irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $180KResearch-Grants made to doctors and scientists for research in leukemia treatment and non designated patient services.Grant allocation is determined by Board of Trustees and members of the medical advisory committee.
- #2 $178KOTHER DIRECT AND INDIRECT EXPENSES ALLOCATED TO PROGRAM SERVICE TO AID IN LEUKEMIA TREATMENT AND CARE
named programs · 2 · from sources
What they call their work
CLRA Patient Aid Program
Co-pay assistance program providing reimbursements for leukemia and blood cancer-related medical expenses including prescriptions, chemotherapy, IVIG therapy, and diagnostic tests. Does not cover insurance premiums, living expenses, or travel.
Research Grant Program
Provides grants to doctors and scientists at over 55 institutions for promising leukemia and blood cancer research, including projects in tumor biology and human genome sequencing.
activities · 4 groups
What they do
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Medical Research & Education Dissemination 1 activity
- Authoring and publishing medical research and educational resourcesProduces authoritative publications on hematologic neoplasms, including the sixth edition of "Neoplastic Diseases of the Blood," and publishes educational overviews and reports on acute and chronic leukemias, new treatment technologies, and emerging chemotherapy approaches for adult AML.
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Cancer Research Funding 1 activity
- Funding blood cancer research through grants to scientists and institutionsAwards research grants to doctors and scientists working on leukemia and blood cancers, funding innovative studies on treatment, relapse, and molecular mechanisms. Has awarded over $5,000,000 in grants to more than 55 institutions, including specific support for researchers at Dana-Farber, Hackensack University Medical Center, and Rutgers Cancer Institute.
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Cancer Patient Financial and Practical Support 1 activity
- Providing co-pay and medical expense reimbursement to blood cancer patientsOffers direct financial assistance through a Patient Aid Program that reimburses leukemia and blood cancer patients for medical expenses, including co-pays, with payments issued directly to patients or guardians. Supported 140 patients across 28 states in 2023 with over $250,000 in reimbursements, and has disbursed more than $1.8 million since inception.
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Disease-Specific Clinical & Patient Education 1 activity
- Providing patient education and resource informationOffers up-to-date clinical and practical information on blood cancers, including guides to patient resources and educational materials, to support informed decision-making for patients and families.
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financials · form 990 · fy2024
revenue
Total revenue$129K
Contributions & grants$155K120%
Program service revenue$00%
Investment income$-26K-20%
Other revenue$0
expenses
Total expenses$664K
Program expenses90%
Admin / overhead6%
Fundraising4%
Salaries & benefits$118K
Grants paid out$180K
Largest expense lineCompensation
balance sheet
Total assets$516K
Cash$125K
Investments$341K
Liabilities$8K
Net assets$508K
Liquid reserves8.4 mo
5 years on record · 2020–2024 · YoY revenue -45.9%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| TARA COLEMAN | Executive Dir. | 35 | $56K |
board members · 5
- Anthony R Pasqua — Pres EMERITUS
- CAROL A HASSETT PHD — Vice President
- JOHN DIGILIO JR — Treasurer
- PASQUALE ALESIA — President
- TAMMY LEGRYS — Secretary
relationships · 45
Who they work with
- Angel Foundation Partner — Provides emergency financial assistance for non-medical needs to adults in active cancer treatment in the Twin Cities metro area of Minnesota
- Atrium Health/Wake Forest Baptist Medical Center – Cancer Center Partner — Collaborates through the Patient and Family Advocate Council where Tammy LeGrys serves.
- Beth Israel Medical Center Partner — Engages medical professionals from Beth Israel Medical Center in its Medical Advisory Committee.
- Blood Cancer Discovery Partner — Provides a platform for high-impact research on leukemia, lymphoma, myeloma, and related blood diseases
- Board of Trustees Partner — Provides governance and expertise in support of patients and researchers.
- Broken NOT BROKE Partner — Referenced as a searchable portal for financial support for families impacted by childhood cancer.
- Cancer Care Partner — Provides financial assistance for cancer-related costs and co-pays, and connects patients with oncology social workers for additional resources
- Cancer Care News (CCN) Partner — Provides free resources and support to individuals diagnosed with cancer and their families
- Cancer Financial Assistance Coalition Coalition — Coalition of organizations helping cancer patients manage financial challenges
- Cleveland Clinic Partner — Provides educational overview on leukemia, including causes, cell mutations, and treatment factors
- Combined Federal Campaign Network — Participates in the Combined Federal Campaign as a registered charity (CFC #11572).
- Combined Federal Campaign (CFC) Government — Participates in the Combined Federal Campaign (CFC) under code CFC-11572 to receive federal employee donations.
- Continuum Cancer Centers of New York Partner — Collaborates with medical experts affiliated with Continuum Cancer Centers of New York on leukemia research and clinical guidance.
- Cost Plus Drug Company Partner — Offers common and life-saving drugs at lower prices by cutting out middlemen
- Dana Farber Cancer Institute Partner — Recipient of CLRA research grant funding for leukemia research led by Dr. Kimberly Stegmaier.
- Dollar For Partner — Advocates for patients to eliminate hospital medical debt
- Dollar For Partner — Referenced as a helpful organization for patients with outstanding hospital debt.
- Expect Miracles Foundation Partner — Provides financial and family-building grants to young adult cancer survivors through its SAMFund program
- Family Reach Partner — National nonprofit providing financial education, coaching, resource navigation, and emergency relief funds to cancer patients and caregivers
- Hackensack University Medical Center Partner — Hosts Dr. Zakrzewski, a pediatric stem cell transplant attending physician and recipient of CLRA research funding.
- Hackensack University Medical Center Partner — Recipient of CLRA research grant funding for pediatric stem cell transplant and leukemia research led by Dr. Zakrzewski.
- HealthWell Foundation Partner — Provides financial assistance to cover prescription drug costs, insurance premiums, and other out-of-pocket healthcare expenses for adults and children
- Hofstra University Partner — Education institution where a CLRA staff member is pursuing doctoral studies relevant to patient care.
- Jasper Health Partner — Virtual supportive care platform connecting caregivers, providers, and health plan care teams for individuals affected by cancer
- Kroger Partner — Rewards program partner that generates donations to CLRA when enrolled shoppers make purchases.
- Leukemia Research Foundation Partner — Offers a one-time financial grant to eligible leukemia patients in Illinois or within 100 miles of Chicago to ease financial burden during treatment
- Lymphoma Research Foundation Partner — Offers financial support to individuals undergoing treatment for lymphoma and chronic lymphocytic leukemia for treatment-related expenses
- Mark Cuban Cost Plus Drug Company Partner — Recommended for patients with high prescription co-pays to reduce medication costs.
- Medical Advisory Committee Partner — Provides medical expertise to guide organizational efforts in patient support and research.
- Molloy University Partner — Education institution attended by staff member in a role supporting CLRA's mission.
+ 15 more
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Funding Non-Duplicative, High-Impact Researchmethodology: non-duplicative_research_fundingBy prioritizing funding for innovative and non-duplicative leukemia research, the organization accelerates progress toward causes, treatments, and cures, because avoiding redundant efforts maximizes the impact of limited research dollars.
- Integrated Patient Support and Research Fundingmethodology: integrated_support_and_researchBy providing direct financial assistance to patients and funding innovative leukemia research, the organization reduces immediate treatment burdens and advances long-term medical breakthroughs, because addressing both care delivery and scientific discovery creates a dual pathway to impact.
- Targeted Financial Gap-Filling for Middle-Income Familiesmethodology: gap-filling_financial_assistanceBy focusing financial aid on middle-income families who are excluded from poverty-based programs but still face high treatment costs, the organization increases equitable access to support, because these families often experience disproportionate financial strain due to lack of eligibility for traditional assistance.