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CONCEPTS OF INDEPENDENCE INC

NEW YORK, NY · EIN 510239824 · Form 990 · FY2024 · Very Large (>$50M) · coiny.org
revenue
$125.1M
expenses
$117.8M
net assets
$103.8M
employees
5,517
volunteers
6
program ratio
92%
mission · from form 990

TO SERVE SEVERELY DISABLED INDIVIDUALS IN NY THAT RECEIVE PERSONAL CARE ASSISTANCE SERVICES.

profile · synthesized from sources

Concepts of Independence Inc is a nonprofit facilitator for New York State's Consumer Directed Personal Assistance Program (CDPAP), helping individuals with disabilities and chronic illness hire and manage their own caregivers. The organization supports both consumers and personal assistants with enrollment, compliance, training, and multilingual guidance. Founded in the 1980s, it operates statewide as a mission-driven intermediary within the Medicaid program.

named programs · 1 · from sources

What they call their work

CDPAP Facilitation
Provides end-to-end support for consumers and personal assistants navigating the Consumer Directed Personal Assistance Program, including enrollment, compliance, multilingual assistance, and technical guidance on timekeeping and documentation.
activities · 2 groups

What they do

  • Consumer-Directed Personal Care Administration 2 activities
    • Administers and facilitates the CDPAP program in New York State
      Operates as a nonprofit administrator and facilitator of the Consumer Directed Personal Assistance Program (CDPAP), providing enrollment, compliance, and management support to consumers and personal assistants at no cost. Services include statewide, multilingual call center support, onboarding, document collection, timesheet guidance, and access to payroll resources.
    • Provides training and compliance support for caregivers and personal assistants
      Delivers training and guidance to personal assistants on CDPAP program rules, electronic time-tracking applications, administrative compliance, and payroll processes to ensure effective service delivery and regulatory adherence.
  • Long-Term Care Advocacy & Provider Support 1 activity
    • Advocates for consumer-directed personal care models
      Played a foundational role in the creation of the CDPAP program in the 1980s, contributing to the development of consumer-directed personal assistance services in New York State.
financials · form 990 · fy2024
revenue
Total revenue$125.11M
Contributions & grants$00%
Program service revenue$118.93M95%
Investment income$4.38M4%
Other revenue$1.80M
expenses
Total expenses$117.77M
Program expenses92%
Admin / overhead8%
Fundraising0%
Salaries & benefits$112.77M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$114.85M
Cash$111.64M
Investments$0
Liabilities$11.07M
Net assets$103.78M
Liquid reserves11.4 mo
6 years on record · 2019–2024 · YoY revenue -24.8%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 8
NameTitleHours/wkCompensation
ANTHONY CAPUTO CEO/PRESIDENT 30 $322K
MARIA MISCHKE DEPUTY DIRECTOR 30 $288K
ZBIGNIEW MEJRAN DIRECTOR OF IT 30 $195K
JOSEPH LAWLISS DIRECTOR OF OUTREACH 30 $194K
JOSE RODRIGUEZ DIRECTOR OF BILLING 30 $162K
BEATA KLAR-JAKUBOWSKI DIRECTOR OF CONTRACT 30 $156K
DONETTE TURNAGE DIRECTOR OF INTAKE 30 $150K
QI YI KUANG COMPTROLLER 30 $143K
board members · 6
  • JOAN VITIELLO — VICE PRESIDENT
  • JOHN LEWIS BROWN — DIRECTOR
  • JUDITH TSHIBANGU — SECRETARY
  • LOUISE WEATHERS — TREASURER
  • NANCY BROWN — CHAIRPERSON
  • ZOE AGIOS — DIRECTOR
relationships · 10

Who they work with

  • Joann V Partner — Board Vice President and consumer who uses Concepts' services
  • Marilyn S Partner — Founding Board Member and consumer who uses Concepts' services
  • Nancy B Partner — Board Chairperson and consumer who uses Concepts' services
  • New York Independent Assessor Program Government — Coordinates with NYIAP for independent medical evaluations to determine CDPAP eligibility.
  • New York Independent Assessor Program Government — Directs consumers to NYIAP for independent medical evaluation to determine CDPAP eligibility.
  • New York State Department of Health Government — Uses the NYS DOH Optional Facilitator Selection Form to designate Concepts of Independence as a CDPAP facilitator.
  • PPL Government — Statewide fiscal intermediary that handles payroll and official paperwork for CDPAP, with Concepts of Independence serving as the facilitator.
  • PPL Government — Statewide fiscal intermediary through which CDPAP personal assistants are paid; Concepts of Independence works with PPL to register and support caregivers
  • Public Partnerships LLC Partner — Coordinates with PPL as the state’s financial agent for CDPAP to support consumer and caregiver enrollment, compliance, and timekeeping.
  • Public Partnerships LLC Partner — Works with Public Partnerships LLC as the state’s financial agent for CDPAP to onboard consumers and caregivers through the PPL@Home portal.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Administrative Enablement for Family Caregivers
    methodology: administrative support for family-directed care
    By managing payroll and administrative tasks for CDPAP caregivers, we reduce barriers to participation and improve reliability of care, because offloading logistical burdens enables caregivers to focus on care quality.
  • Consumer-Directed Care Model
    methodology: consumer_directed_care
    By enabling consumers to select, hire, and manage their own personal care assistants, we promote autonomy and independence in care delivery, because direct control over caregiving relationships improves personal dignity and care outcomes.
  • Institutional Knowledge-Driven Support
    methodology: institutional-knowledge-driven support
    By leveraging deep, historically rooted expertise in CDPAP design and implementation, we provide more effective and adaptive support to caregivers and consumers, because foundational program knowledge enhances system navigation and responsiveness.
  • Localized, Multilingual Support with Personal Follow-Through
    methodology: localized-multilingual-support
    By delivering culturally and linguistically tailored support with consistent personal engagement, we improve accessibility and reliability for diverse CDPAP participants, because trust and clarity in communication increase program retention and effectiveness.
  • Specialized Service Model
    methodology: specialized service model
    By focusing exclusively on CDPAP, we maintain deep expertise and agility in service delivery, because program-specific concentration enables faster adaptation to policy changes and higher-quality support.