named programs · 6 · from sources
What they call their work
Big Hearts Walk
Annual walk-a-thon fundraiser supporting care for medically fragile children, featuring family activities and community participation
Home Care Program
Family-centered home care for children with high levels of medical complexity, established in 1983 as New York’s first long-term home care program for medically complex children
Locomotor Training Program
Rehabilitation program for children with spinal cord injuries, launched in 2017
Pediatric Feeding Disorder Center
Intensive day patient program specializing in evaluation and treatment of pediatric feeding and swallowing disorders, launched in 2001
Pediatric Palliative Care Program
Nation’s first pediatric palliative care program, initiated in 1984 to support children with serious illnesses and their families
Special Needs Preschool
On-site educational program for inpatients and community children with medical complexities, part of the Education and Family Pavilion
activities · 10 groups
What they do
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Recreational and Emotional Support Programs for Children with Serious Illnesses 2 activities
- Delivers palliative and compassionate care for children and familiesProvides palliative care services, reimagined as Compassionate Care, supporting children and families throughout all stages of the care journey; pioneered the nation's first pediatric palliative care program in 1984.
- Provides therapeutic play and child life programsOffers therapeutic play and child life programs supported by grants, including a $2,500 award from The Toy Foundation to enhance emotional and developmental support for pediatric patients.
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Specialized Therapy for Children with Disabilities 2 activities
- Operates a comprehensive rehabilitation program for pediatric spinal cord injuriesRuns a Spinal Cord Injury Rehabilitation Program and the Locomotor Training Program to support pediatric patients with spinal cord injuries in achieving greater independence and improved functional outcomes.
- Provides specialized day and home healthcare services for children with medical complexityOffers day healthcare, home care, and community-based programs including an intensive day patient program specializing in pediatric feeding and swallowing disorders, launched in 2001 as the first of its kind in New York.
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Volunteer-Driven Residential Care Support 1 activity
- Engages volunteers in therapeutic and administrative support rolesOffers volunteer opportunities seven days a week, including therapeutic recreation support, pet therapy with certified therapy animals, and clerical assistance in home care and business offices.
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Youth Leadership Development Programs 1 activity
- Engages youth through a High School Student Volunteer ProgramOperates a High School Student Volunteer Program to involve youth in service activities supporting children with special healthcare needs.
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Charity Event Organization 1 activity
- Hosts annual Big Hearts Walk fundraiser for medically fragile childrenOrganizes the 20th annual Big Hearts Walk, a walk-a-thon fundraiser that raised over $175,000 to support medically fragile children, with multiple website sources confirming the event and its impact.
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Patient and Researcher Conferences 1 activity
- Hosts educational and support programs for families and professionalsOrganizes the Medically Complex Pediatric & Young Adult Conference and hosts a resource fair to connect parents, caregivers, and professionals with support services and information sharing.
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Special Education Support Services 1 activity
- Operates on-site educational facilities for medically complex childrenHouses PS23Q, an on-site public school for inpatients, and the Queens Borough President Helen Marshall Early Education Center for community children with medical complexities, located in the education and family pavilion opened in 2013.
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Pediatric Primary and Specialty Care 1 activity
- Provides 24/7 pediatric medical coverage and specialized inpatient careOffers year-round 24/7 medical coverage through Board Certified pediatricians, nurse practitioners, and physician assistants, and operates a 127-bed facility on a nine-acre campus in Queens, including recent expansions for ventilator-equipped beds.
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Skilled Nursing and Rehabilitation Facilities 1 activity
- Provides pediatric post-acute and long-term care for medically complex childrenDelivers family-centered pediatric post-acute and long-term care through an inpatient hospital facility, home care services, and community programs in Bayside, Queens, serving children and young adults recovering from critical health conditions. Operates as the largest provider of long-term care for children with complex medical conditions in New York State.
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Uncategorized 1 activity
- Manages capital development and expansion projects for pediatric care facilitiesSecured $600,000 in grant funding for the development of an 18-bed inpatient expansion and completed a 10,000 square-foot expansion in 2019 adding 27 ventilator-equipped beds to address critical shortages.
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financials · form 990 · fy2024
revenue
Total revenue$88K
Contributions & grants$00%
Program service revenue$88K100%
Investment income$00%
Other revenue$0
expenses
Total expenses$3K
Program expenses100%
Admin / overhead0%
Fundraising0%
Salaries & benefits$3K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$34K
Cash$34K
Investments$0
Liabilities$13.97M
Net assets$-13.93M
Liquid reserves155.5 mo
5 years on record · 2020–2024 · YoY revenue -83.1%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 7
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| EDWIN F SIMPSER MD | President & CEO | 1 | $1.02M |
| WILLIAM L MEAD | COO/CFO | 1 | $682K |
| CARLA CANGEMI | VP/CMO | 1 | $556K |
| SEAN LALLY | VP FOUNDATION | 1 | $528K |
| ADAM WAXER | GENERAL COUNSEL | 1 | $428K |
| PATRICIA HACKENJOS | VP OF HR | 1 | $400K |
| STEVEN POLINSKY | CIO | 1 | $373K |
board members · 4
- HENRY T LIEVRE — BOARD MEMBER
- NANCY KARCH — BOARD MEMBER
- SAMUEL R KARETSKY — SECRETARY/TREAS
- STEPHEN BRENT WELLS — CHAIRMAN
relationships · 29
Who they work with
- American Hospital Association Network — Member organization
- American Public Health Association Network — Member organization
- Association for the Care of Children’s Health Network — Member organization
- Children’s Hospice International Network — Member organization
- Children’s Hospital Association Network — Member organization
- Continuing Care Leadership Coalition Network — Member organization
- Council Member Vickie Paladino Government — Awarded a $600,000 grant to support the development of an 18-bed inpatient expansion at St. Mary’s Healthcare System for Children.
- Extraordinary Pediatrics, PC Partner — Collaborates on ABA services at St. Mary's Kids in Uniondale, NY.
- Greater New York Hospital Association Network — Member organization
- Healthcare Association of New York State Network — Member organization
- Healthcare Providers Partner — Collaborates with healthcare providers to deliver individualized treatment plans.
- Home Care Association of New York State Network — Member organization
- National Association for Home Care Network — Member organization
- National Subacute Care Association Network — Member organization
- New York DeafBlind Collaborative Partner — Co-hosted the Medically Complex Pediatric & Young Adult Conference with St. Mary’s Hospital for Children.
- New York State Department of Education Government — Licensure holder
- New York State Department of Health Government — Licensure holder
- New York State Developmental Disabilities Advisory Council Partner — Collaborates with council members, as evidenced by honoring Lyne Koufakis of the council at the Big Hearts Walk.
- St. Mary's Healthcare System for Children Network — St. Mary's Community Care Professionals Corp is part of the St. Mary's Healthcare System for Children network.
- St. Mary's Healthcare System for Children Network — St. Mary's Community Care Professionals Corp operates as part of St. Mary's Healthcare System for Children.
- St. Mary's Healthcare System for Children Partner — Collaborates with St. Mary's Healthcare System for Children in organizing the Big Hearts Walk for St. Mary's Kids.
- St. Mary's Healthcare System for Children's Network — St. Mary's Community Care Professionals Corp is affiliated with St. Mary's Healthcare System for Children's as part of a broader network.
- St. Mary’s Healthcare System for Children Partner — Collaborates with St. Mary’s Healthcare System for Children in delivering volunteer-supported services for children with special healthcare needs.
- St. Mary’s Healthcare System for Children Partner — Recipient of a $600,000 grant from Council Member Vickie Paladino to support the development of a new 18-bed inpatient unit.
- St. Mary’s Hospital for Children Network — Part of the St. Mary’s Healthcare System for Children network providing pediatric post-acute care.
- The Sisters of the Community of St. Mary Partner — Founded St. Mary's in 1870 and established its mission to provide free care for sick and needy children.
- The Toy Foundation Funder — Provided a $2,500 grant to support therapeutic play and child life programs at St. Mary’s Hospital for Children.
- The Toy Foundation Partner — Provided a $2,500 Children’s Hospital Play Grant to support therapeutic play and child life programs at St. Mary’s Hospital for Children.
- Vickie Paladino Government — Council Member who provided a $600,000 grant for inpatient expansion.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Continuum of Integrated Caremethodology: continuum_of_careBy delivering coordinated, long-term care across inpatient, home, and community settings, we improve outcomes for medically complex children because seamless transitions and integrated services reduce fragmentation and support sustained recovery.
- Family-Centered Care Modelmethodology: family-centered_careBy integrating families as core partners in treatment planning and care delivery, we improve pediatric health outcomes and quality of life because family involvement enhances emotional support, trust, and continuity of care.
- Integrated Care and Educationmethodology: integrated-care-and-educationBy combining clinical care with educational support, we improve health and well-being outcomes for children with complex medical conditions because coordinated care addresses both developmental and medical needs simultaneously.