irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $15.84MIMMUNOGENETICS AND TRANSPLATATION CENTER: A HISTOCOMPATIBILITY LABORATORY THAT PERFORMS TISSUE TYPING EVALUATIONS TO FACILITATE ORGAN TRANSPLANTATION.
- #2 $3.93MRESEARCH: basic science and clinical research program studying kidney disease, renal replacement therapy (dialysis, kidney transplantation) and regenerative medicine. The program develops and tests new therapeutic modalities for kidney disease and its causes, including diabetes, lipid disorders and cardiovascular disease.
named programs · 7 · from sources
What they call their work
Clinical Trials Program
Conducts cutting-edge clinical research on kidney disease, renal replacement therapies, and regenerative medicine to develop new treatments.
Home Dialysis Training Program
Program offering training and support for home nocturnal hemodialysis and peritoneal dialysis, enabling patients to perform treatments at home.
Immunogenetics and Transplantation Laboratory (IGT)
A histocompatibility laboratory performing tissue typing evaluations to facilitate organ transplantation, serving transplant centers across the Northeast.
Program for Education of Patients with Advanced Kidney Disease (PEAK)
Educational initiative empowering patients with advanced kidney disease through counseling and support to make informed treatment decisions.
Rogosin Institute Transplant Center
Collaborates with NewYork-Presbyterian/Weill Cornell to provide kidney transplantation services, including evaluation, surgery, and post-transplant care.
Rogosin Wellness Program
Peer-mentoring program connecting patients with Wellness Ambassadors—individuals living with kidney disease—to promote self-management and improve quality of life.
Susan R. Knafel Polycystic Kidney Disease Center
Specialized treatment center for polycystic kidney disease, one of the few in the Northeast, offering comprehensive care and management.
activities · 6 groups
What they do
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Kidney Disease Education and Advocacy 2 activities
- Provide home dialysis programs and trainingOperates one of the largest home dialysis programs in New York City, including dedicated centers in Brooklyn and White Plains for home dialysis training and treatment. Includes a home nocturnal hemodialysis training and treatment program to support patient independence and flexible care options.
- Provide patient education and wellness support programsOperates a Wellness Program that connects kidney patients with peer mentors (Wellness Ambassadors) to support informed healthcare decision-making and emotional well-being. Provides comprehensive medical information on kidney disease, organ donation, and patient education, along with an online risk assessment tool and follow-up guidance for individuals at risk.
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Biomedical Research and Innovation 1 activity
- Conduct kidney disease research and clinical trialsConducts basic science and clinical research on kidney disease, dialysis, transplantation, and regenerative medicine, with a focus on developing and testing new treatments for kidney disease and related conditions such as diabetes and cardiovascular disease. Physicians also hold appointments at The Rockefeller University and Hospital for Special Surgery to support research initiatives.
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Direct Clinical Care Services 1 activity
- Deliver comprehensive kidney disease care and specialty clinicsProvides diagnosis, treatment, and long-term medical management for acute and chronic kidney disease, including subspecialty care for diabetic nephropathy, glomerulonephritis, lupus nephritis, nephrotic syndrome, and polycystic kidney disease. Operates three comprehensive kidney care centers in Manhattan hosting 12,000 patient visits annually and cares for over 12,000 patients with chronic kidney disease in the NYC metropolitan area.
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Healthcare Delivery Networks and Coalitions 1 activity
- Facilitate patient access and care coordinationOffers appointment scheduling assistance via direct representative contact and provides access to physicians through in-person or telemedicine visits. Delivers individualized, integrative care in affiliation with NewYork-Presbyterian Hospital and Weill Cornell Medicine.
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Outpatient and Emergency Care Services 1 activity
- Operate outpatient dialysis centersOperates 11 outpatient dialysis treatment centers across New York City, including locations in Manhattan, Brooklyn, Queens, and the Bronx, providing dialysis care for over 1,600 patients annually. Facilities include centers in Woodside, Flushing, East New York, Carroll Gardens, and the Bronx, with services also provided at partner hospitals such as Brookdale Hospital and NewYork-Presbyterian Brooklyn Methodist Hospital.
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Living Donor Transplant Support 1 activity
- Support kidney transplantation through clinical and laboratory servicesCollaborates with the NYP/Weill Cornell Transplant Program to provide kidney transplants and operates the Immunogenetics and Transplantation Laboratory (IGT), one of the largest solid-organ immunogenetics labs in the Northeast, which performs tissue typing and compatibility testing for transplant patients and donors. Performed the first kidney transplant and first hemodialysis in the metropolitan area.
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financials · form 990 · fy2024
revenue
Total revenue$122.76M
Contributions & grants$4.98M4%
Program service revenue$114.99M94%
Investment income$316K0%
Other revenue$2.47M
expenses
Total expenses$121.96M
Program expenses80%
Admin / overhead19%
Fundraising1%
Salaries & benefits$68.58M
Grants paid out$1.54M
Largest expense lineCompensation
balance sheet
Total assets$111.80M
Cash$19.40M
Investments$5.46M
Liabilities$95.18M
Net assets$16.62M
Liquid reserves2.5 mo
3 years on record · 2020–2024 · YoY revenue +3.7%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 25
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| WILHELMINA MANZANO | DIRECTOR | 1 | $2.41M |
| SHAUN E SMITH | SECRETARY | 1 | $1.96M |
| KAREN WESTERVELT | VICE CHAIR | 1 | $1.61M |
| MIRIAM RIKE | TREASURER | 1 | $1.35M |
| JUAN MEJIA | DIRECTOR | 1 | $1.26M |
| RICHARD EVANS | DIRECTOR | 1 | $1.18M |
| JENNINGS R ASKE | DIRECTOR | 1 | $1.07M |
| NAZIM B MALATYALI | DIRECTOR | 1 | $1.04M |
| CLAUDIA ROSEN | DIRECTOR | 1 | $1.03M |
| DAVID WYMAN | PRESIDENT | 58 | $922K |
| STUART D SAAL | VP NEPHROLOGY/CONSULTIVE SVCS | 60 | $658K |
| BRIAN K REGAN | DIRECTOR | 1 | $651K |
| JUN B LEE | PHYSICIAN | 39 | $613K |
| Zeynep SUMER-King | DIRECTOR | 1 | $574K |
| JEFFREY SILBERZWEIG | VP NEPHROLOGY/DIALYSIS & CMO | 60 | $520K |
| ALAN S PERLMAN | PHYSICIAN | 35 | $517K |
| ANDREW BOHMART | PHYSICIAN | 35 | $514K |
| ALLYSON Z PIFKO | EVP/COO | 60 | $478K |
| VIJAY K SHARMA | LAB DIRECTOR | 35 | $475K |
| JAY LAKKIS | PHYSICIAN | 35 | $465K |
| FRANK LIU | PHYSICIAN | 35 | $450K |
| DANIEL M LEVINE | VP INFO. TECH./CIO | 60 | $399K |
| REX A FRIEDLANDER | FORMER KEY EMPLOYEE | 35 | $252K |
| DIANA DECOLONGON | HR DIRECTOR | 35 | $237K |
| BRUCE R GORDON | EVP/CLINICAL SERVICE & STRATEGY (THRU 3/2024) | 60 | $133K |
relationships · 28
Who they work with
- AAKP Partner — Collaborates with the American Association of Kidney Patients on medical advisory and patient advocacy initiatives.
- Brookdale Hospital Partner — Provides dialysis services at Brookdale Hospital.
- Brookdale University Hospital Partner — Healthcare collaboration for kidney disease treatment and management.
- CAMBA Partner — Partnership to support community health and social services for kidney patients.
- Dialysis Centers Partner — Collaborates with dialysis centers to provide coordinated patient care.
- Donate Life New York State Registry Partner — Directs potential living donors to register through this state registry.
- Hebrew Home for the Aged Partner — Provides dialysis services at Hebrew Home for the Aged.
- Hospital for Special Surgery Partner — Healthcare partner where several Rogosin physicians are on staff.
- LiveOnNY Government — Partner organization providing information on organ donor registration in the New York region.
- Methodist Home Partner — Partnership to support kidney health services and patient care initiatives.
- Methodist Home Partner — Provides on-site dialysis services for residents and outpatients at Methodist Home.
- Methodist Home for Nursing and Rehabilitation Partner — Collaborated with The Rogosin Institute to open a new dialysis center in the Bronx in 2021.
- NYP/Weill Cornell Partner — Cooperates with NYP/Weill Cornell on the Rogosin Institute Transplant Center.
- NYP/Weill Cornell Transplant Program Partner — Collaborates with The Rogosin Institute on kidney transplant services.
- National Kidney Foundation Partner — Collaborates on kidney disease education, research, and patient support programs.
- National Kidney Foundation Partner — Collaborates on patient education through shared educational resources.
- NewYork Regional Hospital Network Network — Sponsored member organization supporting regional healthcare collaboration.
- NewYork-Presbyterian Partner — Provides inpatient and outpatient dialysis services through affiliation with NewYork-Presbyterian, a premier healthcare system.
- NewYork-Presbyterian Brooklyn Methodist Hospital Partner — Provides dialysis services at NYP Brooklyn Methodist Hospital.
- NewYork-Presbyterian Hospital Partner — Affiliated with NewYork-Presbyterian Hospital and Weill Cornell Medical College; physicians have appointments at both institutions.
- NewYork-Presbyterian Hospital Partner — Clinical affiliate for kidney disease diagnosis, treatment, and management.
- Nonprofit Kidney Care Alliance Partner — Collaborative network member for advancing nonprofit kidney care services.
- RiverSpring Health Partner — Partnership focused on kidney care for older adults and long-term health management.
- Steve Olsen Partner — Hosts an annual fundraising run in support of The Rogosin Institute Inc.
- The Rockefeller University Partner — Collaborating institution where several Rogosin physicians hold staff appointments.
- UNOS Government — Provides information on organ donor registration through collaboration with national organ donation systems.
- Weill Cornell Medical College Partner — Affiliated with Weill Cornell Medical College; physicians have appointments at the institution.
- Weill Cornell Medicine Partner — Academic and clinical affiliate; most Rogosin physicians have appointments at Weill Cornell Medical College.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Early Detection via Risk Screeningmethodology: early_detection_via_risk_screeningBy using a simple risk assessment tool to identify asymptomatic individuals at risk for kidney disease, the organization enables early intervention because detecting disease early improves long-term outcomes and slows progression.
- Integrative Approach to Kidney Caremethodology: integrative_approach_to_kidney_careBy combining innovative research, prevention, disease management, and patient education, the organization delivers individualized and comprehensive kidney care because integrating multiple modalities improves clinical outcomes and patient engagement.
- Living-Donor Transplantation Prioritizationmethodology: living-donor_transplantationBy prioritizing living-donor kidney transplants, the organization reduces waiting times and helps patients avoid dialysis because living-donor organs are more readily available and associated with better graft survival.
- Patient Empowerment through Educationmethodology: patient_educationBy providing comprehensive, individualized patient education and access to all treatment options, patients make informed health decisions because understanding their condition and choices increases engagement and autonomy in care.