irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $749KREMARKABLE IS A PROGRAM FOCUSED ON HELPING TECH STARTUPS TO POSITIVELY IMPACT PEOPLE WITH DISABILITIES AND AMPLIFY HUMAN POTENTIAL.
named programs · 2 · from sources
What they call their work
Funding CP Research
Grants funding to researchers in the United States focused on cerebral palsy, with the goal of advancing treatments, prevention, and ultimately finding a cure.
Remarkable US
Nation's first nonprofit assistive technology accelerator, providing coaching, user testing, and go-to-market support to startups developing solutions for people with disabilities.
activities · 6 groups
What they do
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Neurological Disability Support & Advocacy 2 activities
- Co-leading international summits and collaborative research networksCo-chairs the International Cerebral Palsy Prevention and Cure Summits and collaborates with international networks such as the Australian and New Zealand Neonatal Surgery Network to advance global research, prevention, and clinical care for cerebral palsy.
- Supporting global research and innovation in cerebral palsy and disabilityAdvances scientific research and technology innovation for people with cerebral palsy and other disabilities worldwide through partnerships, co-authoring international clinical guidelines, and supporting large-scale research initiatives such as the Australian National CP Register and the International CP Genomics Consortium.
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Medical Research Funding 1 activity
- Funding US-based cerebral palsy research through project and fellowship grantsFunds project grants for researchers and fellowship grants for emerging scientists focused on advancing cerebral palsy research in the United States, with $44.4 million awarded to date.
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Charitable Grantmaking to Specific Causes 1 activity
- Operating a monthly donor program with participatory grant votingRuns a monthly donor program that funds advancements in science and technology for people with disabilities and enables donors to vote on the recipient of an annual grant.
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Startup Acceleration & Business Growth Support 1 activity
- Operating the Remarkable assistive technology accelerator programsRuns Remarkable US, the nation's first nonprofit assistive technology accelerator, and the REMARKABLE program to support disability technology startups; nearly 50 startups have raised over $28 million since 2016 to develop accessible solutions for people with disabilities.
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Charity Event Organization 1 activity
- Organizing STEPtember and team-based physical activity campaignsOrganizes STEPtember, an annual September campaign that engages global participants in tracking steps or converting activities like cycling and pilates to raise funds and support science and technology innovation for people with disabilities; also operates team programs for athletes to participate in races and physical events.
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Community Health Equity Initiatives 1 activity
- Supporting family and community engagement in researchDevelops and supports Family Engagement in Research (FER) programs and culturally grounded assistive technology solutions for Tribal Nations through community-driven collaboration to promote equitable stakeholder involvement in research and innovation.
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financials · form 990 · fy2024
revenue
Total revenue$1.91M
Contributions & grants$2.11M110%
Program service revenue$00%
Investment income$10K1%
Other revenue$-207K
expenses
Total expenses$2.41M
Program expenses66%
Admin / overhead6%
Fundraising28%
Salaries & benefits$1.44M
Grants paid out$469K
Largest expense lineCompensation
balance sheet
Total assets$977K
Cash$140K
Investments$537K
Liabilities$366K
Net assets$611K
Liquid reserves3.4 mo
4 years on record · 2020–2024 · YoY revenue -34.0%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 5
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| CHRIS OLVER | SVP, INNOVATION/INCOMING E.D. | 40 | $241K |
| MOLLY LEVITT | DIRECTOR of REMARKABLE US | 40 | $163K |
| JOCELYN COHEN | VP of Education & Community | 40 | $143K |
| ELIZABETH BOYTE | DIRECTOR OF DEVELOPMENT | 40 | $131K |
| BENJAMIN KAUFMAN | Director of Campaigns | 40 | $123K |
board members · 8
- ANDREW BUCHANAN — BOARD MEMBER
- DAVID BERMAN — TREASURER
- DR BEENA KAMATH-RAYNE — BOARD MEMBER
- JEAN-LOUIS LELOGEAIS — BOARD CHAIR (LEFT 12/24)
- JOHN SINTRAS — BOARD MEMBER (LEFT 12/24)
- LIZETTE DUNAY — INTERIM CHAIR (ELECT)
- PAUL GROSS — BOARD MEMBER
- TREVOR CROKER — BOARD MEMBER
relationships · 32
Who they work with
- AAMC Funder — Co-funder of research projects also supported by Cerebral Palsy Alliance Research Foundation.
- Amber Capital Partner — Employer of Cameron Brown, member of the Council of Governors.
- American Academy of Cerebral Palsy and Developmental Medicine Network — Kari Pederson has presented research at this professional organization's conferences.
- American Academy of Pediatrics Partner — Funded research conducted by Dr. Beena Kamath-Rayne, who serves as Vice President, Global Newborn and Child Health at the organization.
- American Academy of Pediatrics Partner — Joint publication on Neonatal Encephalopathy and Cerebral Palsy citing Professor Badawi's work as the "best available evidence".
- American College of Obstetricians and Gynaecologists Partner — Joint publication on Neonatal Encephalopathy and Cerebral Palsy citing Professor Badawi's work as the "best available evidence".
- CPARF Network — Network member highlighted in the Gratitude Report 2015-2025
- Cerebral Palsy Alliance Partner — Collaborates closely and frequently with CPARF, including through shared leadership roles.
- Cerebral Palsy Alliance Partner — Collaborates with CPA to establish research initiatives, including the founding of the Cerebral Palsy Alliance Research Institute.
- Cerebral Palsy Alliance Research Institute Partner — Professor Badawi serves as Chair of Cerebral Palsy Research at the institute.
- Gates Foundation Funder — Co-funder of research projects also supported by Cerebral Palsy Alliance Research Foundation.
- Hudson Bay Partner — Employer of Juliette Cottrill, member of the Council of Governors.
- IMPACT for CP Partner — Member of the steering group of the International Multidisciplinary Prevention and Cure Team for Cerebral Palsy.
- Johns Hopkins Center for Indigenous Health Partner — Dr. Joshuaa D. Allison-Burbank serves as a lead investigator at the center, directing projects focused on developmental delay prevention and early language acquisition in Indigenous communities.
- Keller Supply Partner — Employer of David Yusen, member of the Council of Governors.
- Kirkland & Ellis LLP Partner — Employer of Thomas Laughlin, Chair of the Council of Governors.
- Kristie Hagen Partner — Contact person for participation in STEPtember outside of the annual September campaign
- NIH Funder — Co-funder of research projects also supported by Cerebral Palsy Alliance Research Foundation.
- National Institutes of Health Government — Federal agency whose funding levels for cerebral palsy research are contrasted with CPARF's strategic funding approach.
- PwC Partner — Employer of Dustin Bartolomeo-Damon, member of the Council of Governors.
- Remarkable Partner — Partnership with an Australia-based start-up accelerator to support disability technology innovation through the Remarkable US program.
- Remarkable US Partner — CPARF launched Remarkable US as a nonprofit assistive technology accelerator to support startups developing accessible solutions.
- STEPtember Partner — Collaborates on STEPtember, an annual campaign encouraging global participation in movement challenges to raise funds for accessibility and innovation.
- STEPtember Partner — Collaborates on an annual campaign that combines fundraising and physical activity challenges to support accessibility.
- Scientific Advisory Board Partner — Five-member board guiding CPARF's research funding strategy and scientific direction.
- Scientific Advisory Board Partner — Guides CPARF's research funding decisions and scientific priorities.
- University of Texas Health Science Center at Houston Government — Employer of Jaya Kala, MD, member of the Council of Governors.
- WPP Partner — Employer of Chiara Cummings, member of the Council of Governors.
- Yuhaaviatam of San Manuel Nation Partner — Supports CPARF’s Indigenous Assistive Technology Initiative to develop culturally grounded assistive technology for Tribal Nations.
- dedicated foundations Partner — Collaborates with dedicated foundations to advance disability inclusion and accessibility.
+ 2 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Accelerated Assistive Technology Innovationmethodology: disability_tech_acceleratorBy using a nonprofit-funded startup accelerator model with impact-centered coaching and global networks, we accelerate the development and real-world adoption of assistive technologies because it combines innovation support with equity-aligned go-to-market strategies.
- Equitable Co-Design with Lived Experiencemethodology: family_engagement_in_researchBy integrating people with lived experience—families, individuals with CP, and disabled communities—as equal partners in research and innovation, we increase the relevance, adoption, and impact of solutions because they are shaped by the people they serve.
- Global Collaboration for Research Translationmethodology: international_research_collaborationBy fostering international research collaboration and cross-national sharing of innovations, we improve outcomes for people with cerebral palsy because it enables faster dissemination of breakthroughs and avoids duplication of effort across research ecosystems.
- Research-Driven Innovation with Lifespan Focusmethodology: research_driven_innovationBy funding a balanced portfolio of research across the entire lifespan—from early intervention to adult care—we produce better outcomes for people with cerebral palsy because it ensures solutions are relevant at every stage of life and accelerates real-world impact through implementation science.