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WORLD PARKINSON COALITION INC
NEW YORK, NY · EIN 571206493 · Form 990 · FY2024 · NTEE G20 · Voluntary Health Associations · Micro (<$100K) · worldpdcoalition.org
revenue
$14K
expenses
$0
net assets
$-69K
employees
0
volunteers
10
program ratio
94%
mission · from form 990

THE WORLD PARKINSON COALITION HELPS ADVANCE UNDERSTANDING OF PARKINSONS DISEASE BY CREATING THE ONLY TOTALLY INCLUSIVE INTERNATIONAL PLATFORM FOR THE COMMUNITY TO SHARE KNOWLEDGE AND SPARK NEW RESEARCH AGENDAS ACROSS THE PARKINSONS FIELD.

profile · synthesized from sources

The World Parkinson Coalition advances understanding of Parkinson's disease by creating an inclusive international platform for knowledge sharing and research collaboration. It serves the global Parkinson's community through triennial World Parkinson Congresses, creativity programs, and initiatives like Parkinson Ready. The organization supports researchers, clinicians, and individuals living with Parkinson's across multiple countries.

named programs · 4 · from sources

What they call their work

Creativity Programs
Initiatives including Dance and the Niska Puzzle for Creativity that engage the Parkinson's community through creative expression
Parkinson Ready
Program supporting communities in becoming more accessible and supportive for people living with Parkinson's, with initiatives in Phoenix, Vancouver, Philadelphia, and Barcelona
Travel Grant Fund
Supports attendance at World Parkinson Congresses for people living with Parkinson's, junior investigators, clinicians, and health professionals from underrepresented regions
World Parkinson Congress
Triennial international forum bringing together researchers, clinicians, and individuals living with Parkinson's to share knowledge and advance research agendas
activities · 2 groups

What they do

  • Patient and Researcher Conferences 2 activities
    • Hosts research spotlight events
      Convenes research spotlight sessions at the World Parkinson Congress featuring prominent Parkinson's researchers to highlight scientific advances and foster collaboration.
    • Organizes triennial World Parkinson Congress
      Plans and hosts the World Parkinson Congress every three years, including the 7th edition scheduled for May 24–27, 2026. The event includes media presence, research spotlights, and knowledge-sharing platforms for the global Parkinson’s community.
  • Parkinson's Disease Research and Support 2 activities
    • Provides travel grants for Congress attendance
      Offers financial support to enable attendance at the World Parkinson Congress for people living with Parkinson’s, junior investigators, clinicians, and health professionals from underrepresented regions.
    • Runs virtual support programs for care partners
      Organizes virtual support programs specifically designed for care partners of people with Parkinson’s, providing community and resources.
financials · form 990 · fy2024
revenue
Total revenue$14K
Contributions & grants$14K99%
Program service revenue$00%
Investment income$741%
Other revenue$0
expenses
Total expenses$0
Program expenses94%
Admin / overhead4%
Fundraising2%
Salaries & benefits$0
Grants paid out$0
Largest expense lineOther
balance sheet
Total assets$531K
Cash$126K
Investments$0
Liabilities$600K
Net assets$-69K
3 years on record · 2020–2024 · YoY revenue -99.6%
leadership · form 990 part vii · fy2024

Who runs it

board members · 10
  • ALICE NIEUWBOER PhD PT — DIRECTOR/SECRETARY
  • JEFFREY KORDOWER PhD — DIRECTOR
  • LINDA OLSON MD FACR — DIRECTOR
  • MALU GAMEZ TANSEY PhD — DIRECTOR/VICE PRESIDENT
  • MARIE-FRANCOISE CHESSELET MD PhD — DIRECTOR
  • MARINA ROMERO-RAMOS PhD — DIRECTOR
  • OMOTOLA THOMAS MS — DIRECTOR
  • RAJESH PAHWA MD — DIRECTOR/TREASURER
  • ROGER BARKER PHD MRCP — DIRECTOR/PRESIDENT
  • RYOSUKE TAKAHASHI MD PhD — DIRECTOR
relationships · 8

Who they work with

  • Caroline M. Tanner Partner — Featured researcher in WPC Research Spotlight series.
  • Community Alliances Partner — Collaborative partners that work with the WPC to expand reach and support within the Parkinson’s community.
  • Jim Surmeier Partner — Featured researcher in WPC Research Spotlight series.
  • Leadership Forum 2021 Partner — Collaborates with Leadership Forum 2021 as part of organizational partnerships.
  • Leadership Forum 2023 Partner — Collaborates with Leadership Forum 2023 as part of organizational partnerships.
  • Leadership Forum 2026 Partner — Collaborates with Leadership Forum 2026 as part of organizational partnerships.
  • National Partners Partner — Corporate partners that support the WPC and are recognized for their commitment to fighting Parkinson disease.
  • Sarkis K. Mazmanian Partner — Featured researcher in WPC Research Spotlight series.
strategies · 2

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Inclusive Knowledge Co-Creation
    methodology: inclusive-knowledge-sharing-platform
    By creating an inclusive international platform for knowledge sharing, we catalyze new research directions and advance understanding of Parkinson's disease because diverse stakeholder input (including patients, researchers, and clinicians) generates richer insights and innovation.
  • Peer-Enabled Psychosocial Support
    methodology: virtual_support_groups
    By providing virtual support groups for care partners, we enhance emotional and psychosocial well-being because shared lived experiences in accessible online formats foster connection, reduce isolation, and improve coping capacity.