named programs · 5 · from sources
What they call their work
DATE ECHO Clinic
Biweekly TeleECHO clinic for transplant and dialysis center professionals using a case-based learning model
Donating-New York Style
Workshop for potential living kidney donors covering the donation process, led by transplant professionals and living donors
ECHO University
Monthly educational sessions for transplant and dialysis professionals on current topics in kidney transplantation
Kidney Talks
Monthly Zoom series providing education and support for kidney patients and caregivers, hosted by patient advocates
Living it Up, New York Style
Interactive virtual workshop for kidney transplant candidates on strategies to find living donors
activities · 3 groups
What they do
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Living Donor Transplant Support 6 activities
- Conducts educational workshops for potential living kidney donorsHosts interactive virtual and in-person workshops to inform individuals considering living kidney donation about the medical, emotional, and logistical aspects of the donation process.
- Facilitates collaborative kidney transplantation consortiumEstablished and maintains a consortium of medical centers and organizations in New York State to support collaborative efforts in improving kidney transplantation outcomes and access.
- Hosts educational workshops for kidney transplant candidates on finding living donorsOffers virtual workshops to educate kidney transplant candidates on strategies to identify and approach potential living kidney donors. These workshops are repeated regularly and include interactive components.
- Offers living donor support program to promote kidney transplantsRuns a support program aimed at encouraging and facilitating living donor kidney transplantation among New Yorkers through education, guidance, and psychosocial support.
- Provides legal resources for undocumented patients seeking kidney transplantationOffers legal support and resources specifically tailored to undocumented patients navigating the kidney transplant process in New York.
- Provides public and professional education on kidney transplantation and living donationConducts outreach to both community members and healthcare professionals through educational events and resources to disseminate accurate, up-to-date information on kidney transplantation and living donation.
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Kidney Disease Education and Advocacy 4 activities
- Advocates for policy improvements for ESRD patients and living donorsEngages in advocacy at the state and national levels to improve healthcare access and remove financial and systemic disincentives for patients with End-Stage Renal Disease and living kidney donors.
- Demonstrates ECHO model at professional conventionsShowcased the TeleECHO program at the IPRO Convention to promote knowledge sharing and adoption of the ECHO model in kidney care.
- Operates TeleECHO programs for transplant and dialysis professionalsRuns a biweekly TeleECHO Clinic and a monthly ECHO University series for dialysis and transplant center professionals, featuring expert-led, one-hour educational sessions with case discussions to support clinical capacity building in kidney care.
- Provides monthly virtual educational sessions for kidney patients and caregiversHosts recurring monthly Zoom-based educational sessions for kidney patients and their caregivers, facilitated by transplant professionals and sometimes living donors, covering topics related to kidney disease and transplantation.
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Medical Professional Education & Training 1 activity
- Hosts specialized educational events on organ procurement and transplantation technologyOrganizes educational sessions focused on the use of technology and clinical data in organ procurement and transplantation, targeting professionals in the field.
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financials · form 990EZ · fy2024
revenue
Total revenue$161K
Contributions & grants$11K7%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$150K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$75K
Cash—
Investments—
Liabilities—
Net assets$57K
3 years on record · 2020–2024 · YoY revenue +3.5%
leadership · form 990 part vii · fy2024
Who runs it
board members · 9
- AKITA PATEL MD — DIRECTOR
- DANIEL GLICKLICH MD — DIRECTOR
- KATHERINE KEEFE MD — DIRECTOR
- KOFI ATIEMO MD — DIRECTOR
- LAURA BUTLER — DIRECTOR
- MORO SALIFU MD — DIRECTOR
- NIRJA DESAI MD — DIRECTOR
- REZA SAIDI MD — DIRECTOR
- SOO YOUN YI MD — DIRECTOR
relationships · 36
Who they work with
- Albany Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- Carrie Lindower Partner — Co-hosts monthly Kidney Talks as an educator and speaker.
- Center for Donation and Transplant Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Donate Life NYS Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Elaine Perlman Partner — Co-hosts monthly Kidney Talks as a living kidney donor and speaker.
- Elaine Perlman Partner — Living kidney donor who co-hosts educational workshops.
- Erie County Medical Center Corporation Partner — Consortium member collaborating on kidney transplantation initiatives.
- Finger Lakes Donor Recovery Network Partner — Affiliated member collaborating on kidney transplantation initiatives.
- IPRO Partner — Collaborated with IPRO to demonstrate the ECHO program at its convention
- James J. Peters VA Medical Center Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Kidney Connection, Inc Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Kidney Foundation of Western New York Partner — Affiliated member collaborating on kidney transplantation initiatives.
- LiveOnNY Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Long Island TRIO Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Montefiore Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- Mount Sinai Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- NYU Langone Health Partner — Consortium member collaborating on kidney transplantation initiatives.
- National Kidney Foundation Partner — Affiliated member collaborating on kidney transplantation initiatives.
- New York State Transplant Professionals Partner — Co-leads educational workshops on living kidney donation
- New York-Presbyterian Hospital/Columbia University Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- New York-Presbyterian Hospital/Weill Cornell Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- North Shore University Hospital Partner — Consortium member collaborating on kidney transplantation initiatives.
- Northeast Kidney Foundation Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Renewal of Life Partner — Affiliated member collaborating on kidney transplantation initiatives.
- SUNY Downstate Medical Center Partner — Consortium member collaborating on kidney transplantation initiatives.
- Transplant Support Organization Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Transplant and Dialysis centers Partner — Collaborates with transplant and dialysis centers in delivering ECHO education programs.
- University of Rochester Medical Center/Strong Memorial Hospital Partner — Consortium member collaborating on kidney transplantation initiatives.
- Upstate New York Transplant Services Partner — Affiliated member collaborating on kidney transplantation initiatives.
- Upstate University Hospital Partner — Consortium member collaborating on kidney transplantation initiatives.
+ 6 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Barrier-Reduction Through Integrated Support Servicesmethodology: barrier_reductionBy offering legal support to undocumented patients, we increase access to kidney transplantation, because addressing non-medical, structural barriers like immigration status enables equitable care engagement.
- Collaborative Network Model for Systemic Advocacymethodology: collaborative_network_modelBy coordinating transplant centers, organ procurement organizations, and advocacy groups, we increase organ supply and expand access to transplantation, because networked collaboration strengthens systemic capacity and information sharing beyond what any single institution can achieve.
- Peer-Led and Co-Led Education Modelmethodology: peer_led_educationBy combining medical expertise with lived experience in educational workshops, we produce greater engagement and trust among transplant candidates and potential donors, because shared experience increases relatability and reduces perceived barriers to action.
- Project ECHO for Knowledge Disseminationmethodology: project_echoBy using the Project ECHO model to connect transplant and dialysis center professionals through virtual learning networks, we produce broader clinical capacity and improved patient outcomes, because case-based collaboration scales expertise across geographically dispersed sites.