organizations
Organizations in this activity group · 16
showing 16 of 16
| # | Organization | State | Revenue | Activities ↓ | |
|---|---|---|---|---|---|
| 1 | SPINA BIFIDA ASSOCIATION OF NEW YORK STATE The Spina Bifida Association of New York State (SBANYS) supports individuals and families affected by Spina Bifida across the lifespan through free statewide s… | NY | $357K | 6 | |
| 2 | CEREBRAL PALSY FOUNDATION INC The Cerebral Palsy Foundation advances research, improves healthcare systems, and drives innovation to transform outcomes for people with cerebral palsy. It fo… | NY | $4.7M | 4 | |
| 3 | TIKVAH LAYELED FOUNDATION INC Nonprofit organization based in New York dedicated to supporting individuals affected by cerebral palsy. Provides assistance through referrals for treatment, a… | NY | $147K | 3 | |
| 4 | Ashley Rose Foundation Inc The Ashley Rose Foundation Inc was established in 1996 by Ray and Linda Pitek in memory of their daughter Ashley, who passed away due to complications from spi… | NY | $94K | 2 | |
| 5 | CP EXTENSION INC CP Extension supports families caring for a loved one with cerebral palsy (CP) and a comorbid condition. The organization provides financial grants to alleviat… | NY | $15K | 2 | |
| 6 | Cerebral Palsy Alliance Research Foundation Cerebral Palsy Alliance Research Foundation funds medical research into cerebral palsy and supports the development of assistive technologies for people with d… | NY | $1.9M | 2 | |
| 7 | Spina Bifida of Western New York Inc Spina Bifida of Western New York Inc supports individuals with Spina Bifida and their families across eight counties in Western New York. Founded in 1973, the … | NY | $105K | 2 | |
| 8 | BENEVOLENT & PROTECTIVE ORDER OF ELKS 1702 The BENEVOLENT & PROTECTIVE ORDER OF ELKS 1702 is a fraternal organization based in Massena, NY, focused on serving needy individuals in the North Country regi… | NY | $284K | 1 | |
| 9 | BRAVE LITTLE WARRIORS INCORPORATED Brave Little Warriors supports families affected by infantile spasms, a rare epilepsy disorder, by providing financial assistance for medical equipment, travel… | NY | $11K | 1 | |
| 10 | EPIC LONG ISLAND INC EPIC Long Island provides habilitative clinical and day support services for individuals with developmental and intellectual disabilities, including epilepsy. … | NY | $38.8M | 1 | |
| 11 | EPILEPSY-PRALID INC EPILEPSY-PRALID INC, now known as Empowering People's Independence (EPI), provides comprehensive services for individuals with developmental disabilities, epil… | NY | $54.2M | 1 | |
| 12 | HUDSON VALLEY HIE-ROES FOR HIE INC Hudson Valley HIEroes for HIE, Inc. is a nonprofit supporting children and families in the Hudson Valley of New York affected by Hypoxic-Ischemic Encephalopath… | NY | $26K | 1 | |
| 13 | SOUTH SHORE CHILD GUIDANCE ASSOCIATION INC South Shore Guidance Center provides comprehensive outpatient behavioral health services to children, adolescents, adults, and families in Nassau County, New Y… | NY | $9.5M | 1 | |
| 14 | Steps for Stroke Inc Steps for Stroke Inc is a nonprofit organization based in Glens Falls, NY, focused on supporting stroke and traumatic brain injury survivors and their caregive… | NY | $5K | 1 | |
| 15 | UCP BAYVILLE INCORPORATED UCP BAYVILLE INCORPORATED is a nonprofit organization based in Roosevelt, NY, dedicated to improving the quality of life for individuals with cerebral palsy an… | NY | $11.7M | 1 | |
| 16 | WHEELS OF PROGRESS INC Wheels of Progress Inc. is a New York City-based nonprofit serving people with disabilities and seniors to promote independence, dignity, and community integra… | NY | $3K | 1 |
approaches
Strategies used in this activity group
Approaches extracted from orgs working in this activity group and the groups nested inside it.
- Consumer-Controlled Model 2 orgsBy placing individuals with disabilities in leadership, governance, and service design roles, organizations achieve more effective and dignified outcomes, because lived experience ensures authenticity, relevance, and accountability to community needs. This strategy centers on the principle that people with disabilities must lead the organizations and programs intended to serve them. It distinguishes itself from top-down or professionally driven models by prioritizing self-determination and peer leadership as both a means and an end. While related approaches like peer support or housing-first focus on specific services, this model reshapes organizational power structures to ensure systemic accountability to the disability community.SPINA BIFIDA ASSOCIATION OF NEW YORK STATESpina Bifida of Western New York Inc
- Direct Financial Relief 2 orgsBy providing direct financial assistance to individuals facing serious illness, we reduce economic barriers to care and improve health outcomes, because financial stability is foundational to treatment adherence, mental well-being, and family resilience during medical crises. This strategy centers on addressing the social determinants of health—particularly financial toxicity—by transferring resources directly to patients and families to cover medical and non-medical costs. What distinguishes it from other models is its focus on immediate, unrestricted economic support rather than services or systemic advocacy, with the shared belief that alleviating financial stress is a prerequisite to effective treatment and recovery. While some organizations layer this with research funding or volunteer-driven operations, the core mechanism across all is the removal of financial barriers as a direct lever for improving health outcomes.BRAVE LITTLE WARRIORS INCORPORATEDSpina Bifida of Western New York Inc
- Integrated Care Coordination 2 orgsBy coordinating medical, behavioral, social, and community services into a unified system, we improve health and life outcomes for individuals with intellectual and developmental disabilities, because integrated models reduce fragmentation, enhance access, and ensure holistic, person-centered support. This strategy centers on breaking down silos between health, behavioral, and social service systems through structural integration, care coordination, and person-driven planning. Unlike standalone clinical or social interventions, this approach treats coordination itself as the active ingredient—ensuring that services are not only co-located or jointly managed but also aligned around individual goals, thereby improving continuity, reducing disparities, and increasing engagement. It is distinct from narrower operational practices like sliding-scale fees or peer support, which may be components but do not constitute the full theory of change rooted in systemic integration.SPINA BIFIDA ASSOCIATION OF NEW YORK STATESpina Bifida of Western New York Inc
- Integrated, Culturally Affirming Care 2 orgsBy integrating medical, behavioral, and social services within culturally affirming and community-rooted models, we improve health and social outcomes because trust, accessibility, and holistic support are essential for engagement among marginalized populations. This strategy combines structural integration of services—such as co-locating care and coordinating interdisciplinary teams—with deep cultural attunement, including language access, trauma-informed practices, and alignment with community values. What distinguishes it from narrower models is its dual emphasis on system-level coordination and cultural legitimacy, ensuring that care is not only accessible but also trusted and relevant to the lived experiences of the populations served. It emerges consistently across organizations working with vulnerable elders, refugees, and urban underserved communities, reflecting a shared theory that integration without cultural affirmation fails to reach those most in need.EPIC LONG ISLAND INCSOUTH SHORE CHILD GUIDANCE ASSOCIATION INC
- Story-Based Engagement 2 orgsBy sharing personal narratives and lived experiences, organizations drive awareness, empathy, and action, because stories foster emotional connection and motivate engagement more effectively than data alone. This strategy leverages authentic storytelling—whether from patients, families, or medical professionals—to humanize complex health issues, build public trust, and inspire participation in advocacy, donation, or treatment adherence. While several organizations use education, peer support, or systemic collaboration as primary levers, this cluster is distinct in its reliance on narrative as the core mechanism for change, differentiating it from evidence-driven or infrastructure-focused approaches.BRAVE LITTLE WARRIORS INCORPORATEDHUDSON VALLEY HIE-ROES FOR HIE INC
- Adaptive Equipment Access 1 orgBy providing custom or donated adaptive equipment, we enhance mobility and inclusion, because access to individually appropriate devices enables physical development, independence, and social participation. This strategy centers on overcoming functional and social barriers by delivering tailored mobility solutions—such as prosthetics, adaptive bikes, or wheelchairs—to children and individuals with disabilities. It distinguishes itself from generic assistive aid models by emphasizing customization, developmental appropriateness, and reuse systems that ensure sustained access. Unlike one-size-fits-all approaches, this model treats equipment access as foundational to both physical rehabilitation and psychosocial well-being.HUDSON VALLEY HIE-ROES FOR HIE INC
- Centralized Access Model 1 orgBy creating a single, integrated point of entry to connect individuals with health and human services, we improve access and coordination of care, because unified systems reduce fragmentation, lower barriers to entry, and increase the efficiency and equity of service delivery. This strategy emphasizes system-level simplification by replacing complex, siloed resource navigation with a streamlined, often technology-enabled referral infrastructure—like 2-1-1 helplines or personalized navigation services. What distinguishes it from related approaches is its focus on structural accessibility rather than individual capacity building or funding models, ensuring that even vulnerable or isolated individuals can efficiently find and use essential services. While other strategies rely on grassroots organizing or collective giving, this model prioritizes system integration and user-centered design to scale impact across diverse populations.SPINA BIFIDA ASSOCIATION OF NEW YORK STATE
- Chronic Disease Model of Addiction 1 orgBy treating addiction as a chronic, relapsing brain disease requiring long-term medical management, organizations improve recovery outcomes and reduce stigma, because this framework shifts public and clinical perception from moral failure to treatable health condition, enabling evidence-based interventions and sustained care. This strategy unifies a shared theory of change across multiple organizations that reframe addiction through a neurobiological and clinical lens, emphasizing ongoing treatment rather than one-time interventions. It distinguishes itself from peer strategies by rejecting abstinence-only or willpower-based models in favor of integrated, medically grounded care that includes medication-assisted treatment, relapse prevention, and systemic support—aligning closely with how diabetes or hypertension are managed. While other approaches focus on harm reduction or individual strengths, this model prioritizes clinical legitimacy and long-term disease management as the pathwaSOUTH SHORE CHILD GUIDANCE ASSOCIATION INC
- Community-Led Systems Change 1 orgBy centering community leadership, lived experience, and collective agency in design and decision-making, we produce sustainable and equitable social change because solutions rooted in local knowledge and power are more legitimate, adaptive, and effective at transforming systems. This strategy unifies a diverse set of organizations around a shared theory of change: lasting impact emerges not from top-down interventions, but from shifting power, resources, and authority to the communities most affected by injustice. It distinguishes itself from service-delivery or expert-driven models by prioritizing local ownership, relational trust, and systemic transformation—whether through survivor-led advocacy, faith-based collaboration, interdisciplinary co-creation, or intergenerational movement building. While operational expressions vary (e.g., legal advocacy, care infrastructure, or educational access), the core mechanism is consistent: empowering frontline voices as the primary agents of chSPINA BIFIDA ASSOCIATION OF NEW YORK STATE
- Family and Peer Empowerment 1 orgBy equipping families and individuals with disabilities with knowledge, advocacy skills, and decision-making authority, we improve developmental, educational, and life outcomes, because lived experience and caregiver engagement enable more effective navigation of systems and personalized, dignified support. This strategy centers on building internal capacity within families and individuals through education, skill-building, and leadership opportunities, distinguishing it from top-down service models. It integrates peer-led support, self-direction, and rights-based advocacy across life domains—from education to employment—unifying diverse programs under a shared belief that empowerment, not just service delivery, drives lasting change.EPIC LONG ISLAND INC
- Peer-Led Support 1 orgBy integrating staff with lived experience into care delivery, we produce stronger engagement and better recovery outcomes, because shared experience builds trust, reduces stigma, and models achievable recovery pathways. This strategy centers peer-led support as a core mechanism for building trust and fostering authentic connections in mental health and addiction recovery. It distinguishes itself from purely clinical models by prioritizing relational credibility and experiential mentorship, making services more accessible and relatable. While other strategies focus on housing, clinical integration, or outreach, this approach consistently leverages lived experience across organizations as the active ingredient in engagement and sustained recovery.HUDSON VALLEY HIE-ROES FOR HIE INC
- Person-Centered Planning 1 orgBy tailoring services to individual goals, strengths, and life aspirations through collaborative planning, the organization fosters autonomy, self-determination, and long-term community integration, because individual agency and dignity are foundational to sustained personal growth and meaningful outcomes. This strategy centers on treating each individual as the expert of their own life, using structured planning processes to co-create goals and supports that reflect personal preferences and aspirations. It differs from more standardized or system-driven models by prioritizing flexibility, ongoing adaptation, and the individual’s voice in all decisions—whether in education, employment, housing, or care—making it a foundational theory of action across multiple service domains.EPIC LONG ISLAND INC
- Venture Philanthropy Model 1 orgBy applying venture philanthropy principles to fund high-risk, high-reward research, we accelerate breakthrough therapies, because strategic, flexible investment can de-risk early-stage science and attract further capital. This strategy involves treating philanthropic funding like venture capital—targeting innovative, early-stage research with high transformative potential, often in environments where traditional funders hesitate to invest. It distinguishes itself from conventional grantmaking by emphasizing financial discipline, reinvestment of returns, and active management akin to venture capital, as seen in both EB Research Partnership and the Alzheimer’s Drug Discovery Foundation.Cerebral Palsy Alliance Research Foundation