named programs · 7 · from sources
What they call their work
Care Management
Personalized care coordination for individuals with IDD, including healthcare, social supports, and service access, tailored to individual goals and needs
Disability Services NY Directory (DSNY)
Database of over 10,000 healthcare and community resources across New York State tailored to individuals with IDD
Health Promotion
Initiatives to improve health outcomes, including access to medical care, wellness resources, and the Knowledge Center for common IDD health concerns
Member Relations
Supports members and families through newsletters, virtual learning sessions, peer connections, and advocacy opportunities
Member Relations Liaisons
Peer support program where experienced family members or caregivers provide guidance and resources to new members and families
Self-Advocate Community
Monthly virtual meetings for self-advocates to connect, share experiences, and support each other
Virtual Learning Sessions
Monthly educational webinars on topics such as Medicaid, guardianship, life transitions, and future planning for members and families
activities · 11 groups
What they do
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Residential Support for Developmental Disabilities 2 activities
- Comprehensive care coordination for individuals with IDDProvides comprehensive care coordination services to over 25,000 individuals with intellectual and developmental disabilities (IDD) across New York City, Long Island, and the lower Hudson Valley, helping them access, coordinate, and manage healthcare, personal services, social supports, chronic disease care, and preventative care through personalized support plans.
- Disability Services NY Resource DirectoryOperates the Disability Services NY Directory, a comprehensive database with over 10,000 entries of healthcare, fitness, and IDD-specific resources across New York State, supporting individualized opportunity planning and access to services.
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Professional Networking Events 1 activity
- Community networking and engagement eventsHosts community networking events that bring together care managers, provider organizations, members, and families, with one reported event reaching 1,098 care managers, 392 providers, and 146 members and family participants.
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Healthcare Compliance and Ethics Programs 1 activity
- Customer and compliance support servicesOperates a Customer Service Center available during business hours for general inquiries and a dedicated Compliance Hotline for reporting ethics, privacy, billing, and regulatory concerns, ensuring accessibility and accountability.
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Supported Employment for Developmental Disabilities 1 activity
- Educational resource development and disseminationCreates and distributes educational documents and videos about New York State’s support system for individuals with intellectual and developmental disabilities to increase awareness and understanding of available services.
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Health Information Exchange Support 1 activity
- Electronic health record management for care coordinationUses an Electronic Health Record system to securely track care decisions and progress across providers for individuals with IDD, ensuring continuity of care and privacy compliance.
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Intake and Referral Coordination 1 activity
- Enrollment and eligibility assistance for IDD servicesSupports individuals and families in navigating the care management enrollment process, including applying for OPWDD eligibility and Medicaid, with dedicated Care Connection Specialists who assist with paperwork, requirements, and access to services.
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24/7 Crisis and Warmline Support Services 1 activity
- Incident reporting and abuse preventionOperates a dedicated incident management phone line for reporting abuse or neglect and provides resources to help members, families, and advocates understand, report, and request records related to such incidents.
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Organizational Governance & Leadership Development 1 activity
- Member and family advisory input for policy developmentOperates the Member and Family Advisory Council to gather feedback and insights from members and families to inform policy and program development, ensuring services are responsive to community needs.
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Language Access Services 1 activity
- Member and family support through dedicated liaisonsProvides Member Relations Liaisons who offer ongoing support to individuals and families navigating care management services, including real-time written translation in multiple languages during scheduled drop-in sessions.
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Supplemental Needs Trust Management 1 activity
- Supplemental needs trust administrationAdministers the My Choice Supplemental Needs Trust, enabling individuals with IDD to maintain eligibility for government benefits while using trust funds for life-enhancing expenses.
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Autism & Neurodiversity Education Workshops 1 activity
- Virtual learning and support sessionsHosts monthly virtual learning sessions and orientation meetings for members, families, and self-advocates on topics relevant to IDD, along with quarterly drop-in sessions led by Member Relations Liaisons to provide ongoing support and connection.
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financials · form 990 · fy2024
revenue
Total revenue$111.59M
Contributions & grants$402K0%
Program service revenue$109.24M98%
Investment income$1.94M2%
Other revenue$0
expenses
Total expenses$107.82M
Program expenses94%
Admin / overhead6%
Fundraising0%
Salaries & benefits$98.35M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$81.01M
Cash$60.14M
Investments$9.20M
Liabilities$18.35M
Net assets$62.66M
Liquid reserves7.7 mo
5 years on record · 2020–2024 · YoY revenue +2.5%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 12
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| NICHOLAS CAPPOLETTI | CEO | 40 | $965K |
| DEAN JOHNSTON | EVP CAO/CFO | 40 | $381K |
| JOHN F VON AHN | EVP GENERAL COUNSEL | 40 | $358K |
| JAIME S MADDEN | CHIEF OPERATING OFFICER | 40 | $339K |
| GERARD JOSEPH TO 62924 | CHIEF FINANCIAL OFFICER | 40 | $273K |
| NATHAN WHITE ENDERS | CHIEF INFORMATION OFFICER (CIO) | 40 | $267K |
| KIMBERLY JAYNES | REGIONAL VP OF CARE MANAGEMENT | 40 | $219K |
| LAUREN E JOHNSON ALBARONI | SVP OF QUALITY & COMPLIANCE | 40 | $218K |
| CAROLYN LEARY | SENIOR VP OF CARE MANAGEMENT | 40 | $208K |
| KRISTEN DENISE SCHOLL | VP OF INTEGRATED CARE INITIATIVES | 40 | $206K |
| DENISE M VAN DYNE | SENIOR VP OF HUMAN RESOURCES | 40 | $205K |
| RENEE MANZA | REGIONAL VP OF CARE MANAGEMENT | 40 | $174K |
board members · 10
- DAVID MANDEL — DIRECTOR
- ELLIOT BROWNSTEIN — DIRECTOR
- JANICE ARIS — DIRECTOR
- JILL GENTILE — CHAIR (AS OF 6/30/24)
- KIM KUBASEK — DIRECTOR
- LISA VEGLIA — DIRECTOR
- ROBERT BUDD — DIRECTOR
- SCOTT L BARKIN PHD — SECRETARY
- STEVEN VERNIKOFF — CHAIR ( UNTIL 6/30/24)
- WALTER W STOCKTON — TREASURER
relationships · 9
Who they work with
- Community Service Society of New York Partner — Operates the Independent Ombuds Program (IDDO) that supports ACANY service recipients in understanding and asserting their rights.
- Disability Services NY Directory Partner — Provides access to a database of healthcare, fitness, and IDD-specific resources across New York State.
- LIFEPlan CCO Partner — Co-hosts a screening of the documentary UNSEEN with ACANY for members and the IDD community.
- Member Relations Liaisons Partner — Parents or caregivers of members who serve as peer supports and host drop-in sessions to share experiences and resources.
- NYS Department of Health Government — Designated by the NYS Department of Health as a Care Coordination Organization to provide care coordination services.
- OPWDD Government — Connects OPWDD HCBS Waiver Providers through community networking events
- OPWDD Government — Follows OPWDD Part 624/625 regulations for incident management.
- OPWDD Government — Works within the OPWDD system to support families accessing services for individuals with intellectual and developmental disabilities.
- Office for People with Developmental Disabilities Government — State agency whose eligibility determination ACANY supports members in obtaining
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Inclusive Health Accessmethodology: inclusive_healthBy ensuring individuals with IDD can access the same health programs and services as those without disabilities, the organization reduces health disparities because equitable access to care is a prerequisite for improved health outcomes.
- Interdisciplinary Care Coordinationmethodology: interdisciplinary_care_coordinationBy integrating medical and behavioral health professionals into a coordinated clinical team, the organization improves health outcomes for individuals with IDD because holistic, cross-disciplinary care addresses complex needs more effectively than siloed services.
- Natural and Peer Support Network Integrationmethodology: peer_support_modelBy leveraging existing personal relationships and peer support from individuals with lived experience—including parents, caregivers, and peers—the organization enhances service navigation and decision-making because shared experience and trusted relationships increase trust, reduce isolation, and improve engagement.
- Person-Centered Care and Life Planningmethodology: person_centered_careBy involving individuals with intellectual and developmental disabilities (IDD) in co-creating their care plans based on personal goals, strengths, and needs, the organization improves health and life outcomes because autonomy and individualized planning increase engagement and reduce barriers to care.