named programs · 6 · from sources
What they call their work
Care Management Services
Provides personalized support to help individuals with IDD access and coordinate healthcare, social services, and community supports through individualized Life Plans.
Link to Better Health
Free short-term program offering one-on-one guidance to adults with IDD who are not yet enrolled in Medicaid or care management, helping them access healthcare and insurance coverage.
Member Relations Liaisons
Peer support program connecting members and families with experienced caregivers who offer guidance on services, insurance, education, and behavioral support.
Member and Family Advisory Council (MFAC)
Forum for members and families to provide input on policies and program development, ensuring services reflect lived experience.
Self-Advocate Community
Monthly virtual meetings for self-advocates to connect, share resources, and support each other in navigating disability services.
Virtual Learning Sessions
Monthly educational events for members and families covering topics such as Medicaid, guardianship, life transitions, and future planning.
activities · 7 groups
What they do
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Developmental Disability Service Coordination 1 activity
- Care coordination for individuals with intellectual and developmental disabilitiesProvides comprehensive care coordination and care management services for individuals with intellectual and developmental disabilities (I/DD) through a Health Home model, integrating health, wellness, and developmental disability services. Services include developing individualized Life Plans, coordinating healthcare, personal services, social supports, chronic disease care, and preventative care, with care managers responding to inquiries within 1–2 business days or 48 hours depending on urgency.
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Healthcare Compliance and Ethics Programs 1 activity
- Compliance and ethics reporting systemOperates a dedicated Compliance Hotline with a voice mailbox accessible only by Compliance staff to receive reports of concerns related to compliance, ethics, privacy breaches, inaccurate billing, and conflicts of interest.
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Intake and Referral Coordination 1 activity
- Enrollment and access support for I/DD servicesOperates an intake process and provides enrollment support through Care Connection Specialists who assist families in accessing disability services, including community habilitation, respite, employment, housing, and healthcare. Offers guidance on OPWDD eligibility and Medicaid applications, and runs a free short-term program to help adults with I/DD access healthcare services and insurance, particularly those not enrolled in Medicaid or Care Management.
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Professional Certification and Continuing Education 1 activity
- Professional training for care managersProvides annual training for Care Managers averaging 75 to 100 hours per year, including instruction on OPWDD guidance, health seminars, and online modules covering care management practices and disability regulations.
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Language Access Services 1 activity
- Resource connection and community support programmingMaintains a searchable database of over 10,000 healthcare, fitness, and IDD-specific resources across New York State and connects members to advocacy, recreational, educational, and vocational services through partnerships with community-based agencies. Provides real-time written translation services in multiple languages including Spanish and Chinese.
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Autism & Neurodiversity Education Workshops 1 activity
- Virtual learning and peer support groupsHosts monthly virtual learning sessions for members, families, and the IDD community on relevant topics, along with virtual New Member Orientation meetings for all newly enrolled members. Operates a monthly virtual Self-Advocate Community group for peer support and resource sharing, and hosts quarterly virtual Drop-In Sessions with Member Relations Liaisons for parent and caregiver engagement.
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Uncategorized 2 activities
- Community networking and awareness eventsOrganizes community networking events that connect care managers, providers, community organizations, and families to share resources and strengthen person-centered care, with past events attended by over 1,000 care managers, 390 provider organizations, and 140 members and family participants. Co-hosts screenings of the documentary UNSEEN with ACANY at select events to raise awareness about caregiver challenges and lived experiences in the IDD community.
- Member and Family Advisory Councils for policy inputOperates Member and Family Advisory Councils (MFAC) with 60 participants across six regions who meet 4–6 times per year to discuss advocacy and care management needs and provide direct input into the development of LIFEPlan policies and programs.
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financials · form 990 · fy2024
revenue
Total revenue$86.56M
Contributions & grants$00%
Program service revenue$84.27M97%
Investment income$2.30M3%
Other revenue$0
expenses
Total expenses$80.87M
Program expenses94%
Admin / overhead6%
Fundraising0%
Salaries & benefits$62.48M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$73.97M
Cash$43.82M
Investments$24.45M
Liabilities$10.51M
Net assets$63.46M
Liquid reserves10.1 mo
2 years on record · 2023–2024 · YoY revenue -2.3%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 13
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| NICHOLAS CAPPOLETTI | CEO | 40 | $1.09M |
| DEAN JOHNSTON | EVP CHIEF ADMINISTRATIVE OFFICER & CFO | 40 | $394K |
| JOHN VON AHN | EVP GENERAL COUNSEL | 40 | $371K |
| JAIME MADDEN | EVP CHIEF OPERATIONS OFFICER | 40 | $316K |
| NATHAN ENDERS | CHIEF INFORMATION OFFICER | 40 | $276K |
| GERARD JOSEPH | CFO (THRU 06/2024) | 40 | $250K |
| LAUREN JOHNSON ALBARONI | SVP OF QUALITY & COMPLIANCE | 40 | $225K |
| KRISTEN SCHOLL | VP OF INTEGRATED CARE INITIATIVES | 40 | $214K |
| DENISE VAN DYNE | SVP OF HUMAN RESOURCES | 40 | $212K |
| MARY REDMOND | SVP OF CARE MANAGEMENT | 40 | $196K |
| JEAN JACOBSON | VP OF CLINICAL | 40 | $190K |
| PATRICIA CAFARCHIO | CONTROLLER | 40 | $174K |
| LORI KEARSING | VP OF STRATEGIC INITIATIVES | 40 | $173K |
board members · 12
- CRIS DONOVAN — DIRECTOR
- GENO DECONDO — SECRETARY/TREASURER
- GREG SORRENTINO — VICE CHAIR
- JAMES J MORRIS IV — DIRECTOR
- JEFF FOX — DIRECTOR
- KATHY KLOSNER — DIRECTOR
- KEVIN CROSLEY — DIRECTOR
- LINDA KUCK — DIRECTOR
- LOU TEHAN — CHAIR
- MARC ANTONUCCI — DIRECTOR
- MAUREEN O'BRIEN — DIRECTOR
- MICHELLE MUPRHY — DIRECTOR
relationships · 14
Who they work with
- ACANY Partner — Co-hosts a screening event of the documentary UNSEEN with LIFEPlan CCO.
- ACANY Partner — Member of TriaDD, LLC, a statewide partnership administering the Link to Better Health program.
- Centers for Disease Control Funder — Funded the Link to Better Health program through a five-year grant.
- Clarkson University Partner — Hosts a LIFEPlan CCO office in the Quarry Building on its campus in Potsdam, NY.
- Community Service Society of New York Partner — Operates the Independent Ombuds Program (IDDO) in partnership with OPWDD to support patient advocacy.
- Medicaid Government — Supports enrollment in Medicaid as part of the care coordination eligibility process.
- Member and Family Advisory Council Coalition — Advisory body composed of LIFEPlan members and families that provides input on policies and program development.
- New York State Government — State government entity that established the CCO framework in which LIFEPlan operates.
- OPWDD Government — Liaisons are knowledgeable about the OPWDD system and support families navigating it.
- OPWDD Government — State agency through which LIFEPlan CCO NY delivers services and coordinates access to funded supports for individuals with developmental disabilities.
- Office for People with Developmental Disabilities Government — Assists families in applying for OPWDD eligibility and collaborates on care management under OPWDD guidance.
- Person Centered Services Partner — Member of TriaDD, LLC, a statewide partnership administering the Link to Better Health program.
- TriaDD, LLC Partner — Statewide partnership administering the Link to Better Health program, composed of three CCOs including LIFEPlan CCO.
- Unseen Partner — Partners with the documentary Unseen to feature its content at community networking events and facilitate discussions on inclusion and support for individuals with IDD.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Care Coordination Integrationmethodology: care_coordination_modelBy integrating care management with health and community service networks, we produce timely and comprehensive support for individuals with IDD, because coordinated access across systems improves continuity and reduces service gaps.
- Peer and Family-Led Support Modelmethodology: peer_support_modelBy using peer and family-led support through Member Relations Liaisons with lived experience, we produce higher trust and engagement in service navigation, because shared experience fosters relatability and reduces systemic barriers to access.
- Person-Centered Life Planningmethodology: person-centered_planningBy co-developing individualized life plans with members and families, we produce more effective service coordination and improved well-being, because aligning support with personal needs, preferences, and strengths increases autonomy and engagement.