named programs · 2 · from sources
What they call their work
Grants Program
Provides financial grants to families to cover specific expenses related to caring for a loved one with CP and a comorbidity, particularly for costs not covered by insurance.
Specialists Network
Maintains and shares a list of recommended specialists in fields such as colon cancer, home ventilation, lymphoma, and reproductive endocrinology who have experience treating individuals with CP and comorbidities.
activities · 3 groups
What they do
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Neurological Disability Support & Advocacy 2 activities
- Connecting individuals with subject matter expertsFacilitates access to specialized professionals and clinical expertise for individuals and families affected by cerebral palsy and comorbid conditions, helping them navigate complex care needs.
- Reducing barriers to dignified and expert care for individuals with co-occurring conditionsWorks to improve access to respectful, high-quality medical and support services for individuals with cerebral palsy and additional comorbidities by addressing systemic and logistical challenges in care delivery.
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Pediatric Medical Care and Research Support 1 activity
- Funding financial grants to families affected by cerebral palsy and a comorbid conditionProvides direct financial assistance to families to alleviate the economic burden associated with caring for individuals who have cerebral palsy and a comorbid condition. These grants target costs not covered by insurance or other sources.
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Residential Support for Developmental Disabilities 1 activity
- Providing knowledge and resources to families supporting a loved one with cerebral palsy and a comorbidityOffers educational materials and support resources to families navigating care for individuals with cerebral palsy and co-occurring conditions. This activity is explicitly stated in IRS Form 990 filings as part of the organization's mission-driven services.
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financials · form 990EZ · fy2025
revenue
Total revenue$15K
Contributions & grants$15K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$25K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$16K
balance sheet
Total assets$16K
Cash—
Investments—
Liabilities—
Net assets$16K
3 years on record · 2023–2025 · YoY revenue +40.7%
relationships · 5
Who they work with
- Colon Cancer Partner — Recommends specialists in colon cancer as part of its specialist referral list.
- Home Ventilation Partner — Recommends specialists in home ventilation as part of its specialist referral list.
- Lymphoma Partner — Recommends specialists in lymphoma as part of its specialist referral list.
- Reproductive Endocrinology Partner — Recommends specialists in reproductive endocrinology as part of its specialist referral list.
- hello@cpextension.org Partner — Email address for contacting CP Extension
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Comprehensive Family Support Modelmethodology: comprehensive_family_supportBy providing integrated care coordination, provider networking, and financial grants, the organization reduces systemic and economic barriers to care for families affected by cerebral palsy, because addressing the multifaceted burden of caregiving leads to more sustainable and effective support outcomes.
- Targeted Financial Assistance to Alleviate Care Burdenmethodology: direct_financial_assistanceBy deploying direct financial grants to cover uncovered or burdensome expenses, the organization mitigates immediate economic stressors on families, because reducing financial strain enables caregivers to maintain stability and focus on long-term care needs.
- Trusted Referral Network for Specialized Caremethodology: referral_networkBy connecting individuals with recommended specialists through a curated referral network, the organization reduces barriers to accessing appropriate care, because trusted expert referrals increase the likelihood of engagement and effective treatment for co-occurring conditions.