irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $15.89MTHE STEVEN AND ALEXANDRA COHEN PEDIATRIC LONG TERM CARE PAVILION, WHICH OPENED IN FALL 2016, IS A UNIQUE 24-BED FACILITY DEDICATED TO THE HIGHLY SPECIALIZED NEEDS OF INFANTS AND CHILDREN WHO REQUIRE EXTENDED MEDICAL CARE AND REHABILITATION. IN 2024, THE HOSPITAL CARED FOR 26 CHILDREN AND RAN AN AVERAGE OCCUPANCY OF 99.5%. 75% OF THE CHILDREN WERE UNDER THE AGE OF 6, 95.8% WERE REIMBURSED THROUGH THE MEDICAID PROGRAM AND 96% REQUIRED VENTILATOR-RESPIRATORY SUPPORT. THE PAVILION SERVES CHILDREN WITH COMPLEX MEDICAL NEEDS, INCLUDING THOSE WHO REQUIRE A LONGER PERIOD OF TIME TO BE WEANED FROM THE VENTILATOR, AND PREMATURE INFANTS WITH FEEDING DIFFICULTIES, CONGENITAL CONDITIONS OR NEUROLOGICAL DISORDERS. THE PAVILION IS STAFFED BY A FULL-TIME PEDIATRICIAN WHO WORKS IN CONSULTATION WITH A VARIETY OF PEDIATRIC SUBSPECIALISTS INCLUDING PEDIATRIC PULMONOLOGY, PEDIATRIC PHYSICAL MEDICINE AND REHABILITATION, AND PEDIATRIC NEUROLOGY. THE COMPREHENSIVE TEAM ALSO INCLUDE REGISTERED NURSES, CERTIFIED RESPIRATORY THERAPISTS, PHYSICAL/OCCUPATIONAL/SPEECH THERAPISTS, RECREATIONAL THERAPISTS, CHILD PSYCHOLOGISTS, CHILD LIFE SPECIALISTS AND A DEDICATED SOCIAL WORKER. FEATURES OF THE PAVILION INCLUDE 11 DOUBLE-BEDDED ROOMS AND TWO PRIVATE ROOMS, ALL WITH PIPED-IN OXYGEN, A SPACIOUS DINING AND RECREATION AREA, DEDICATED THERAPY SPACE, AN INFANT PLAYROOM AND TEEN LOUNGE. AN ATTRACTIVE COURTYARD INCLUDES PLAY AREAS, WALKING PATHS AND SITTING AREAS FOR RESIDENTS AND THEIR FAMILIES. CHILDREN IN THE PEDIATRIC LONG TERM CARE UNIT HAVE ACCESS TO EDUCATION THROUGH THE ON-SITE MT. PLEASANT-BLYTHEDALE SCHOOL AND EARLY CHILDHOOD CENTER, AND RECREATIONAL PROGRAMMING ON EVENINGS, WEEKENDS AND HOLIDAYS. FAMILY INVOLVEMENT IS A KEY COMPONENT OF CARE AT BLYTHEDALE, AND PROGRESS TOWARD GOALS (ESTABLISHED UPON ADMISSION) WILL BE REVIEWED DURING PERIODIC FAMILY CONFERENCES. AN INTERDISCIPLINARY APPROACH TO TREATMENT IS A HALLMARK OF BLYTHEDALE, AND EACH PATIENT'S CLINICAL CARE TEAM WILL MEET EVERY TWO WEEKS TO DISCUSS THE INDIVIDUALIZED PLAN FROM EVERY PERSPECTIVE: MEDICAL, SOCIAL, PSYCHOLOGICAL, AND EDUCATIONAL.
- #2 $13.07MTHE DAY HOSPITAL PROGRAM - BLYTHEDALE OFFERS A DAY HOSPITAL PROGRAM FOR THOSE CHILDREN WHO ARE ABLE TO LIVE AT HOME, BUT STILL REQUIRE A LEVEL OF MEDICAL AND REHABILITATIVE CARE THAT CANNOT BE MET BY THEIR SCHOOL OR OUTPATIENT PROGRAM. IN 2024, BLYTHEDALE TREATED 243 CHILDREN IN THE PROGRAM. ROUGHLY 51+ % OF THE PROGRAM COMES DIRECTLY FROM BLYTHEDALE' S INPATIENT SETTING, WHILE THE BALANCE COME DIRECTLY FROM REFERRALS IN THE COMMUNITY AND THROUGH THE EARLY INTERVENTION/CPSE PROGRAMS THROUGHOUT THE REGION. IN 2024, THE DAY HOSPITAL SERVED ON AVERAGE OF 92 PATIENTS PER SCHOOL DAY FOR A TOTAL OF 21,436 VISITS. OVER 84+% OF THESE PATIENTS WERE REIMBURSED BY THE MEDICAID PROGRAM. THE DAY HOSPITAL PROGRAM PROVIDES A NURTURING ENVIRONMENT WHERE CHILDREN WITH VARIOUS SPECIAL MEDICAL NEEDS CAN RECEIVE DAILY MEDICAL SUPERVISION, NURSING CARE, AND HAVE THEIR NEEDS FOR PHYSICAL, OCCUPATIONAL AND SPEECH THERAPIES MET, ALL WHILE RETURNING HOME AT THE END OF THE DAY. EACH CHILD'S PROGRAM IS INDIVIDUALIZED TO ADDRESS THEIR UNIQUE MEDICAL, PSYCHOLOGICAL AND THERAPEUTIC NEEDS. IN ADDITION, EVERY CHILD IS ASSIGNED A SOCIAL WORKER TO PROVIDE FAMILY SUPPORT AND CASE MANAGEMENT. AS NECESSARY, ONGOING PSYCHOSOCIAL SUPPORT AND COUNSELING, AND CASE MANAGEMENT ARE PROVIDED. SERVICES FOR SCHOOL-AGE CHILDREN ARE PROVIDED IN CONJUNCTION WITH A FULL ACADEMIC PROGRAM UNDER THE AUSPICES OF THE MOUNT PLEASANT-BLYTHEDALE UNION FREE SCHOOL DISTRICT.THE CPSE PROGRAM - COMMITTEE ON PRESCHOOL SPECIAL EDUCATION (CPSE PROGRAM): BLYTHEDALE CHILDREN'S HOSPITAL PROVIDES EVALUATION AND TREATMENT SERVICES FOR YOUNG CHILDREN BETWEEN THE AGES OF 3 TO 5 YEARS WHO ARE REFERRED THROUGH THEIR LOCAL COMMITTEE ON PRESCHOOL SPECIAL EDUCATION (CPSE). THESE PATIENTS ARE ELIGIBLE FOR ASSESSMENT AT NO COST TO THEIR FAMILIES. THE NEW YORK STATE EDUCATION DEPARTMENT OVERSEES A STATEWIDE PRESCHOOL SPECIAL EDUCATION PROGRAM WITH SCHOOL DISTRICTS, MUNICIPALITIES, APPROVED PROVIDERS, AND PARENTS. EVALUATIONS AND SERVICES ARE PROVIDED TO ELIGIBLE CHILDREN WHO HAVE A DISABILITY THAT AFFECTS THEIR LEARNING. FUNDING FOR EVALUATIONS AND SERVICES IS PROVIDED BY MUNICIPALITIES AND THE STATE. IN 2024, THE PROGRAM SERVED 38 PATIENTS FOR A TOTAL OF 3,587 VISITS. EVALUATION AND TREATMENT PLANNING ARE PERFORMED BY A MULTIDISCIPLINARY TEAM THAT MAY CONSIST OF THERAPISTS, SPECIAL EDUCATION TEACHERS, AUDIOLOGISTS, PHYSIATRISTS (REHABILITATION DOCTORS), NEUROLOGISTS, PSYCHIATRISTS, PSYCHOLOGISTS, SOCIAL WORKERS, NURSES, NUTRITIONISTS, AND OTHER SPECIALTY CONSULTANTS.
named programs · 5 · from sources
What they call their work
Committee on Preschool Special Education (CPSE) Program
Offers evaluation and treatment services at no cost for children ages 3 to 5 referred through local CPSE, under the oversight of the New York State Education Department.
Day Hospital Program
Provides daily medical supervision, nursing care, and physical, occupational, and speech therapies for children who live at home but need specialized care beyond outpatient or school-based services.
Journeys of Hope Podcast
Public education initiative featuring real stories from patients, families, and clinicians to raise awareness about complex pediatric care and promote empathy and hope.
Parent Family Education Program (PFE)
Equips families of medically fragile children with skills and knowledge for home care, using simulation labs and tailored training to support transition from hospital to home.
Steven and Alexandra Cohen Pediatric Long Term Care Pavilion
24-bed inpatient facility for infants and children requiring extended medical care and rehabilitation, including ventilator weaning, with interdisciplinary clinical teams and on-site education.
activities · 9 groups
What they do
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Skilled Nursing and Rehabilitation Facilities 1 activity
- Delivers pediatric long-term care through a specialized skilled nursing pavilionOperates the Steven and Alexandra Cohen Pediatric Long Term Care Pavilion, providing skilled nursing and long-term care for medically complex children, including those requiring ventilator-respiratory support.
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Admissions Outreach and Enrollment Support 1 activity
- Offers facility tours for prospective familiesProvides guided facility tours to help prospective families learn about available programs, services, and care options for medically complex children.
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Special Education Support Services 1 activity
- Operates a day hospital program for medically complex childrenRuns a day hospital program serving children ages 3 to 5 through referrals from local CPSE programs, providing evaluation and treatment services at no cost to families. In 2024, served 243 children with 21,436 total visits and an average of 92 patients per school day.
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Podcast and Radio Production 1 activity
- Produces educational podcast on pediatric complex careProduces and publishes the "Journeys of Hope" podcast featuring medical experts, patients, and families to share real-world experiences and insights in complex pediatric care.
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Pediatric Primary and Specialty Care 1 activity
- Provides 24/7 pediatric medical care with in-house physician coverageEnsures continuous, around-the-clock pediatric care with in-house physician coverage for all admitted patients, supporting the hospital’s mission to care for children with complex medical conditions regardless of financial ability.
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Brain Injury Support & Rehabilitation 1 activity
- Provides acute inpatient rehabilitation for children with complex medical needsOffers comprehensive inpatient rehabilitation services for infants, children, and adolescents, including specialized care for traumatic brain injury and neuro-rehabilitation, with multidisciplinary programs designed to support recovery and transition home. Operates New York's only dedicated post-acute pediatric brain injury unit.
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Patient Portal and Digital Health Access 1 activity
- Provides secure digital access to patient health informationOffers 24/7 secure online access to patient health records through a digital portal accessible on computers, smartphones, and tablets, supporting continuity of care and family engagement.
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Volunteer-Driven Residential Care Support 1 activity
- Supports hospital operations through volunteer engagementEngages over 100 volunteers across hospital departments to support daily operations and patient services.
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Parenting Education and Support Programs 1 activity
- Trains parents and caregivers to manage complex pediatric home careOperates the Parent and Family Education Program (PFE), offering structured training using simulation labs and high-tech mannequins to teach clinical skills such as tracheostomy care, ventilator management, suctioning, feeding tube care, and medication administration, enabling families to care for medically fragile children at home.
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financials · form 990 · fy2024
revenue
Total revenue$115.54M
Contributions & grants$4.37M4%
Program service revenue$98.11M85%
Investment income$8.42M7%
Other revenue$4.64M
expenses
Total expenses$109.10M
Program expenses84%
Admin / overhead15%
Fundraising1%
Salaries & benefits$70.18M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$280.15M
Cash$41.20M
Investments$140.26M
Liabilities$29.61M
Net assets$250.54M
Liquid reserves20.0 mo
4 years on record · 2020–2024 · YoY revenue +3.2%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 14
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| CANNING JOHN EDWARD | CHIEF FINANCIAL OFFICER | 40 | $1.77M |
| LEVINE LAWRENCE | PRESIDENT AND CEO | 40 | $1.15M |
| LEINENWEBER STEPHEN B | CHIEF MEDICAL OFFICER 8/1/23 | 40 | $581K |
| FLANAGAN JOHN J | CHIEF OPERATING OFFICER | 40 | $494K |
| FERNANDEZ BYRON | ATTENDING PEDIATRICIAN | 40 | $471K |
| WEGENER JILL MARIE | CHIEF NURSING OFFICER | 40 | $440K |
| KOCH CAPOBIANCO LISA | VICE PRESIDENT OF DEVELOPMENT | 40 | $369K |
| ALEJANDRO RUTH ESTHER | ATTENDING PHYSIATRIST | 40 | $344K |
| ASHE DAVID | ATTENDING PEDIATRICIAN | 40 | $319K |
| CORNELL CONSTANCE T | VICE PRESIDENT OF STRATEGIC CO | 40 | $298K |
| DE MURO CINDY L | DIRECTOR OF HUMAN RESOURCES | 40 | $290K |
| GOODBODY MURRAY SUSAN | CHIEF ENGAGEMENT & EXPERIENCE | 40 | $277K |
| SILVERMAN KATHY | ATTENDING PEDIATRICIAN | 40 | $265K |
| BERNER CHRISTOPHER D | VICE PRESIDENT OF HUMAN RESOURCES | 40 | $234K |
board members · 11
- ABBY POPPER — TRUSTEE
- ALAN GERSTEIN — TRUSTEE
- ASIF ZAMAN — TRUSTEE
- BHANU PATIL — TRUSTEE
- CINDY MUSOFF — TRUSTEE
- DAVID R PEDOWITZ — TRUSTEE
- FARREL STARKER — TRUSTEE
- HOWARD ADLER — TRUSTEE
- JIM PIERI — TRUSTEE
- JULIE ESKAY EAGLE — TRUSTEE
- LANCE WACHENHEIM — TRUSTEE
relationships · 12
Who they work with
- Artistry Dance Project Partner — Partnership involving fundraising and community engagement, including sponsorship of the BAC 5K Walk/Run.
- BBC StoryWorks Commercial Productions Partner — Collaborated with Blythedale to produce a film about the hospital's work transitioning medically fragile children from hospital to home.
- Blythedale Advisory Council Coalition — Non-governing committee of young professionals supporting Blythedale's mission and programming.
- Blythedale Children's Hospital Network — Member of New York State's network of specialty healthcare providers for children.
- Johnson & Johnson Partner — Commissioned a film through BBC StoryWorks that features Blythedale's nursing leaders and their work with medically fragile children.
- Morgan Stanley Children’s Hospital of New York Partner — Receives patient referrals, as illustrated by Bella's transfer from this hospital.
- Mount Pleasant-BlytheDale Union Free School District Partner — Provides full academic programming in conjunction with BlytheDale's day hospital and long-term care services.
- New York State Education Department Government — Oversees the statewide preschool special education program through which BlytheDale provides CPSE services.
- Simulation Laboratory Partner — Collaborates with clinical educators to provide simulation-based training for parents.
- Steven and Alexandra Cohen Government — Namesake donors of the Pediatric Long Term Care Pavilion at Blythedale Children's Hospital.
- Vimeo Partner — Hosts video content for Blythedale Children's Hospital, including patient and family testimonials.
- Westchester Country Club Partner — Hosted the Pops Memorial Golf Outing benefiting Blythedale Children's Hospital.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Continuity of Care Through Referral Partnershipsmethodology: continuity_of_careBy maintaining strong relationships with referring hospitals and physicians, Blythdale ensures seamless transitions and sustained treatment gains, because coordinated post-discharge planning preserves clinical momentum and reduces rehospitalization risk.
- Interdisciplinary, Family-Centered Care Modelmethodology: interdisciplinary_family_centered_careBy integrating multidisciplinary clinical teams with active family participation, Blythdale ensures coordinated, individualized care planning and smoother transitions to home, because collaborative decision-making improves treatment adherence and family confidence.
- Philanthropy-Funded Service Expansionmethodology: philanthropy_funded_careBy leveraging philanthropy to support services not fully covered by reimbursements, Blythdale maintains comprehensive care capacity, because unrestricted funding enables programmatic flexibility and access to high-cost rehabilitative therapies.
- Stepwise, Simulation-Enhanced Family Trainingmethodology: stepwise_simulation_trainingBy breaking down complex medical caregiving into incremental, simulation-based learning modules, families gain competence and psychological readiness for home care, because mastery through practice and desensitization increases confidence and reduces errors.