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SHARE SELF-HELP FOR WOMEN WITH BREAST OR OVARIAN CANCER INC

NEW YORK, NY · EIN 133131914 · Form 990 · FY2024 · NTEE F600 · Mental Health & Crisis Intervention · Medium ($1M-$10M) · sharecancersupport.org
revenue
$4.0M
expenses
$4.7M
net assets
$1.1M
employees
66
volunteers
85
program ratio
73%
mission · from form 990

PROVIDE SUPPORT, EDUCATION, AND INFORMATION TO ANYONE WITH BREAST OR GYNECOLOGIC CANCER.

profile · synthesized from sources

SHARE Self-Help for Women with Breast or Ovarian Cancer provides free support, education, and information to individuals facing breast and gynecologic cancers. Based in New York, the organization focuses on underserved communities through outreach programs, peer support, and national helplines. It also hosts conferences and virtual programs to advance health equity and patient navigation.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $1.11M
    OUTREACH PROGRAM - A TEAM OF 20 AMBASSADORS WHO ARE BLACK, LATINA, OR CHINESE-SPEAKING BRING LIFE-SAVING INFORMATION ABOUT SIGNS AND SYMPTOMS AND SCREENING OPTIONS FOR BREAST AND GYNECOLOGIC CANCERS TO UNDER-RESOURCED COMMUNITIES THROUGHOUT THE NEW YORK METRO AREA AT HEALTH FAIRS, CONSULATES, FOOD BANKS, PLACES OF WORSHIP AND COMMUNITY HEALTH CENTERS. THE AMBASSADORS INTERACT WITH THOUSANDS OF PEOPLE EACH YEAR AND DISTRIBUTE OVER 50,000 EDUCATIONAL BROCHURES EACH YEAR. "PINK AND TEAL" EDUCATIONAL PROGRAMS ARE ALSO PROVIDED BOTH IN-PERSON AND VIRTUALLY TO CORPORATE AUDIENCES AND CIVIC GROUPS.
  2. #2 $304K
    EVENTS - GETTING OUR FAIR SHARE: CONFERENCE TO END HEALTH DISPARITIES IS A PROGRAM EVENT THAT BRINGS TOGETHER 1,000+ HEALTHCARE PROVIDERS, PATIENTS, PATIENT ADVOCATES AND CORPORATE REPRESENTATIVES TO TURN INSIGHTS ABOUT SYSTEMIC DISPARITIES INTO MEANINGFUL ACTION.
named programs · 8 · from sources

What they call their work

AfroSHARE Summit
National summit focused on Black women’s experiences with breast and gynecologic cancers, offering education, support, and advocacy.
Getting Our Fair SHARE Conference
Annual conference convening over 1,000 healthcare providers, patients, and advocates to address health disparities in cancer care, focusing on access, financial toxicity, health literacy, and psychosocial impact.
LatinASHARE Conference
Spanish-language conference with English translation designed to improve Latina women's experiences in the healthcare system.
Our MBC Life Podcast
Podcast platform sharing stories and information from individuals living with metastatic breast cancer to foster connection and education.
Outreach Program
Team of 20 ambassadors from Black, Latina, and Chinese-speaking communities providing education about breast and gynecologic cancer signs, symptoms, and screening at health fairs, food banks, and community centers in the New York metro area.
Patient Navigation Program
Support service helping patients navigate complex healthcare systems, including access to care, financial resources, and treatment coordination.
SHARE Support Line
National helpline staffed by trained volunteers providing information and emotional support to individuals diagnosed with breast or gynecologic cancers.
Sister-2-Sister Mentorship Program
Peer mentorship program pairing Black breast cancer survivors for culturally responsive support throughout treatment and survivorship.
activities · 6 groups

What they do

  • Cancer Peer Support & Wellness Programs 2 activities
    • Operating a national helpline for women with breast, ovarian, and gynecologic cancers
      Provides telephone support and education through a no-cost helpline staffed by trained volunteers and peer supporters with lived experience, offering emotional support, care coordination, and connections to resources for individuals diagnosed with breast, ovarian, uterine, cervical, or metastatic breast cancer. The helpline operates in English and Spanish and enables patients to become active participants in their care.
    • Providing culturally responsive peer support and mentorship programs
      Offers peer-led support initiatives such as the Sister-2-Sister mentorship program for Black breast cancer survivors and an LGBTQIA+ Initiative that delivers tailored education and resources. These programs aim to reduce isolation, strengthen coping mechanisms, and provide safe spaces for emotional expression across diverse communities affected by breast and gynecologic cancers.
  • Cancer Awareness and Education Initiatives 1 activity
    • Conducting public and professional education on cancer signs, symptoms, and disparities
      Distributes over 50,000 educational brochures annually and conducts outreach through multilingual ambassadors in under-resourced New York communities. Offers free educational seminars to businesses and organizations, hosts "Pink and Teal" programs in-person and virtually, and disseminates accessible health information via social media, digital advertising, media partnerships, PSAs, videos, animations, and printed/digital materials in English and Spanish.
  • Cancer Patient Financial and Practical Support 1 activity
    • Delivering patient navigation and financial toxicity support services
      Operates a patient navigation program that connects trained professionals with cancer patients to provide personalized care coordination, advocacy, and access to treatment. Includes financial navigation support to help patients manage the cost burden of cancer care, including transportation, meals, and other non-medical expenses. Served over 1,000 individuals in the past year.
  • Patient and Researcher Conferences 1 activity
    • Hosting conferences and summits to address cancer care disparities
      Hosts an annual conference—"Getting Our Fair Share"—and other solution-driven events such as the AfroSHARE Summit and educational conferences on healthcare disparities and survivorship. These convenings bring together over 1,000 patients, advocates, providers, and corporate representatives to drive systemic change in cancer care equity.
  • Comprehensive Cancer Care and Survivorship 1 activity
    • Offering comprehensive support across the cancer care continuum
      Provides ongoing support throughout all stages of the cancer experience—including early screening, diagnosis, treatment, survivorship, and life after cancer—for patients, survivors, and caregivers affected by breast, ovarian, uterine, cervical, and metastatic breast cancers. Reaches over 350,000 individuals annually through integrated programs and online resources.
  • Disease-Specific Clinical & Patient Education 1 activity
    • Producing multimedia content to amplify patient voices and experiences
      Produces the "Our MBC Life" podcast and creates educational videos, animations, and printed/animated novelas to share lived experiences of people with metastatic breast cancer and improve health literacy. Content is distributed in English and Spanish to broaden reach and engagement.
financials · form 990 · fy2024
revenue
Total revenue$4.02M
Contributions & grants$3.28M82%
Program service revenue$578K14%
Investment income$44K1%
Other revenue$121K
expenses
Total expenses$4.68M
Program expenses73%
Admin / overhead20%
Fundraising7%
Salaries & benefits$3.19M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$1.36M
Cash$195K
Investments$551K
Liabilities$279K
Net assets$1.08M
Liquid reserves1.9 mo
6 years on record · 2019–2024 · YoY revenue -10.1%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 5
NameTitleHours/wkCompensation
CAROL EVANS ED & CEO (THRU JULY) 35 $172K
BANGHEE CHI VP OF DEVELOPMENT 35 $128K
JILL GOLDEN VP OF COMMUNICATIONS 35 $100K
ALISON DAVIS INTERIM ED (JULY THRU NOV) 35 $61K
HEIDI HENDERSON ED & CEO (FROM DEC) 35 $4K
board members · 20
  • AMY ARONOFF BLUMKIN — SECRETARY
  • ANGELICA CANTLON — PRESIDENT
  • ANNAMARIE PRIOLO — DIRECTOR
  • APARNA MURALIDHARAN — TREASURER
  • ART THOMSON — DIRECTOR
  • CLAUDIA LAMAZARES — DIRECTOR
  • DEBORAH AXELROD MD — DIRECTOR
  • DIDI LACHER — VICE PRESIDENT
  • HEIDI GARWOOD ESQ — VICE PRESIDENT
  • ILENE COHEN — VICE PRESIDENT
  • JAMES L SPEYER MD — DIRECTOR
  • JO HOLZ PHD — DIRECTOR
  • LISA A NEWMAN MD — DIRECTOR
  • LORI TAUBER MARCUS — DIRECTOR
  • LUCY CHAN — DIRECTOR
  • MARCIA BURCH — VICE PRESIDENT
  • MARJORIE SCHWARTZ — VICE PRESIDENT
  • MARSHA PIERSON — DIRECTOR
  • STEPHANIE V BLANK MD — DIRECTOR
  • VELVET PIERRE — DIRECTOR
relationships · 16

Who they work with

  • Al Asante-Facey Partner — Featured leader in the LGBTQIA+ healthcare community whose work intersects with gynecologic cancers and cancer survivorship, highlighted in SHARE's 50th anniversary series.
  • Baruch College Partner — Hosts SHARE’s annual conference at its Vertical Campus Conference Center in New York, NY.
  • Cancer Today Partner — Media partner for dissemination of cancer education materials and awareness campaigns.
  • City Winery NYC Partner — Venue host for the 50th Anniversary Gala event.
  • Damaris Partner — Client of SHARE’s Patient Navigation Impact program; example of individual supported through diagnosis, treatment, and survivorship.
  • Dr. Eugene Thiessen Government — Founding physician who initiated the first meeting and supported the creation of SHARE; his clinical role and advocacy were instrumental in the organization's founding.
  • Eden C. Ezell, Esq. Partner — Member of the Board of Directors bringing executive leadership in healthcare law, compliance, and risk management.
  • El Diario Partner — Media partner for dissemination of cancer education materials and awareness campaigns.
  • Eli Lilly and Company Partner — Provides financial support as a conference sponsor for SHARE’s Getting Our Fair SHARE Conference.
  • Genentech Partner — Provides financial support as a conference sponsor for SHARE’s Getting Our Fair SHARE Conference.
  • Icahn School of Medicine at Mount Sinai Partner — Engages with SHARE through participation of faculty and clinicians in SHARE’s educational and support initiatives.
  • Judy Strauss-Mast Partner — Member of the Board of Directors contributing healthcare executive experience in market access, patient services, and women’s leadership development.
  • Memorial Sloan Kettering Partner — Collaborates with SHARE through joint educational efforts and program development, including the LGBTQIA+ Initiative.
  • Memorial Sloan Kettering Cancer Center Partner — Collaborates with SHARE through shared speakers and expertise, including clinical and psychosocial professionals contributing to SHARE’s programs and conferences.
  • SHARE Cancer Support Network — SHARE SELF-HELP FOR WOMEN WITH BREAST OR OVARIAN CANCER INC operates as SHARE Cancer Support, indicating a unified organizational identity.
  • Sougata Dasgupta Partner — Member of the Board of Directors contributing expertise in operations, transformation, and organizational scalability.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Community-Based Education for Early Detection
    methodology: workplace-community-education
    By delivering actionable cancer education directly in workplaces and community settings, the organization increases early detection, because accessible, context-specific information empowers individuals to act on health risks before they become critical.
  • Culturally Congruent Outreach and Programming
    methodology: culturally_congruent_care
    By delivering culturally and linguistically concordant services through trusted community settings and tailored summits, the organization improves engagement among Black, Latina, Chinese-speaking, and LGBTQIA+ communities, because culturally specific approaches reduce barriers and increase relevance in marginalized populations.
  • Integrated Support Model to Address Systemic Barriers
    methodology: integrated-support-model
    By combining navigation, financial, educational, and peer support services into a unified model, the organization addresses interconnected barriers to cancer care, because systemic disparities are best mitigated through coordinated, multi-pronged interventions that reflect patients’ holistic needs.
  • Peer-Led Support Model
    methodology: peer_support_model
    By leveraging shared lived experience through peer-led support, the organization builds trust and enhances engagement, leading to improved emotional and educational outcomes for individuals affected by breast or gynecologic cancers, because experiential similarity increases relatability and reduces isolation.