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HANDICAPPED CHILDREN'S ASSOCIATION OF SOUTHERN NEW YORK INC

JOHNSON CITY, NY · EIN 150516395 · Form 990 · FY2024 · NTEE P800 · Human Services · Large ($10M-$50M) · hcaserves.com
revenue
$23.9M
expenses
$22.6M
net assets
$15.1M
employees
495
volunteers
11
program ratio
91%
mission · from form 990

CELEBRATE AND EMPOWER PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES IN OUR COMMUNITY.

profile · synthesized from sources

Nonprofit serving individuals with intellectual and developmental disabilities across Southern New York. Provides clinical therapies, residential habilitation, early intervention, and behavioral support services for children and adults. Operates programs in Johnson City and Binghamton, with a mission to empower individuals through personalized, community-integrated care. Founded in 1947.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $3.30M
    COMMUNITY SUPPORT SERVICES (INCLUDING CLINIC SETTINGS). THE AGENCY PROVIDES SERVICES TO ADOLESCENTS AND ADULTS WITH DEVELOPMENTAL DISABILITIES. THE AGENCY PROVIDES PHYSICAL, OCCUPATIONAL AND SPEECH THERAPIES, AND DIAGNOSTIC EVALUATIONS IN A CLINICAL SETTING FOR ITS CLIENTS. SERVICES INCLUDE RESIDENTIAL HABILITATION, RESPITE CARE AND SERVICE COORDINATION. APPROXIMATELY 76,300 SERVICES PROVIDED.
  2. #2 $3.27M
    PRESCHOOL/EARLY INTERVENTION PROGRAM. THE AGENCY PROVIDES INFANT TODDLER AND PRE-SCHOOL DEVELOPMENT PROGRAMS TO ITS CLIENTS. SERVICES INCLUDE PHYSICAL, OCCUPATIONAL AND SPEECH THERAPIES, DIAGNOSTIC EVALUATIONS AND FAMILY TRAINING. 296 CHILDREN SERVED.
named programs · 4 · from sources

What they call their work

Community Support Services
Provides physical, occupational, and speech therapies; diagnostic evaluations; residential habilitation; respite care; and service coordination for adolescents and adults with developmental disabilities.
FSS Behavioral Support Program
Provides behavioral support services for children, teens, and adults with developmental disabilities who face behavior challenges such as sensory issues or difficulty with routines.
Preschool/Early Intervention Program
Offers infant-toddler and preschool development programs including therapies, diagnostic evaluations, and family training for children ages 3-5 with developmental disabilities.
Self-Advocacy Initiative
Empowers individuals with developmental disabilities to make their own choices and advocate for themselves through education, resources, and leadership opportunities.
activities · 14 groups

What they do

  • Disability Rights Advocacy & Self-Advocacy Empowerment 2 activities
    • Advocate for civil rights of people with intellectual and developmental disabilities
      Engages in advocacy efforts to protect and advance the civil rights of individuals with intellectual and developmental disabilities.
    • Engage in community and academic partnerships for inclusion
      Collaborates with Binghamton University's College of Community and Public Affairs to promote understanding of disabilities and encourage inclusive practices in future careers.
  • Supported Employment for Developmental Disabilities 2 activities
    • Deliver behavioral support services in home and community settings
      Provides person-centered, family-focused behavioral support services for children, teens, and adults with developmental disabilities experiencing behavior challenges, delivered in home and community environments.
    • Promote community integration and person-centered planning
      Provides individualized services designed to promote community participation and integration, based on the interests, strengths, and preferences of individuals with intellectual and developmental disabilities.
  • Residential Support for Developmental Disabilities 2 activities
    • Offer respite, habilitation, counseling, and employment support services
      Provides a range of individualized supports including respite care, behavioral habilitation, counseling, and employment services tailored to the strengths and preferences of individuals with intellectual and developmental disabilities.
    • Operate residential group homes for individuals with intellectual and developmental disabilities
      Manages 15 residential group homes providing habilitation and support services for individuals with intellectual and developmental disabilities.
  • Special Education Preschool Programs 1 activity
    • Deliver early childhood education through integrated preschool classrooms
      Operates 10 integrated preschool classrooms across three locations, serving children ages 3–5, including those with developmental disabilities and typically developing peers, with flexible scheduling options.
  • Healthcare Compliance and Ethics Programs 1 activity
    • Ensure organizational compliance and service quality
      Manages agency compliance, develops policies and protocols, and requires reporting and investigation of incidents to ensure high-quality services and continuous improvement.
  • Community Festival & Event Production 1 activity
    • Host annual ADA Celebration event
      Organizes the annual ADA Celebration at Otsiningo Park to commemorate the anniversary of the Americans with Disabilities Act, featuring community engagement and educational activities.
  • Facility-Based Service Delivery 1 activity
    • Operate and maintain a new facility for expanded services
      Opened and operates a new facility at 114 Clinton Street in Binghamton, NY, officially inaugurated on February 19, 2026, to support expanded programming and services.
  • Teacher and Staff Appreciation Activities 1 activity
    • Organize annual meeting and staff recognition events
      Hosts an annual meeting to bring together board members, staff, individuals served, and community members for recognition and celebration, including the “Celebrating Our Staff” awards and the GOT Heart Award drawing.
  • Charity Golf Tournament Fundraiser 1 activity
    • Organize fundraising events to support programs
      Hosts a golf tournament to raise funds for programs serving individuals with intellectual and developmental disabilities.
  • Specialized Therapy for Children with Disabilities 1 activity
    • Provide clinical and therapeutic services for individuals with developmental disabilities
      Delivers physical, occupational, and speech therapies, diagnostic evaluations, and service coordination in clinical settings for adolescents and adults, with annual service volumes ranging from 71,000 to 92,000 services.
  • Adaptive Sports Programs 1 activity
    • Provide free recreational and social activities for individuals with disabilities and families
      Offers free community events featuring games, crafts, food, and resource connections to support social engagement for individuals with disabilities and their families.
  • Early Childhood Education & Development Programs 1 activity
    • Provide infant and toddler developmental programs with family training
      Offers early intervention services including physical, occupational, and speech therapies, diagnostic evaluations, and family training for children from infancy through preschool, serving approximately 300 children annually.
  • Recognition and Awards Programs 1 activity
    • Recognize employee service milestones
      Honors staff for long-term service commitments, with recent recognition of 25 employees for milestones ranging from 5 to 25 years.
  • Uncategorized 1 activity
    • Offer sign-on bonuses to recruit Direct Support Professionals
      Provides sign-on bonuses of $250, $500, or $750 for part-time and full-time Direct Support Professionals to support staffing and service delivery.
financials · form 990 · fy2024
revenue
Total revenue$23.86M
Contributions & grants$236K1%
Program service revenue$23.13M97%
Investment income$451K2%
Other revenue$44K
expenses
Total expenses$22.61M
Program expenses91%
Admin / overhead9%
Fundraising0%
Salaries & benefits$19.55M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$19.12M
Cash$11.08M
Investments$0
Liabilities$4.03M
Net assets$15.09M
Liquid reserves5.9 mo
5 years on record · 2020–2024 · YoY revenue +11.3%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 7
NameTitleHours/wkCompensation
LISA KOST EXECUTIVE DIRECTOR 40 $186K
GEORGE MBEGO DIRECT SUPPORT PROFESSIONA 95 $148K
BANALATA NAYAK DIRECT SUPPORT PROFESSIONA 84 $137K
PRASANT DIGAL DIRECT SUPPORT PROFESSIONA 85 $130K
DAVID CASE MANAGER/DSP 78 $128K
THERESA DEANE CHIEF FINANCIAL OFFICER 40 $117K
JOSEPH MARIN MANAGER/DSP 68 $112K
board members · 11
  • ASHLEY FOX — TREASURER
  • CATHERINE RYAN — VICE PRESIDENT
  • CONRAD WHYTE — BOARD MEMBER
  • GAIL BARTON — BOARD MEMBER
  • HANS DALMOLEN — BOARD MEMBER
  • JESSICA MIDYETTE — BOARD MEMBER
  • LARS MEAD — PRESIDENT
  • LINDA REYNOLDS — BOARD MEMBER
  • PEGGY THOMAS — BOARD MEMBER
  • WILLIAM SANDS — SECRETARY
  • XAN PENROSE — BOARD MEMBER
relationships · 13

Who they work with

  • ACCESS Partner — Collaborates with ACCESS to support vocational rehabilitation and self-advocacy initiatives.
  • Binghamton University Partner — Collaborates with Binghamton University's College of Community and Public Affairs through the Fleishman Center for Career and Professional Development to host student engagements.
  • Binghamton University Partner — Collaborates with Binghamton University’s College of Community and Public Affairs and the Fleishman Center for Career and Professional Development to host student visits and exchanges.
  • CP State Network — Member of the CP State Affiliate network.
  • Kathy Corse Partner — Author and donor who contributes $2 to HCA for each copy of her book "All That I Had" sold.
  • National Association of Councils on Developmental Disabilities (NACDD) Partner — Provides self-advocacy resources through partnership with NACDD.
  • New York State Justice Center for the Protection of People with Special Needs Government — Agency responsible for receiving incident reports involving people with special needs
  • Nonstop Health Partner — Provided food sponsorship for HCA’s 79th Annual Meeting.
  • OPWDD Government — Collaborates with OPWDD on rights, responsibilities, and advocacy initiatives for people with developmental disabilities.
  • OPWDD Government — Partner agency for reporting incidents or abuse
  • SANYS Partner — Partners with SANYS to provide resources and support related to rights and advocacy for individuals with developmental disabilities.
  • Self-Advocacy Committee Partner — Committee composed of individuals with disabilities who lead and participate in HCA events to promote self-advocacy.
  • The Links at Hiawatha Landing Partner — Host venue for the 2026 golf tournament supporting HCA.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Integrated Inclusive Education
    methodology: inclusive_education
    By placing children with and without developmental disabilities in the same classrooms, the organization promotes inclusive development and social integration because shared learning environments normalize differences and build mutual understanding.
  • Person-Centered Planning and Support
    methodology: person-centered_planning
    By using individualized, person-centered planning and care, the organization improves community integration, daily functioning, and participation outcomes for individuals with developmental disabilities because services are aligned with personal interests, strengths, and family needs.
  • Platinum Rule Care Model
    methodology: platinum-rule_care
    By treating individuals as they wish to be treated—the platinum rule—the organization fosters dignity and improves engagement in services because it centers personal preferences and autonomy in all interactions.
  • Self-Advocacy Through Leadership and Information
    methodology: self-advocacy_empowerment
    By engaging individuals with disabilities as leaders and supporting confidence through information sharing, the organization builds self-determination and empowerment because it transfers agency directly to the individuals served.