named programs · 2 · from sources
What they call their work
Community Awareness and Education
Offers educational materials on kidney disease, treatment options, and nutrition to patients and the public
Kidney Donation Education
Provides resources and information about living kidney donation, deceased donation, and the organ transplant process
activities · 5 groups
What they do
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Kidney Disease Education and Advocacy 5 activities
- Advocacy for kidney disease patientsAdvocates for the needs and interests of people with kidney disease, including dialysis and transplant patients, at local, state, and national levels, with a focus on equitable transplant access and policy reform related to race-based eGFR calculations.
- Emergency preparedness educationProvides emergency preparedness information tailored to individuals receiving dialysis or living with a kidney transplant to support continuity of care during crises.
- Healthcare professional educationProvides continuing education programs for healthcare professionals, including physicians, nurses, and social workers, to enhance knowledge and care practices related to kidney disease.
- Patient and family education programsProvides educational resources and programs to help patients and families understand kidney disease, navigate treatment options such as dialysis and transplantation, and access national transplant statistics and waiting list data.
- Public awareness and education campaignsConducts public educational campaigns and community outreach to increase awareness of kidney disease, including risk factors, prevention, treatment options, and available support programs, serving eight counties in Western New York.
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Living Donor Transplant Support 2 activities
- Living donor identification supportSupports kidney transplant candidates through in-person workshops and online video-based programs that teach strategies for identifying potential living donors, including partnerships with the Living Kidney Donors Network and workshops led by Harvey Mysel in 2017 and 2019.
- Volunteer engagement and trainingRecruits and trains volunteers through orientation sessions and supervised event participation to support public education and outreach efforts on kidney disease.
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Community Health Fairs and Screenings 1 activity
- Community kidney health screeningsProvides free community kidney health screenings across eight counties of Western New York, including blood pressure testing, blood glucose testing, urinalysis, BMI calculation, health history review, and consultation with a healthcare professional for individuals at heightened risk of kidney disease.
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Direct Financial Assistance to Individuals 1 activity
- Patient support and emergency assistanceOffers short-term, emergency assistance for financial, nutritional, and transportation needs to patients and families affected by kidney disease in eight counties of Western New York, including those receiving dialysis or living with a kidney transplant.
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Peer-Led Mental Health Support Groups 1 activity
- Support groups for patients and familiesHosts a monthly in-person support group for kidney patients, transplant recipients, living donors, and families at Erie County Medical Center in Buffalo, NY.
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financials · form 990EZ · fy2024
revenue
Total revenue$177K
Contributions & grants$186K105%
Program service revenue——
Investment income$3K2%
Other revenue—
expenses
Total expenses$175K
Program expenses67%
Admin / overhead18%
Fundraising15%
Salaries & benefits$131K
Grants paid out—
Largest expense lineCompensation
balance sheet
Total assets$142K
Cash$212K
Investments$0
Liabilities$11K
Net assets$109K
Liquid reserves14.6 mo
5 years on record · 2020–2024 · YoY revenue +15.0%
leadership · form 990 part vii · fy2024
Who runs it
board members · 6
- AMILCAR HILL — DIRECTOR
- BETH HUGHES — DIRECTOR
- CHRISTOPHER COLLINS THRU 824 — DIRECTOR
- DR SAMUEL CLOUD — DIRECTOR
- JOANNE BECKER MD — DIRECTOR
- JOHN DUERR — DIRECTOR
relationships · 27
Who they work with
- American Living Organ Donor Fund Partner — Partners with a fund that provides direct grants to living organ donors to cover donation-related expenses pre- and post-donation.
- American Transplant Foundation Partner — Collaborates with a foundation that offers patient assistance to help living donors cover essential expenses like rent or mortgage during recovery.
- ConnectLife Partner — Provides crucial support including office space and administrative services to the Kidney Foundation of WNY.
- Dialysis Patient Citizens Partner — Offers a telephone-based support program, DPC Kidney Chat, which the organization promotes to individuals with kidney disease and their families.
- Donate Life New York State Partner — Collaborates on advocacy efforts related to the New York State Donate Life Registry, organ donation, and transplantation.
- Donate Life New York State Partner — Kidney Foundation of WNY is an affiliate of Donate Life New York State.
- Erie County Medical Center Partner — Co-hosts the Kidney Wellness and Transplant Support Group at ECMC facilities and through its Transplant Department's online platforms.
- IPRO ESRD Network 2 Partner — Collaborates with IPRO ESRD Network 2 to provide emergency updates and preparedness resources for dialysis patients in New York State.
- IPRO ESRD Network of New York Network 2 Partner — Provides information on dialysis care and processes patient grievances related to ESRD facility quality and safety; listed as a resource partner.
- Kidney Community Emergency Response (KCER) Program Partner — Utilizes disaster preparedness resources from the KCER Program to support patients and promote community readiness.
- Living Kidney Donors Network Partner — Collaborates to provide a video-based program for kidney transplant patients seeking living donors.
- Living Kidney Donors Network Partner — Collaborates with a network that offers a free online program to help patients develop campaigns to find living kidney donors.
- Living Kidney Donors Network Partner — Collaborates with the Living Kidney Donors Network to deliver educational programming for kidney transplant candidates.
- NY Center for Kidney Transplantation Partner — Hosts the 'Kidney Talk Tuesdays' education series, which the organization promotes for kidney patients and caregivers.
- National Institute of Diabetes and Digestive and Kidney Diseases Partner — Collaborates by providing informational materials used in community outreach efforts.
- National Kidney Donation Organization Partner — Partners with an organization of living donors that provides mentoring, education, and support to prospective living kidney donors.
- National Kidney Registry Partner — Collaborates with a national registry that increases living donor transplants through voucher programs and microsites for transplant candidates.
- National Living Donor Assistance Center Partner — Works with a national assistance center that reimburses travel, lost wages, and dependent care expenses for living organ donors.
- New York Center for Kidney Transplantation Partner — Kidney Foundation of WNY is an affiliate of the New York Center for Kidney Transplantation.
- New York State Department of Health Government — Collaborates to address public health needs related to kidney disease awareness.
- Organ Procurement and Transplantation Network Government — Partnered with OPTN on policy changes to adjust waiting times for kidney transplant candidates affected by race-based eGFR calculations.
- Regional Center of Excellence for Transplantation and Kidney Care at ECMC Partner — Local transplant center referenced as a key resource for kidney care and transplantation services.
- Regional Center of Excellence for Transplantation and Kidney Care at Erie County Medical Center Partner — Collaborates by directing local residents to ECMC for kidney and kidney/pancreas transplants and living donor services.
- Renal Support Network Partner — Hosts monthly online kidney disease support groups via Zoom that the organization promotes and links to for patient access.
- The Kidney Connection Partner — Partners with a WNY nonprofit that helps people in need of a kidney transplant share their stories to connect with potential living donors.
- United Network for Organ Sharing Partner — Collaborates with UNOS to promote equitable kidney transplant policies and disseminate information on race-free eGFR implementation.
- Western New York county health departments Government — Works with local health departments to improve awareness and screening for kidney disease.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community-Partnered Prevention to Address Root Causes of Kidney Diseasemethodology: community_partnered_preventionBy partnering with community organizations to address conditions like diabetes, obesity, and hypertension, the organization reduces the incidence and progression of kidney disease, because upstream social and health factors are critical drivers of renal outcomes.
- Early Detection and Intervention to Prevent Disease Progressionmethodology: early_detection_and_interventionBy identifying kidney disease early through community screening and education, the organization aims to slow or prevent progression to end-stage renal disease, because timely lifestyle and medical interventions are more effective when initiated early.
- Equitable Access to Transplant Eligibility via Race-Free eGFRmethodology: race_free_egfrBy using race-free eGFR calculations, the organization ensures more accurate and equitable assessment of kidney function, because removing race-based adjustments reduces systemic disparities in transplant eligibility and access.
- Patient Empowerment Through Education to Expand Living Donor Networksmethodology: patient_empowerment_through_educationBy providing kidney transplant patients with accessible, video-based education, the organization increases the likelihood of identifying living donors, because informed patients are better equipped to initiate conversations and build support networks.