timely, evidence-based care and clinical trials.