COMMON MAPS
Map version new-york activity top-down
Main site Contact
Menu
↑ parent activity group ·
research dossier

Ashley Rose Foundation Inc
MASSAPEQUA, NY · EIN 113308775 · Form 990 · FY2024 · NTEE G54 · Voluntary Health Associations · Micro (<$100K)
revenue
$94K
expenses
$68K
net assets
$516K
employees
0
program ratio
100%
mission · from form 990

THE ASHLEY ROSE FOUNDATION WAS FORMED IN 1996 BY RAY & LINDA PITEK IN MEMORY OF THEIR DAUGHTER ASHLEY WHO WAS LOST DUE TO COMPLICATIONS RELATING TO SPINA BIFIDA. THE THREEFOLD PURPOSE OF THE FOUNDATION IS 1)TO INCREASE THE PUBLIC'S AWARENESS OF SPINA BIFIDA AND THE BENEFIT OF TAKEN FOLIC ACID, 2)PROVIDE SUPPORT TO CHILDREN HAVING SPINA BIFIDA AS WELL AS TO THEIR FAMILIES, AND 3)FUND RESEARCH TOWARD THE PREVENTION OF SPINA BIFIDA. REGARDING THE FIRST TWO OBJECTIVES, THE INITIAL FOCUS OF THE FOUNDATION WAS TO SPONSOR VARIOUS ACTIVITIES WHICH RESULTED IN PROVIDING FINANCIAL SUPPORT TO CHILDREN AND THEIR FAMILIES AFFECTED BY SPINA BIFIDA. THE FOUNDATION ALSO COLLABORATED WITH THE TRI-STATE SPINA BIFIDA ASSN IN ESTABLISHING THE TELECOMMUNITY PROGRAM. THE FOUNDATION BELIEVES THAT THE INFORMATION AND SUPPORT THAT IS PROVIDED TO FAMILIES AND INDIVIDUALS WITH SPINA BIFIDA THROUGH THIS PROGRAM CANNOT BE FOUND ANYWHERE ELSE IN THE REGION. IN ADDITION, THE TELEGROUP SESSIONS PROVIDE OPPORTUNITIES

profile · synthesized from sources

The Ashley Rose Foundation Inc was established in 1996 by Ray and Linda Pitek in memory of their daughter Ashley, who passed away due to complications from spina bifida. The foundation focuses on increasing public awareness about spina bifida and the importance of folic acid, providing support to affected children and families, and funding research toward prevention. It has collaborated with the Tri-State Spina Bifida Association on support programs.

named programs · 1 · from sources

What they call their work

Telecommunity Program
Collaborative program with the Tri-State Spina Bifida Association providing information and support to individuals and families affected by spina bifida through telehealth sessions
activities · 2 groups

What they do

  • Neurological Disability Support & Advocacy 2 activities
    • Collaborating to establish the Telecommunity Program
      Partnered with the Tri-State Spina Bifida Association to create the Telecommunity Program, which likely expands access to support and resources through virtual means.
    • Supporting children and families affected by spina bifida
      Provides direct support services to children and families impacted by spina bifida, including resources and programming aimed at improving quality of life. This includes increasing public awareness about spina bifida and the benefits of folic acid.
  • Genetic and Neurological Disease Research Funding 1 activity
    • Funding research for spina bifida prevention
      Finances research initiatives focused on the prevention of spina bifida, contributing to long-term public health solutions.
financials · form 990 · fy2024
revenue
Total revenue$94K
Contributions & grants$13K14%
Program service revenue$00%
Investment income$81K86%
Other revenue$0
expenses
Total expenses$68K
Program expenses100%
Admin / overhead0%
Fundraising0%
Salaries & benefits$0
Grants paid out$68K
Largest expense lineCompensation
balance sheet
Total assets$516K
Cash$134
Investments$515K
Liabilities$0
Net assets$516K
Liquid reserves91.6 mo
4 years on record · 2020–2024
relationships · 1

Who they work with

  • Tri-State Spina Bifida Association Partner — Collaborated to establish the Telecommunity Program.
strategies · 1

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Telehealth-Delivered Specialized Support
    methodology: telehealth_support
    By delivering group sessions via telehealth, the foundation provides access to unique, regionally unavailable information and support for families and individuals affected by spina bifida, because virtual delivery overcomes geographic barriers to specialized care.