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CARE DESIGN NY LLC

ALBANY, NY · EIN 364875879 · Form 990 · FY2024 · NTEE E86 · Health Care · Very Large (>$50M) · caredesignny.org
revenue
$131.5M
expenses
$135.8M
net assets
$52.1M
employees
1,231
volunteers
14
program ratio
90%
mission · from form 990

OUR MISSION IS TO ASSIST INDIVIDUALS WITH INTELLECTUAL AND/OR DEVELOPMENTAL DISABILITIES TO GET THE SUPPORTS AND SERVICES THEY NEED TO LIVE A QUALITY LIFE.

profile · synthesized from sources

Care Design NY is a Care Coordination Organization and Health Home serving individuals with intellectual and/or developmental disabilities (I/DD) across 30 counties in New York State. The organization provides person-centered care management to help members access integrated health, behavioral health, and disability support services. With over 750 care managers and a network of more than 120 partner agencies, it supports over 29,000 individuals in living a quality life.

named programs · 3 · from sources

What they call their work

Health Home Care Management
Provides coordinated, person-centered care for individuals with intellectual and/or developmental disabilities, integrating physical health, mental health, and community support services.
Incident Management
Supports members through reporting and response to incidents involving abuse, neglect, or significant events, ensuring immediate protections and referrals to appropriate services.
New Health and Wellness Text Message Program
Delivers health, wellness, and preventive care reminders directly to members via text message to support ongoing health goals.
activities · 5 groups

What they do

  • Healthcare Compliance and Ethics Programs 2 activities
    • Compliance and ethical conduct oversight
      Operates a Provider Compliance Program and a 24/7 multilingual toll-free compliance hotline managed by a third-party vendor to promote ethical conduct, ensure adherence to laws and regulations, and enable anonymous reporting of concerns.
    • Incident reporting, investigation, and protective response
      Conducts incident reporting to the Justice Center when provider agencies fail to report, investigates allegations involving care managers through an Incident Review Committee, makes referrals to protective services and law enforcement, and monitors follow-up actions to ensure ongoing safety and compliance.
  • Supported Employment for Developmental Disabilities 1 activity
    • Capacity building through partner agency collaboration
      Collaborates with over 120 partner agencies across New York State to enhance service delivery for individuals with intellectual and/or developmental disabilities, supporting integrated care and organizational development through joint initiatives and training.
  • Residential Support for Developmental Disabilities 1 activity
    • Care management and coordination services for individuals with intellectual and developmental disabilities
      Provides person-centered care management and coordination services to over 29,000 individuals with intellectual and/or developmental disabilities (IDD) and their families across 30 counties in New York State, from Clinton County to Suffolk County. Services include developing individualized life plans, coordinating access to supports based on personal goals, and integrating health, wellness, and cultural needs into holistic service planning.
  • Intake and Referral Coordination 1 activity
    • Enrollment and onboarding services for care management programs
      Operates a structured enrollment process that connects individuals to Care Managers and Health Home services through dedicated Enrollment Specialists, including language-specific and culturally sensitive support via partnerships and translation services. Supports transition through New Enrollee Webinars and orientation sessions for new members.
  • Disease-Specific Clinical & Patient Education 1 activity
    • Provision of educational and preventive health resources
      Provides multilingual educational materials and guidance on preventive health topics including fall prevention for older adults, breast cancer screenings, diabetes management, annual health assessments, and use of at-home COVID-19 test kits to promote wellness among members.
financials · form 990 · fy2024
revenue
Total revenue$131.54M
Contributions & grants$1.78M1%
Program service revenue$129.51M98%
Investment income$-144K-0%
Other revenue$391K
expenses
Total expenses$135.79M
Program expenses90%
Admin / overhead10%
Fundraising0%
Salaries & benefits$99.58M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$79.36M
Cash$5.09M
Investments$40.21M
Liabilities$27.25M
Net assets$52.11M
Liquid reserves4.0 mo
4 years on record · 2020–2024 · YoY revenue -3.6%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 17
NameTitleHours/wkCompensation
KERRY DELANEY CHIEF EXECUTIVE OFFICER 20 $555K
COURTNEY SKIVINGTON-WOLF CHIEF OPERATING OFFICER 20 $307K
JOE SHEN CHIEF STRATEGY OFFICER 20 $300K
CHARLES KRAJACIC CHIEF FINANCIAL OFFICER 20 $293K
STEVEN MERAHN MEDICAL DIRECTOR 20 $293K
DIANE MARRONE CHIEF OF CARE MANAGEMENT 20 $230K
CATHERINE VERANO CHIEF ADMINISTRATIVE OFFIC 40 $227K
PREMILA MARY KUMAR CHIEF OF QUALITY INITIATIVES 20 $221K
KARLEEN HAINES CHIEF OF ADVOCACY AND MEMBER ENGAGEMENT 20 $199K
ERNIE MCNUTT ASSISTANT VP OF CARE MANAG 40 $191K
IAN BHAGWANDIN CONTROLLER 20 $189K
LISA JOHN CHIEF COMPLIANCE OFFICER 20 $186K
LISA REESE CHIEF HUMAN RESOURCES OFFI 20 $184K
STEPHEN SCHNEIDER ASSISTANT VICE PRESIDENT OF CARE MANAGEMENT 20 $180K
APANA VENKAT DIRECTOR OF REVENUE CYCLE 20 $176K
DANIELLE MAZZA ASSISTANT VP OF CARE MANAG 40 $171K
KRISTINA CUNNINGHAM ASSISTANT VICE PRESIDENT O 20 $170K
board members · 8
  • CHRISTOPHER LYONS — DIRECTOR
  • EDWARD MATTHEWS — DIRECTOR
  • FREEMAN TSUI — DIRECTOR
  • JANE ZEMON — DIRECTOR
  • JOHN MCHUGH — DIRECTOR
  • KEVIN CAREY — TREASURER (THRU 12/24), DIRECTOR (12/24 FORWARD)
  • KIRK LEWIS — DIRECTOR
  • MARCO DAMIANI — DIRECTOR
relationships · 14

Who they work with

  • Care Design NY Advisory Board Partner — Advisory board composed of members and families that helps guide the development and operation of Care Design NY.
  • Chinese-American Planning Council Partner — Provides bilingual Chinese enrollment support services in partnership with Care Design NY.
  • Compliance Resource Center Partner — Third-party vendor that staffs the compliance hotline and manages online reporting for Care Design NY.
  • Epilepsy Foundation Partner — Provides epilepsy-related resources and information in collaboration with the Epilepsy Foundation.
  • General Human Outreach Partner — Provides bilingual Chinese and Korean enrollment support services in partnership with Care Design NY.
  • NYS Office for People with Developmental Disabilities Government — Certifies Care Design NY as a Care Coordination Organization/Health Home.
  • New York State Justice Center for the Protection of People with Special Needs Government — Receives incident reports from Care Design NY care managers when provider agencies have not reported.
  • New York State Office for People with Developmental Disabilities Government — Funds and oversees Care Design NY's services for individuals with intellectual and/or developmental disabilities.
  • OPWDD Government — Collaborates with OPWDD on incident reporting and learning materials for individuals receiving services.
  • OPWDD Partner — Collaborates with OPWDD providers to deliver care coordination and support services.
  • Office for People With Developmental Disabilities (OPWDD) Government — Receives incident reports and investigations from Care Design NY; reviews investigations and may assign independent investigators.
  • Partners Health Plan Partner — Collaborates with Care Design NY as the only managed care health plan for individuals with intellectual and/or developmental disabilities in New York State.
  • Regional Care Management Partner — Collaborates with Regional Care Management for county-specific care management services and leadership.
  • Regional Director Partner — Point of contact for members to provide feedback or raise concerns.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Culturally Congruent Enrollment
    methodology: culturally_congruent_enrollment
    By partnering with culturally trusted community agencies, we increase comfort and engagement during enrollment for diverse populations because trust lowers barriers to participation and improves access to care.
  • Integrated and Coordinated Care Networks
    methodology: coordinated_care_network
    By collaborating across healthcare, disability services, and community organizations, we improve outcomes for individuals with IDD because integrated planning ensures holistic, seamless support that addresses medical, social, and personal needs together.
  • Life-Planning as Adaptive Support
    methodology: life-planning_model
    By developing and maintaining an evolving Life Plan, we support long-term physical, mental, and emotional well-being because it enables proactive, coordinated adjustments to care as individual needs change over time.
  • Lived Experience Integration
    methodology: lived-experience_engagement
    By engaging individuals with lived experience in service design and operation, we improve service quality and relevance because their insights ensure programs are grounded in real-world needs and dignity.
  • Person-Centered Care Model
    methodology: person-centered_care
    By tailoring care to individual needs, preferences, and life goals, we produce better health and well-being outcomes for people with intellectual and developmental disabilities (IDD), because this approach respects autonomy, increases engagement, and aligns services with what matters most to the person.