named programs · 6 · from sources
What they call their work
Adaptive Summer Camp Guide
Resource connecting families to adaptive summer camps across the U.S. for children with cerebral palsy
CP Health Podcast
Podcast series covering health topics across the lifespan for individuals with cerebral palsy, including oral health and adult care transitions
CP360
Global coalition co-founded by the Cerebral Palsy Foundation, Cerebral Palsy Alliance, and International Cerebral Palsy Society to improve health outcomes for people with cerebral palsy worldwide
CPF Breakthrough Summit
Gathering of global scientists, clinicians, and innovators to accelerate progress toward detection, prevention, and cure of cerebral palsy
Early Cerebral Palsy Health Summit
Annual event focused on advancing early detection and intervention for cerebral palsy, hosted in partnership with institutions like Kennedy Krieger Institute
Early Intervention Training Courses
Training programs for clinicians on upper limb intervention and early detection methods for children with cerebral palsy, offered in locations such as Atlanta, Georgia
activities · 7 groups
What they do
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Neurological Disability Support & Advocacy 4 activities
- Co-founding and supporting CP360, a global cerebral palsy coalitionCo-founded CP360, the first global coalition for cerebral palsy, in partnership with Cerebral Palsy Alliance and the International Cerebral Palsy Society, to advance collaboration, advocacy, and innovation in the field.
- Convening the CPF Breakthrough Summit for global cerebral palsy collaborationOrganizes the CPF Breakthrough Summit, a three-day collaborative forum in Los Angeles that brings together global scientists, clinicians, innovators, and individuals with lived experience of cerebral palsy to accelerate progress in research and care.
- Funding and leading research initiatives to improve cerebral palsy detection and careSupports and leads medical and research initiatives aimed at improving the lives of people with cerebral palsy, including efforts to halve the age at which cerebral palsy is detected. Maintains and shares a comprehensive list of cerebral palsy clinical trials and research studies in the U.S. and globally.
- Organizing the annual Early Cerebral Palsy Health SummitHosts the annual Early Cerebral Palsy Health Summit at the Kennedy Krieger Institute in Baltimore, MD, focused on advancing early detection and intervention for cerebral palsy.
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Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Advocating for disability rights at the United NationsParticipated as a registered member at the 18th Conference of States Parties (COSP18) to the Convention on the Rights of Persons with Disabilities at the United Nations Headquarters in New York City to advance global disability rights.
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Inclusive Playground Development 1 activity
- Co-creating adaptive ride-on cars for children with cerebral palsyCo-created an accessible, one-of-a-kind ride-on car for a child with cerebral palsy as part of a collaboration during National Cerebral Palsy Awareness Month, demonstrating hands-on support for mobility and inclusion.
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Medical Research Funding 1 activity
- Funding patient-centered cerebral palsy research engagementReceived funding from the Eugene Washington PCORI Engagement Award Program to support patient-centered research engagement among adults with cerebral palsy, facilitating inclusive research practices and stakeholder collaboration.
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Specialized Summer Camps for Disabilities 1 activity
- Launching an Adaptive Summer Camp Guide for familiesLaunched the Adaptive Summer Camp Guide for 2025 to help families across the U.S. find inclusive summer camp opportunities for children with cerebral palsy.
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Podcast and Radio Production 1 activity
- Producing the CP Health Podcast for educational outreachProduces the CP Health Podcast, which delivers educational content on health topics such as oral health for individuals with cerebral palsy across the lifespan.
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Specialized Therapy for Children with Disabilities 1 activity
- Providing early intervention training for cliniciansOffers training courses for clinicians working with children with cerebral palsy, including in multi-sensory and constraint-induced movement therapy, to improve early intervention practices.
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financials · form 990 · fy2023
revenue
Total revenue$4.69M
Contributions & grants$4.19M89%
Program service revenue$489K10%
Investment income$67K1%
Other revenue$-62K
expenses
Total expenses$4.68M
Program expenses96%
Admin / overhead3%
Fundraising1%
Salaries & benefits$874K
Grants paid out$2.76M
Largest expense lineCompensation
balance sheet
Total assets$2.79M
Cash$1.63M
Investments$9K
Liabilities$258K
Net assets$2.53M
Liquid reserves4.2 mo
5 years on record · 2019–2023 · YoY revenue +16.5%
leadership · form 990 part vii · fy2023
Who runs it
paid leadership · 4
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| RACHEL JORDAN | EXECUTIVE DIRECTOR | 38 | $253K |
| CYNTHIA FRISINA | VICE PRESIDENT OF PARTNERSHIPS | 38 | $150K |
| REBECCA LAM | VP OF PROGRAMS AND OPERATIONS | 38 | $139K |
| DEBORAH FINK | VP OF EDUCATION AND INCLUSION | 38 | $130K |
board members · 13
- DR ANDREA DUNCAN — DIRECTOR
- DR DEBORAH GAEBLER-SPIRA — DIRECTOR
- EILEEN FOWLER — DIRECTOR
- GERALD DUNDON — DIRECTOR
- ILA ECKHOFF — CHAIRMAN
- JAMES P VOLCKER — V.P & SECRETARY
- KARA BUCKLEY — DIRECTOR
- LEVEE BROOKS — DIRECTOR
- LILY COLLISON — DIRECTOR
- MICHELLE KASSNER — DIRECTOR
- PATRICK DOWNES — TREASURER
- PETER W SHAPIRO — DIRECTOR
- WENDY GARFINKEL — DIRECTOR (UNTIL 11/2023)
relationships · 9
Who they work with
- Cerebral Palsy Alliance Partner — Co-founder of CP360, the first global coalition for cerebral palsy.
- Cerebral Palsy Alliance Partner — Co-founding partner in CP360, the first global coalition for cerebral palsy
- International Cerebral Palsy Society Partner — Co-founder of CP360, the first global coalition for cerebral palsy.
- International Cerebral Palsy Society Partner — Co-founding partner in CP360, the first global coalition for cerebral palsy
- Lexus Partner — Collaborated with CPF to design and create an accessible ride-on vehicle for a child with cerebral palsy.
- Patient-Centered Outcomes Research Institute (PCORI) Funder — Awarded funding to CPF through its Eugene Washington PCORI Engagement Award Program for patient-centered research among adults with cerebral palsy.
- Universal Homes Partner — Collaborated with CPF on initiatives celebrating accessibility, including multimedia content and accessible product design.
- World Health Organization Partner — Collaborated with at the 78th World Health Assembly in Geneva as part of launching CP360, the global coalition for cerebral palsy.
- World Health Organization Partner — Collaborates with the Cerebral Palsy Foundation at the World Health Assembly on global cerebral palsy initiatives
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Research and Innovation Modelmethodology: research-innovation-collaboration modelBy uniting research, innovation, and cross-sector collaboration, we accelerate progress in cerebral palsy outcomes because breakthroughs emerge more effectively through shared expertise and coordinated action across science, healthcare, and advocacy.
- Global Coalition Advocacymethodology: global-coalition-buildingBy building international coalitions, we amplify systemic advocacy for cerebral palsy because collective action across borders strengthens policy influence and accelerates widespread change.