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38 ORGS · 189 ACTIVITIES ← all strategies ·
approach

Education-Driven Behavior Change

methodology: behavior_change_through_education

By increasing knowledge and awareness through targeted education, organizations produce behavior change in donation, care, and prevention, because informed individuals and communities are more likely to engage in life-saving actions and support systemic solutions. This strategy centers on the belief that gaps in public understanding—around organ donation, kidney disease, or medical ethics—are key barriers to action. By delivering accessible, culturally resonant, and often personalized education, these organizations empower patients, families, and communities to make informed decisions, advocate for themselves, and participate in donation and care pathways. It differs from purely policy- or infrastructure-focused strategies by prioritizing knowledge as the primary lever for change, rather than systemic mandates or clinical interventions alone.

38
orgs running it
189
activities of those orgs
12
activity groups touched
who runs it

Organizations running this strategy · 38

+ 8 more orgs
what it looks like in practice

Activities of orgs running this strategy

A sample of programmatic activities from the orgs above — what the strategy looks like on the ground.

  • Advancing patient-centered drug development through FDA engagement AMERICAN SPINAL RESEARCH ORG INC
    advocacy
    Submitted a Letter of Intent to the FDA for a SCI Patient-Focused Drug Development (PFDD) meeting, held monthly check-ins, recruited diverse panelists, hosted a virtual PFDD meeting to elevate patient voices in regulatory decision-making, and published a white paper on the role of patient input in shaping FDA decisions for spinal cord injury treatments.
  • Conducting community research and feedback initiatives AMERICAN SPINAL RESEARCH ORG INC
    research
    Conducted a survey of 448 respondents to understand how individuals with spinal cord injury access and evaluate health information; develops polling questions and gathers community feedback to inform research and regulatory initiatives such as the FDA Patient-Focused Drug Development meeting.
  • Connecting for-profit organizations with the spinal cord injury community AMERICAN SPINAL RESEARCH ORG INC
    capacity building
    Enables for-profit organizations to advance spinal cord injury research, technology, and innovation by connecting business expertise with community needs.
  • Convening organizations in the spinal cord injury advocacy space AMERICAN SPINAL RESEARCH ORG INC
    advocacy
    Convenes organizations across North America that advocate for and communicate with individuals living with spinal cord injury, including through organizational membership and collaborative initiatives.
  • Delivering educational webinar series during the pandemic AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Hosted a webinar series titled "SCI: Moving Forward – A Response to COVID-19" and provided educational content on telemedicine, advocacy, and health & wellness for the spinal cord injury community, with free on-demand access.
  • Delivering the Spinal Cord Injury Research Advocacy Course (SCI-RAC) AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Provides a 12-module, approximately 6-hour educational course with quizzes and a certificate upon completion, designed to train individuals with spinal cord injury, caregivers, and healthcare providers in research advocacy. The course demonstrated measurable gains in participant outcomes according to a 2026 peer-reviewed evaluation.
  • Disseminating research findings through SCI Connections webinars AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Hosts free SCI Connections webinars to present findings from the SCI-Powered Network, including Phase 1 results, and to share informational resources such as details about ProBed Medical and the Freedom Bed.
  • Engaging individuals in research advocacy and representation AMERICAN SPINAL RESEARCH ORG INC
    advocacy
    Offers individual membership to people living with spinal cord injury, caregivers, and family members, enabling participation in research and advocacy efforts, with one voting delegate representative per member.
  • Ensuring digital accessibility of organizational resources AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Operates a website with accessibility features including keyboard navigation, high contrast, and screen-reader compatibility, compliant with WCAG 2.1 AA standards.
  • Establishing community-aligned research review processes AMERICAN SPINAL RESEARCH ORG INC
    research
    Establishes a Project Review Committee that integrates individuals with lived experience of spinal cord injury and research experts to evaluate research projects for community alignment and relevance.
  • Funding public awareness and prevention programs for spinal cord injuries AMERICAN SPINAL RESEARCH ORG INC
    grantmaking
    Funds awareness and prevention programs directed at the general public to reduce the incidence of spinal cord injuries.
  • Funding scientific and medical research for spinal cord injury AMERICAN SPINAL RESEARCH ORG INC
    grantmaking
    Funds targeted scientific and medical research aimed at improving physical quality of life for individuals with spinal cord injuries and related neurological deficits.
  • Hosting regular community engagement webinars AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Hosts quarterly webinars and free online meetings with Q&A sessions to share updates on projects, goals, and engagement opportunities, enabling remote connection and participation by the spinal cord injury community.
  • Hosting the semi-annual conference on neural injury and regeneration AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Hosts a semi-annual multidisciplinary scientific conference focused on spinal cord injury and peripheral nerve repair, featuring a single-session format with programming on axon regeneration, neuroplasticity, neuromodulation, and whole-body effects of injury, including keynotes on neural control of movement and vagus nerve stimulation.
  • Operating a searchable clinical trials database for spinal cord injury AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Provides a searchable database of spinal cord injury clinical trials with filters for injury level, time since injury, location, and intervention type, including plain-language summaries of eligibility criteria and participation requirements. The database compiles and reviews listings from reputable registries and research networks for accuracy and clarity.
  • Organizing and participating in professional symposia AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Organized and participated in the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium at Barrow Neurological Institute, offering continuing education for rehabilitation professionals, and participated in the International Symposium of Neural Regeneration with a featured speaker.
  • Organizing trainee-focused programming at scientific conferences AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Hosts programming for early-career researchers including data blitz sessions, poster presentations, awards, and networking opportunities as part of the organization's scientific conferences.
  • Producing sponsored educational podcasts AMERICAN SPINAL RESEARCH ORG INC
    direct service
    Presents sponsored podcasts on topics related to spinal cord injury recovery, such as integrated functional electrical stimulation.