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Patient and Researcher Conferences

Every indexed organization working in the activity groups below — who they are, where they operate, and the approaches they share.

01 Patient and Researcher Conferences · 73 activities edit slice
62
orgs
73
activities
34
strategies
NY
epicenter
the opening take
This slice touches 62 organizations and 73 activities — HEREDITARY NEUROPATHY FOUNDATION, Wilson Disease Association, NORTH AMERICAN NEUROENDOCRINE TUMOR SOCIETY, CHILDREN'S TUMOR FOUNDATION and others. Activity concentrates in New York (100%). The field's most common shared approach is "Venture Philanthropy Model", run by 27 orgs.
who to look at first

Shortlist

Ranked by activity breadth, method diversity, and network reach across the slice. Attach a memo to this report and this list re-ranks around your intent.

where this slice is thin

Gap signals

Concrete structural gaps — method mix, geographic concentration, coalition density, funder diversity. Evidence is cited from the slice's own numbers.

where the field lives · works

Geography

Orange headquarters dots are sized by how many grantees are based in the state. Green circles mark real locations these orgs say they serve — from city-level populations in this slice's impact_map_populations data. Toggle layers at the bottom right.

regional breakdown · hq density
New York 100% · 62 orgs
who's here

Organizations in this field · 62

sort by
direct service advocacy research capacity building
where the money comes from

Funders already active in this field

Funders named as a funding source on these orgs' own materials. The count is the number of orgs in this slice that cite them — higher means a funder with demonstrable commitment to the field.

Pfizer 2
Corporate
ANA Project Firstline IPC Grant 1
Government
Akkad Holdings 1
Corporate
Alliance Global Partners 1
Corporate
Annual Conference 1
Earned
Aspire Capital 1
Corporate
Axon Event Corporate Sponsors 1
Corporate
Aya Paper Co. 1
Corporate
Bay Area Lyme Foundation 1
Foundation
Chan Zuckerberg Initiative 1
Foundation
Conrad N. Hilton Foundation 1
Foundation
Cosmetic Executive Women (CEW) 1
Foundation
Daiichi Sankyo 1
Corporate
Deerfield 1
Government
how the field thinks

Strategies in this slice

Theories of action extracted from the orgs in this slice. The count is how many orgs cite each one — a strategy run by many orgs in common is a through-line; one cited by a single org is still surfaced so the reader can gauge the full spread.

where strategy meets practice

Strategies × activity types

How each shared strategy breaks down across the four activity types the orgs running it actually do.

direct service
advocacy
research
capacity building
Venture Philanthropy Model
21
2
4
4
Research-Advocacy Integration
7
1
2
1
Patient-Centered Research Acceleration
4
2
2
Peer-Led Holistic Support
5
1
100% Direct Funding Model
2
Community-Driven Systems Change
2
Community-Led Systems Change
2
1
Consumer-Controlled Model
2
who works with whom

Named partnerships · coalitions · networks

Entities these orgs explicitly call out as partners, coalition members, or networks — relationships the orgs claim on their own sites.

Facebook Partner
shared by 6 orgs
NORD Partner
shared by 5 orgs
National Institutes of Health Partner
shared by 5 orgs
New York State Department of Health Government
shared by 4 orgs
Boston Children's Hospital Partner
shared by 3 orgs
Chan Zuckerberg Initiative Funder
shared by 3 orgs
National Organization for Rare Disorders Partner
shared by 3 orgs
National Organization for Rare Disorders Network
shared by 3 orgs
Pfizer Partner
shared by 3 orgs
University of California, Los Angeles Partner
shared by 3 orgs
Vanderbilt University Partner
shared by 3 orgs
YouTube Network
shared by 3 orgs
American Cancer Society Partner
shared by 2 orgs
Baylor College of Medicine Partner
shared by 2 orgs
Board of Directors Partner
shared by 2 orgs
Centers for Disease Control and Prevention Government
shared by 2 orgs