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62 ORGS · 73 ACTIVITIES · 1 STATES ← back to explorer ·
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Patient and Researcher Conferences

Organizes conferences that bring together patients, families, researchers, and healthcare professionals to share medical knowledge, advance research, and foster community support.

what makes this distinct Focuses on structured gatherings—annual, biennial, or virtual—that integrate scientific exchange with patient engagement, distinguishing them from general awareness campaigns or standalone educational webinars.

62
organizations
73
activities
0
nested groups
0
strategies
coverage NY 62
NTEE codes
G20G80E99Z
organizations

Organizations in this activity group · 62

showing 20 of 50
#OrganizationStateRevenueActivities
1HEREDITARY NEUROPATHY FOUNDATION INC
The Hereditary Neuropathy Foundation (HNF) is a nonprofit advancing research and support for Charcot-Marie-Tooth disease (CMT). It operates the TRIAD Research …
NY$545K3
2CHILDREN'S TUMOR FOUNDATION
Children's Tumor Foundation is a medical research nonprofit dedicated to ending neurofibromatosis (NF). The organization funds research, supports patients and …
NY$19.7M2
3EHLERS-DANLOS SOCIETY
The Ehlers-Danlos Society is a global nonprofit focused on advancing research and education for Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disord…
NY$5.0M2
4HUNTINGTON'S DISEASE FOUNDATION
The Huntington's Disease Foundation funds transformative research to find treatments and a cure for Huntington's disease, a fatal inherited brain disorder. The…
NY$4.1M2
5MPN EDUCATION FOUNDATION
MPN Education Foundation is a nonprofit organization focused on providing educational materials and programs for individuals affected by myeloproliferative neo…
NY$35K2
6NORTH AMERICAN NEUROENDOCRINE TUMOR SOCIETY
The North American Neuroendocrine Tumor Society (NANETS) is a medical research and education organization dedicated to improving the management of neuroendocri…
NY$1.2M2
7Neuroendocrine Cancer Awareness Network
Neuroendocrine Cancer Awareness Network (NCAN) raises awareness of neuroendocrine cancer, supports patients and caregivers, and funds research. The organizatio…
NY$405K2
8PEDIATRIC NEUROTRANSMITTER DISEASE ASSOCIATION INC
Pediatric Neurotransmitter Disease Association supports research into rare pediatric neurotransmitter diseases and provides support to affected families. The o…
NY$2K2
9WORLD PARKINSON COALITION INC
The World Parkinson Coalition advances understanding of Parkinson's disease by creating an inclusive international platform for knowledge sharing and research …
NY$14K2
10Wilson Disease Association
Nonprofit supporting individuals with Wilson disease through education, community building, and research facilitation. Provides resources including a patient r…
NY$785K2
11ACADEMY OF ONCOLOGY NURSE NAVIGATORSINC
Professional association advancing oncology patient navigation through collaboration, best practices, and professional development. Supports nurse and patient …
NY$3.7M1
12ADVANCIUM HEALTH NETWORK INC
Advancium Health Network is a nonprofit organization focused on advancing medical solutions for underserved communities, with a particular emphasis on pediatri…
NY$1.1M1
13ALS UNITED GREATER NEW YORK INC
ALS United Greater New York supports individuals and families affected by ALS through free care services, advocacy, and education while funding global research…
NY$4.5M1
14ALZHEIMER'S DRUG DISCOVERY FOUNDATION
Alzheimer's Drug Discovery Foundation (ADDF) accelerates the discovery of drugs to prevent and treat Alzheimer's disease and related dementias. Based in New Yo…
NY$47.3M1
15ANN STEFFENS SCLERODERMA RESEARCH FOUNDATION INC
Medical research foundation dedicated to advancing the understanding and treatment of scleroderma through scientific publication and collaboration. The organiz…
NY$53K1
16APS TYPE 1 FOUNDATION
The APS Type 1 Foundation supports individuals affected by Autoimmune Polyglandular Syndrome Type 1 (APS Type 1), a rare autoimmune disorder. The organization …
NY$126K1
17BINA STROKE AND BRAIN INJURY ASSISTANCE INC
BINA STROKE AND BRAIN INJURY ASSISTANCE INC supports brain injury, stroke, and spinal injury survivors and their families by providing patient advocacy, care n…
NY$1.2M1
18CCHS Network Inc
CCHS Network Inc is a voluntary health association dedicated to supporting patients and families affected by Congenital Central Hypoventilation Syndrome (CCHS)…
NY$349K1
19CHILDREN'S HEALTH & RESEARCH FDTN INC
Children's Health & Research Foundation, Inc. (CHRF) advances maternal, child, and family health in New York’s Hudson Valley, with a focus on reducing health d…
NY$1.7M1
20COLON CANCER CHALLENGE FOUNDATION
The Colon Cancer Challenge Foundation was a nonprofit organization dedicated to fighting colorectal cancer through advocacy, education, and awareness initiativ…
NY$422K1