named programs · 3 · from sources
What they call their work
Cures Gateway
Secure patient-controlled repository powered by the Selfiie app, enabling individuals to access, download, and share their electronic health information in compliance with the 21st Century Cures Act.
Explore+
Secure clinical service that allows authorized healthcare providers to access patient health records for treatment purposes, contingent upon patient consent.
Mind the App
Consumer education initiative informing patients about privacy risks when sharing health data with third-party apps; includes multilingual resources on data protection.
activities · 7 groups
What they do
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Health Information Exchange Support 8 activities
- Educate healthcare facilities on SHIN-NY connection requirements and fundingHosts webinars and informs regulated healthcare facilities about their legal obligation to connect to the Statewide Health Information Network for New York (SHIN-NY), while educating them on the benefits of participation and available funding opportunities.
- Expand and enhance HIE technical capabilities and user experienceUpgrades health information exchange infrastructure, including implementation of a new patient search engine (Explore+) featuring a consolidated timeline view, improved data categorization, and encounter-based data grouping. Conducts quality assurance testing and loads historical and real-time data feeds in preparation for system launches.
- Facilitate patient consent enrollment and track participationCollects affirmative patient consents for inclusion in the health information exchange, receiving tens of thousands monthly. Maintained a cumulative total of 4,762,176 patient consents as of March 2025.
- Improve provider satisfaction and usability of HIE platformsWorks to increase participant satisfaction with key HIE services such as the Explore clinical query portal, Image Exchange, MyResults Delivered, and DIRECT messaging, achieving a 9 percent improvement in portal satisfaction in 2017.
- Increase data connectivity and interoperability across healthcare systemsExpands the number and diversity of data sources within the HIE, adding more than 500 contributing organizations by 2017 and integrating ambulance call data from multiple emergency medical services. Adds approximately 1.5 million clinical results to the exchange each month.
- Operate a secure regional health information exchange (HIE) for authorized healthcare providersProvides a secure health information exchange that enables clinicians, hospitals, and other authorized healthcare providers across a 14-county region in the Finger Lakes area to access real-time patient data including medical histories, lab results, diagnostic images, discharge summaries, and medication lists. The system supports care coordination by allowing providers to review prior test results from other facilities and reducing reliance on paper-based records.
- Support adoption of electronic health record systems and Meaningful Use certificationProvides capacity-building support to physicians, hospitals, and practices to adopt electronic health record (EHR) systems and achieve CMS “Meaningful Use” certification, promoting broader digital health integration across the region.
- Support eMOLST integration and electronic advance care planningIntegrates electronic Medical Orders for Life-Sustaining Treatment (eMOLST) into the RHIO portal, enabling one-click access for authorized users. Provides online functionality for healthcare professionals to create, review, and renew eMOLST forms in compliance with New York State Department of Health standards (DOH-5003).
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Nonprofit Organizational Mergers and Integrations 1 activity
- Combine operations with health organizations to strengthen regional health infrastructureIntegrated operations with Common Ground Health in 2024 to combine expertise in health information exchange, data analytics, and community health improvement, and merged with the Finger Lakes Performing Provider System (FLPPS) in 2026 to enhance regional healthcare delivery and population health initiatives.
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Urban Policy and Equity Research 1 activity
- Conduct research on social determinants of health using HIE dataAnalyzes documentation of homelessness and other social determinants of health within the health information exchange to support vulnerable populations and is developing a data dictionary to standardize SDOH data types available for research use.
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Patient Portal and Digital Health Access 1 activity
- Enable patient access and control over electronic health informationOffers patients secure self-service tools to download their electronic health information and partners with Selfiie to operate Cures Gateway, a patient-controlled repository for accessing and sharing health data. Also provides educational resources such as the "Mind the App" guide to inform patients about privacy risks associated with mobile health applications.
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Medical Records Access & Privacy Compliance 1 activity
- Ensure compliance with privacy, security, and consent regulationsUses and discloses protected health information (PHI) in accordance with federal and state laws for treatment, payment, care coordination, and healthcare operations. Employs encryption and secure transmission methods, complies with breach notification requirements, maintains audit logs for emergency "break the glass" access and public health queries, and conducts regular audits of patient consent forms. Uses a SAMHSA 42 CFR Part 2-compliant consent form approved by the New York State Department of Health.
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Educational Technology Access and Support 1 activity
- Provide technical support and deployment assistance to HIE participantsOffers technical support through a dedicated Deployment Team, an online support request system, and phone line. Completed over 1,000 in-person site visits in 2017 and continues to support user needs during platform transitions and upgrades.
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Uncategorized 2 activities
- Deliver training for HIE system usersProvides required online training for all RHIO Explore users ahead of system upgrades like Explore+, with plans for on-demand video training to support ongoing user education and adoption.
- Present innovations in health data and population healthPresents advancements in health information exchange and social determinants of health data at forums such as the FLPPS Showcase, contributing to regional knowledge sharing and innovation in healthcare delivery.
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financials · form 990 · fy2025
revenue
Total revenue$2.61M
Contributions & grants$1.35M52%
Program service revenue$1.25M48%
Investment income$3K0%
Other revenue$1K
expenses
Total expenses$2.83M
Program expenses92%
Admin / overhead8%
Fundraising0%
Salaries & benefits$1.08M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$10.63M
Cash$213K
Investments$0
Liabilities$3.07M
Net assets$7.56M
Liquid reserves0.9 mo
5 years on record · 2020–2025 · YoY revenue -75.3%
leadership · form 990 part vii · fy2025
Who runs it
board members · 24
- ANGELICA PEREZ-DELGADO — BOARD MEMBER
- ANNE MARIE COOK — VICE CHAIR
- BALAZS ZSENTIS — BOARD MEMBER
- BOB DAVIS — BOARD MEMBER
- CHRISTOPHER BELL — BOARD MEMBER
- DAN DELAUS JR — BOARD MEMBER
- HILDA ROSARIO — BOARD MEMBER
- JAKE FLAITZ — BOARD MEMBER
- JEFF SCIORTINO — BOARD MEMBER
- JEROME UNDERWOOD — BOARD MEMBER
- JILL GRAZIANO — BOARD MEMBER
- JINI FIGUEROA — BOARD MEMBER
- JOELLEN PINKHAM — BOARD MEMBER
- JOHN GLYNN — BOARD MEMBER
- KATHY JOHNSON — BOARD MEMBER
- LARRY BECKER — BOARD MEMBER
- LUCIA CASTILLEJO — BOARD MEMBER
- MARGARET MORSE — BOARD MEMBER
- MARK CRONIN — BOARD MEMBER
- MARY ZELAZNY — BOARD MEMBER
- MELISSA GARDNER — CHAIR
- MICHAEL MCRAE — BOARD MEMBER
- MICHAEL MENDOZA — BOARD MEMBER
- MICHELE FOSTER — BOARD MEMBER
relationships · 19
Who they work with
- Common Ground Health Partner — Combined operations in 2024 to integrate expertise in health information exchange, health data analytics, and community health improvement.
- Compassion and Support and the End of Life Partner — Collaborated with GREATER ROCHESTER REGIONAL HEALTH INFORMATION ORGANIZATION INC to integrate eMOLST access into the RHIO portal.
- Deployment Team Partner — Internal team providing technical support and deployment assistance for MyResults Delivered.
- FLPPS Partner — Partnered to increase the number of data sources contributing to the regional Health Information Exchange.
- Finger Lakes Ambulance Partner — Source of EMS data integrated into the RHIO health information exchange.
- Finger Lakes Performing Provider System Partner — Combined operations in 2026 to strengthen regional healthcare delivery and population health initiatives.
- Monroe Ambulance Partner — Source of EMS data integrated into the RHIO health information exchange.
- New York State Government — Provides public funding to Rochester RHIO as part of the Statewide Health Information Network of New York (SHIN-NY).
- New York State Department of Health Government — Approved Rochester RHIO's patient consent form for compliance with state and federal regulations, including SAMHSA 42 CFR Part 2.
- New York State Department of Health Government — Operates as a Qualified Entity under New York State's SHIN-NY program, governed by state privacy and security policies.
- New York eHealth Collaborative Partner — Collaborated with Rochester RHIO on the "Mind the App" consumer education initiative about health data privacy.
- Project Contribute Partner — Collaborated on efforts to expand data sources in the regional Health Information Exchange.
- Rochester RHIO Network — Operates a health information exchange used by healthcare providers to improve patient care.
- Rochester RHIO Network — Operates health information exchange services under the GREATER ROCHESTER REGIONAL HEALTH INFORMATION ORGANIZATION INC.
- Selfiie Partner — Partnered with Rochester RHIO to deliver Cures Gateway, a secure patient access solution for electronic health information.
- Statewide Health Information Network for New York Government — Works under the SHIN-NY Regulation to ensure regulated facilities connect to and contribute data to the SHIN-NY.
- Statewide Health Information Network of New York Network — Accredited Qualified Entity of SHIN-NY, collaborating to support connected care.
- Veterans Administration (VA) Partner — Connects with VA services in Bath and Canandaigua to enable health information exchange between VA and community providers.
- Weill Cornell Medical College Partner — Conducted studies showing reductions in hospital admissions, readmissions, and repeated imaging tests due to Rochester RHIO’s operations.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Health Information Exchange for Care Coordination and Clinical Decision-Makingmethodology: health_information_exchangeBy enabling secure, real-time access to comprehensive patient records across providers and organizations, we improve care coordination, reduce duplicative testing, prevent rehospitalizations, and support better clinical decisions, because timely and complete information allows for more accurate and proactive care.
- Integration of Social Determinants of Health into Clinical Data Exchangemethodology: sdoh_integrationBy incorporating non-medical, community-sourced social determinants of health data into the health information exchange, we enable more holistic clinical decision-making, because understanding housing, food security, and other social factors improves risk assessment and care planning.
- Patient-Controlled Consent Model for Data Sharingmethodology: consent-based_data_sharingBy requiring explicit patient consent and enabling individuals to control access to their health data, we increase trust and engagement in the health information exchange, because patients are more likely to participate when they retain autonomy over who sees their information.