named programs · 2 · from sources
What they call their work
Awareness and Prevention Programs
Supports public education initiatives aimed at reducing the incidence of spinal cord injuries through prevention and awareness campaigns.
Targeted Scientific and Medical Research Funding
Provides funding for research initiatives dedicated to improving the physical quality of life for individuals with spinal cord injuries and related neurological deficits.
activities · 9 groups
What they do
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Medical Research Funding 3 activities
- Connecting for-profit organizations with the spinal cord injury communityEnables for-profit organizations to advance spinal cord injury research, technology, and innovation by connecting business expertise with community needs.
- Funding public awareness and prevention programs for spinal cord injuriesFunds awareness and prevention programs directed at the general public to reduce the incidence of spinal cord injuries.
- Funding scientific and medical research for spinal cord injuryFunds targeted scientific and medical research aimed at improving physical quality of life for individuals with spinal cord injuries and related neurological deficits.
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Scientific Conference & Symposium Management 3 activities
- Hosting the semi-annual conference on neural injury and regenerationHosts a semi-annual multidisciplinary scientific conference focused on spinal cord injury and peripheral nerve repair, featuring a single-session format with programming on axon regeneration, neuroplasticity, neuromodulation, and whole-body effects of injury, including keynotes on neural control of movement and vagus nerve stimulation.
- Organizing and participating in professional symposiaOrganized and participated in the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium at Barrow Neurological Institute, offering continuing education for rehabilitation professionals, and participated in the International Symposium of Neural Regeneration with a featured speaker.
- Organizing trainee-focused programming at scientific conferencesHosts programming for early-career researchers including data blitz sessions, poster presentations, awards, and networking opportunities as part of the organization's scientific conferences.
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Brain Injury Support & Rehabilitation 2 activities
- Convening organizations in the spinal cord injury advocacy spaceConvenes organizations across North America that advocate for and communicate with individuals living with spinal cord injury, including through organizational membership and collaborative initiatives.
- Engaging individuals in research advocacy and representationOffers individual membership to people living with spinal cord injury, caregivers, and family members, enabling participation in research and advocacy efforts, with one voting delegate representative per member.
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Medical Research & Education Dissemination 2 activities
- Disseminating research findings through SCI Connections webinarsHosts free SCI Connections webinars to present findings from the SCI-Powered Network, including Phase 1 results, and to share informational resources such as details about ProBed Medical and the Freedom Bed.
- Publishing white papers and research summariesPublished and made available for download the "NASCIC COVID-19 & SCI Whitepaper" and a white paper outlining the role of patient input in shaping FDA decisions and accelerating treatments for spinal cord injury.
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Virtual Education Continuity Programs 1 activity
- Delivering educational webinar series during the pandemicHosted a webinar series titled "SCI: Moving Forward – A Response to COVID-19" and provided educational content on telemedicine, advocacy, and health & wellness for the spinal cord injury community, with free on-demand access.
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Website Accessibility Implementation 1 activity
- Ensuring digital accessibility of organizational resourcesOperates a website with accessibility features including keyboard navigation, high contrast, and screen-reader compatibility, compliant with WCAG 2.1 AA standards.
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Regular Membership Meetings 1 activity
- Hosting regular community engagement webinarsHosts quarterly webinars and free online meetings with Q&A sessions to share updates on projects, goals, and engagement opportunities, enabling remote connection and participation by the spinal cord injury community.
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Neurological Disorder Research & Rehabilitation 1 activity
- Operating a searchable clinical trials database for spinal cord injuryProvides a searchable database of spinal cord injury clinical trials with filters for injury level, time since injury, location, and intervention type, including plain-language summaries of eligibility criteria and participation requirements. The database compiles and reviews listings from reputable registries and research networks for accuracy and clarity.
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Uncategorized 6 activities
- Advancing patient-centered drug development through FDA engagementSubmitted a Letter of Intent to the FDA for a SCI Patient-Focused Drug Development (PFDD) meeting, held monthly check-ins, recruited diverse panelists, hosted a virtual PFDD meeting to elevate patient voices in regulatory decision-making, and published a white paper on the role of patient input in shaping FDA decisions for spinal cord injury treatments.
- Conducting community research and feedback initiativesConducted a survey of 448 respondents to understand how individuals with spinal cord injury access and evaluate health information; develops polling questions and gathers community feedback to inform research and regulatory initiatives such as the FDA Patient-Focused Drug Development meeting.
- Delivering the Spinal Cord Injury Research Advocacy Course (SCI-RAC)Provides a 12-module, approximately 6-hour educational course with quizzes and a certificate upon completion, designed to train individuals with spinal cord injury, caregivers, and healthcare providers in research advocacy. The course demonstrated measurable gains in participant outcomes according to a 2026 peer-reviewed evaluation.
- Establishing community-aligned research review processesEstablishes a Project Review Committee that integrates individuals with lived experience of spinal cord injury and research experts to evaluate research projects for community alignment and relevance.
- Producing sponsored educational podcastsPresents sponsored podcasts on topics related to spinal cord injury recovery, such as integrated functional electrical stimulation.
- Providing SCI-RAC Lite educational bundlesOffers abbreviated course content through SCI-RAC Lite Bundles, each designed to take approximately one hour to complete, increasing accessibility to spinal cord injury research education.
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financials · form 990 · fy2024
revenue
Total revenue$127K
Contributions & grants$82K64%
Program service revenue$46K36%
Investment income$00%
Other revenue$0
expenses
Total expenses$154K
Program expenses62%
Admin / overhead38%
Fundraising0%
Salaries & benefits$0
Grants paid out$38K
Largest expense lineProfessional Fees
balance sheet
Total assets$940
Cash$940
Investments$0
Liabilities$25K
Net assets$-24K
Liquid reserves0.1 mo
5 years on record · 2020–2024 · YoY revenue -57.0%
leadership · form 990 part vii · fy2024
Who runs it
board members · 2
- DR KIM ANDERSON - ERISMAN — DIRECTOR
- IAN BURKHART — DIRECTOR
relationships · 41
Who they work with
- American Spinal Injury Association Partner — Hosts the ISNR conference as an affiliate of the American Spinal Injury Association (ASIA).
- Asian Spinal Cord Network Partner — Co-hosts annual scientific meetings and regional tracks with NASCIC.
- Asian Spinal Cord Network Partner — Co-hosts the ISCoS 2026 Annual Scientific Meeting with ASCoN.
- BackBones Partner — Member of the Working Group that developed the SCI-Powered Network
- Barrow Neurological Institute Partner — Co-hosts the Acquired Brain Injury and Spinal Cord Injury Symposium.
- Barrow Neurological Institute Partner — Collaborates with NASCIC on the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium, offering continuing education for therapists.
- Barrow Neurological Institute Partner — Hosted the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium.
- Barrow Neurological Institute Partner — Hosts the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium.
- Case Western Reserve University Partner — Collaborates with NASCIC as a professional member organization
- Case Western Reserve University Partner — Represented by Dr. Dennis Bourbeau, a Partner Member involved in NASCIC’s initiatives and discussions.
- Christopher & Dana Reeve Foundation Partner — Member of the Working Group that developed the SCI-Powered Network
- Claudia Garofalo Partner — Patron member and advocate contributing personal experience to the NASCIC community.
- Craig H. Neilsen Foundation Funder — Listed as a host sponsor supporting the 2026 ISNR Conference.
- Craig H. Neilsen Foundation Funder — Provided generous support for the SCI: Moving Forward webinar series through its Emergency Relief Fund.
- FDA Government — Collaborates with the FDA through the Patient-Focused Drug Development initiative to inform regulatory decisions on spinal cord injury treatments.
- International Spinal Cord Society Network — NASCIC engages with ISCoS through participation in its 2026 Annual Scientific Meeting and related research dissemination.
- International Spinal Cord Society Partner — Collaborates on scientific meetings and conferences related to spinal cord injury.
- International Spinal Cord Society Partner — Collaborates on the ISCoS 2026 Annual Scientific Meeting.
- Louis Stokes VA Partner — Collaborates with NASCIC as a professional member organization
- Mission Connect Funder — Listed as a sponsor supporting the 2026 ISNR Conference.
- NASCIC Network — Delivers the SCI-RAC course in affiliation with NASCIC
- NASCIC Network — Member of the North American Spinal Cord Injury Consortium
- NASCIC Network — Member organization that informed the development of SCItrials.org.
- NASCIC Partner — Collaborates on the development and delivery of the SCI Research Advocacy Course.
- North American Spinal Cord Injury Consortium Partner — Features Barry Munro of the North American Spinal Cord Injury Consortium (NASCIC) as a speaker to connect research with lived experience of spinal cord injury.
- Northwell Health Spine Funder — Listed as a sponsor supporting the 2026 ISNR Conference.
- Open Data Commons for SCI Funder — Listed as a sponsor supporting the 2026 ISNR Conference.
- Paralyzed Veterans of America Partner — Member of the Working Group that developed the SCI-Powered Network
- Praxis Institute Partner — Member of the Working Group that developed the SCI-Powered Network
- Restorative Therapies Partner — Sponsored podcast collaboration on integrated FES for SCI recovery.
+ 11 more
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Advocacy Capacity Building Through Educationmethodology: advocacy-through-educationBy providing education and training to individuals affected by spinal cord injury, we build their capacity to advocate effectively, because informed and empowered individuals can more meaningfully influence research and regulatory processes.
- Collective Advocacy Through Network Conveningmethodology: collaborative_network_modelBy uniting advocacy and service organizations across North America, we amplify the collective voice of the spinal cord injury community to strengthen advocacy and research impact, because coordinated networks produce greater influence than isolated organizations.
- Community-Engaged Research and Advocacymethodology: community_engaged_researchBy integrating individuals with lived experience of spinal cord injury into research design, governance, and advocacy efforts, we ensure community alignment and increase engagement, because involving affected individuals strengthens the relevance, legitimacy, and impact of research and policy outcomes.
- Prevention Through Public Educationmethodology: prevention_through_public_educationBy educating the public about spinal cord injury risks and prevention, we reduce the incidence of new injuries, because awareness leads to behavior change and risk mitigation.
- Targeted Research Funding for Translational Impactmethodology: targeted_research_fundingBy directing funding toward targeted scientific and medical research, we improve physical quality of life for individuals with spinal cord injuries, because focused investment accelerates the development of effective treatments and interventions.