Collaborative Network Model

Identifies and provides financial support to underfunded programs that serve veterans and their families in the areas of medical care, education, therapy, and family support.

Submitted a Letter of Intent to the FDA for a SCI Patient-Focused Drug Development (PFDD) meeting, held monthly check-ins, recruited diverse panelists, hosted a virtual PFDD meeting to elevate patient voices in regulatory decision-making, and published a white paper on the role of patient input in shaping FDA decisions for spinal cord injury treatments.

Conducted a survey of 448 respondents to understand how individuals with spinal cord injury access and evaluate health information; develops polling questions and gathers community feedback to inform research and regulatory initiatives such as the FDA Patient-Focused Drug Development meeting.

Enables for-profit organizations to advance spinal cord injury research, technology, and innovation by connecting business expertise with community needs.

Convenes organizations across North America that advocate for and communicate with individuals living with spinal cord injury, including through organizational membership and collaborative initiatives.

Hosted a webinar series titled "SCI: Moving Forward – A Response to COVID-19" and provided educational content on telemedicine, advocacy, and health & wellness for the spinal cord injury community, with free on-demand access.

Provides a 12-module, approximately 6-hour educational course with quizzes and a certificate upon completion, designed to train individuals with spinal cord injury, caregivers, and healthcare providers in research advocacy. The course demonstrated measurable gains in participant outcomes according to a 2026 peer-reviewed evaluation.

Hosts free SCI Connections webinars to present findings from the SCI-Powered Network, including Phase 1 results, and to share informational resources such as details about ProBed Medical and the Freedom Bed.

Offers individual membership to people living with spinal cord injury, caregivers, and family members, enabling participation in research and advocacy efforts, with one voting delegate representative per member.

Operates a website with accessibility features including keyboard navigation, high contrast, and screen-reader compatibility, compliant with WCAG 2.1 AA standards.

Establishes a Project Review Committee that integrates individuals with lived experience of spinal cord injury and research experts to evaluate research projects for community alignment and relevance.

Funds awareness and prevention programs directed at the general public to reduce the incidence of spinal cord injuries.

Funds targeted scientific and medical research aimed at improving physical quality of life for individuals with spinal cord injuries and related neurological deficits.

Hosts quarterly webinars and free online meetings with Q&A sessions to share updates on projects, goals, and engagement opportunities, enabling remote connection and participation by the spinal cord injury community.

Hosts a semi-annual multidisciplinary scientific conference focused on spinal cord injury and peripheral nerve repair, featuring a single-session format with programming on axon regeneration, neuroplasticity, neuromodulation, and whole-body effects of injury, including keynotes on neural control of movement and vagus nerve stimulation.

Provides a searchable database of spinal cord injury clinical trials with filters for injury level, time since injury, location, and intervention type, including plain-language summaries of eligibility criteria and participation requirements. The database compiles and reviews listings from reputable registries and research networks for accuracy and clarity.

Organized and participated in the 2026 Acquired Brain Injury and Spinal Cord Injury Symposium at Barrow Neurological Institute, offering continuing education for rehabilitation professionals, and participated in the International Symposium of Neural Regeneration with a featured speaker.

Hosts programming for early-career researchers including data blitz sessions, poster presentations, awards, and networking opportunities as part of the organization's scientific conferences.