named programs · 5 · from sources
What they call their work
HIE Child Gift Program
Provides adaptive and supportive equipment such as trikes, seating systems, orthopedic shoes, and toys not covered by insurance to children with HIE
HIEroes Golf Classic Tournament
Annual golf tournament fundraiser held at Rip Van Winkle Country Club in Palenville, NY to support local HIE families and advocacy efforts
Holiday Toy Drive
Annual toy collection event in Schenectady and Saugerties that gathers new, unwrapped toys for children at the Ronald McDonald House of Albany
NICU Support & Bereavement Bags
Donates care bags to the Bernard and Millie Duker Children’s Hospital NICU for newly diagnosed HIE families and bereavement bags for families experiencing loss
Strength in Strides 5K
Annual community 5K event in Saugerties, NY that raises awareness and funds for families affected by HIE; includes family-friendly activities and celebration of HIE-impacted children
activities · 4 groups
What they do
-
Neurological Disability Support & Advocacy 1 activity
- Engages in advocacy and awareness efforts for HIEConducts advocacy work to raise public awareness about Hypoxic-Ischemic Encephalopathy (HIE) in the Hudson Valley and beyond, supporting broader community understanding and engagement.
-
-
Charity Event Organization 1 activity
- Organizes community events and fundraising activities for HIE-affected familiesHosts inclusive events such as the annual Strength in Strides 5K, holiday toy drives, family meetups, and the Hudson Valley HIEroes Golf Classic to connect families, raise awareness, and generate funds. Events have drawn over 375 participants and raised more than $13,500.
-
-
Adaptive Equipment Provision 1 activity
- Provides local support and resources for families affected by HIEOffers direct support to newly diagnosed families in the Hudson Valley, including gift cards, meal drop-offs, cleaning assistance, peer emotional support, and NICU support bags. Provides adaptive equipment such as trikes, supportive seating, orthopedic shoes, and adaptive toys through its HIE child gift program.
-
-
Uncategorized 1 activity
- Operates as a parent-led organization to strengthen community supportIs led by parents, caregivers, and advocates with lived and professional experience of HIE, who guide the organization’s mission and build capacity through board leadership and community engagement.
-
financials · form 990EZ · fy2025
revenue
Total revenue$26K
Contributions & grants$18K70%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$22K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$4K
Cash—
Investments—
Liabilities—
Net assets$4K
2 years on record · 2024–2025
leadership · form 990 part vii · fy2025
Who runs it
board members · 3
- Amber Pasquerella — Board member
- Michelle Stroe — Board member
- Sue Gage — Board member
relationships · 11
Who they work with
- Albany Medical Center Partner — Collaborates with Albany Medical Center to support families affected by HIE and highlight access to specialized neonatal care.
- Albany Medical Center Partner — Partner hospital where NICU support bags and bereavement bags were donated to families affected by HIE.
- Bernard & Millie Duker Children’s Hospital at Albany Medical Center Partner — Recognized Logan, a child supported by Hudson Valley HIEroes, as the 2026 Miracle Child Champion.
- Bernard and Millie Duker Children’s Hospital Partner — Partners with the Bernard and Millie Duker Children’s Hospital to promote awareness of HIE and the importance of specialized pediatric care.
- Facebook Partner — Platform used to share information and raise awareness about HIE.
- Poppy Beauty Company Partner — Hosts Hudson Valley HIEroes' toy drive event at its location in Schenectady, providing space and community access for the event.
- Rip Van Winkle Country Club Partner — Host venue for the HIEroes Golf Classic tournament.
- Ronald McDonald House of Albany Partner — Partner organization receiving toy donations for children staying at the facility.
- Ronald McDonald House of Albany Partner — Recipient of toys collected through the organization's holiday toy drives.
- The Ronald McDonald House Partner — Collaborates on toy drive events to support children and families in need, with donations directed to The Ronald McDonald House in Albany.
- Tyler Partner — Family member whose HIE diagnosis informed the family's involvement with Hudson Valley HIEroes.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Adaptive Equipment Access as Dignity-Enhancing Supportmethodology: adaptive_equipment_accessBy providing medically necessary adaptive equipment not covered by insurance, the organization improves quality of life and inclusion for children with HIE, because access to essential tools enables participation, joy, and family stability.
- Peer-Led Community Support and Empowermentmethodology: lived_experience_ledBy centering leadership and support from individuals with lived experience of HIE, the organization builds authentic peer networks that reduce isolation and increase engagement, because shared experience fosters trust, mutual understanding, and sustained emotional resilience.
- Story-Based Awareness and Advocacymethodology: story_based_advocacyBy amplifying personal stories of families affected by HIE through social media and events, the organization increases public awareness and reduces stigma, because narrative engagement fosters empathy, connection, and action more effectively than data alone.