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Disease-Specific Support and Advocacy

Every indexed organization working in the activity groups below — who they are, where they operate, and the approaches they share.

01 Disease-Specific Support and Advocacy · 1,329 activities edit slice
764
orgs
1,329
activities
223
strategies
NY
epicenter
the opening take
This slice touches 764 organizations and 1,329 activities — NEW YORK CENTER FOR KIDNEY TRANSPLANTATION, ZTTK SON-SHINE FOUNDATION, NATIONAL KIDNEY FOUNDATION, THE BARTH SYNDROME FOUNDATION and others. Activity concentrates in New York (100%). The field's most common shared approach is "Venture Philanthropy Model", run by 108 orgs.
who to look at first

Shortlist

Ranked by activity breadth, method diversity, and network reach across the slice. Attach a memo to this report and this list re-ranks around your intent.

where this slice is thin

Gap signals

Concrete structural gaps — method mix, geographic concentration, coalition density, funder diversity. Evidence is cited from the slice's own numbers.

where the field lives · works

Geography

Orange headquarters dots are sized by how many grantees are based in the state. Green circles mark real locations these orgs say they serve — from city-level populations in this slice's impact_map_populations data. Toggle layers at the bottom right.

regional breakdown · hq density
New York 100% · 764 orgs
who's here

Organizations in this field · 764

sort by
direct service advocacy research capacity building
where the money comes from

Funders already active in this field

Funders named as a funding source on these orgs' own materials. The count is the number of orgs in this slice that cite them — higher means a funder with demonstrable commitment to the field.

New York State Department of Health 23
Government
Medicaid 17
Government
USDA 7
Government
Medicare 6
Government
Pfizer 5
Corporate
CDC 4
Government
HRSA 4
Government
Centers for Disease Control and Prevention (CDC) 3
Government
Local businesses 3
Corporate
New York City Department of Health and Mental Hygiene 3
Government
Substance Abuse and Mental Health Services Administration (SAMHSA) 3
Government
Administration for Children's Services (ACS) 2
Government
Amazon Smile 2
Earned
Centers for Medicare and Medicaid Services (CMS) 2
Government
how the field thinks

Strategies in this slice

Theories of action extracted from the orgs in this slice. The count is how many orgs cite each one — a strategy run by many orgs in common is a through-line; one cited by a single org is still surfaced so the reader can gauge the full spread.

Venture Philanthropy Model 108 orgs
ADVANCIUM HEALTH NETWORK INCHyper IgM Foundation IncMICHAEL'S CAUSE INCTHE MICHAEL J FOX FOUNDATION …
Integrated, Culturally Affirming Care 38 orgs
INTERFAITH MEDICAL CENTER INCNEW YORK CENTER FOR LIVER TRA…PRIMARY BILIARY CHOLANGITIS O…VOCES LATINAS CORPORATION
Story-Based Engagement 38 orgs
BRAVE LITTLE WARRIORS INCORPO…CENTRAL NEW YORK LYME AND TIC…NEW YORK CENTER FOR KIDNEY TR…PISSED ORGANIZATION INC 3809 …
Patient-Centered Education and Empowerment 35 orgs
KIDNEY SEARCH FOUNDATION INCNEW YORK CENTER FOR LIVER TRA…OURBRAINBANK INCTHE MARFAN FOUNDATION INC
Research-Advocacy Integration 33 orgs
KCNMA1 CHANNELOPATHY INTERNAT…MICHAEL'S CAUSE INCPEDIATRIC NEUROTRANSMITTER DI…THE KAT6 FOUNDATION INC
Education-for-Early-Detection 27 orgs
BABYLON BREAST CANCER COALITI…CENTRAL NEW YORK LYME AND TIC…GRACE'S GYNECOLOGIC CANCER SU…THE MAURER FOUNDATION FOR BRE…
Holistic Integration Model 26 orgs
BRIDGING ACCESS TO CARE INCJOHN BROWER JR FOUNDATION INCLONG ISLAND COUNCIL ON ALCOHO…ROCHESTER GENERAL HEALTH SYST…
Peer-Led Support 25 orgs
LONG ISLAND COUNCIL ON ALCOHO…ON POINT NYC INCTHE 21 CLUB OF CNY INCUNITED SERVICES HOUSING DEVEL…
Peer-Led Holistic Support 18 orgs
Brain Injury Association of N…NEW YORK CITY HEMOPHILIA CHAP…THE MARFAN FOUNDATION INCXLH NETWORK INC
Patient-Centered Research Acceleration 16 orgs
PRIMARY BILIARY CHOLANGITIS O…Project CASK IncTHE KAT6 FOUNDATION INCTHE MICHAEL J FOX FOUNDATION …
where strategy meets practice

Strategies × activity types

How each shared strategy breaks down across the four activity types the orgs running it actually do.

direct service
advocacy
research
capacity building
Venture Philanthropy Model
148
53
79
28
Integrated, Culturally Affirming Care
64
2
3
1
Story-Based Engagement
53
19
12
6
Patient-Centered Education and Empowerment
76
8
11
1
Research-Advocacy Integration
57
17
21
7
Education-for-Early-Detection
41
3
3
3
Holistic Integration Model
33
5
1
Peer-Led Support
32
8
1
2
who works with whom

Named partnerships · coalitions · networks

Entities these orgs explicitly call out as partners, coalition members, or networks — relationships the orgs claim on their own sites.

Facebook Partner
shared by 38 orgs
New York State Department of Health Government
shared by 35 orgs
Centers for Disease Control and Prevention Government
shared by 19 orgs
CDC Government
shared by 17 orgs
NYU Langone Health Partner
shared by 17 orgs
American Cancer Society Partner
shared by 14 orgs
Grady Health System Partner
shared by 14 orgs
Icahn School of Medicine at Mount Sinai Partner
shared by 14 orgs
Memorial Sloan Kettering Cancer Center Partner
shared by 14 orgs
National Institutes of Health Government
shared by 14 orgs
Harvard Medical School Partner
shared by 13 orgs
Instagram Partner
shared by 13 orgs
Medicaid Government
shared by 13 orgs
YouTube Partner
shared by 13 orgs
National Cancer Institute Government
shared by 12 orgs
National Institutes of Health Partner
shared by 12 orgs