What they reported doing
- #1 primary $780KINDEPENDENT LIVING UNIT-THIS TEAM PROVIDES SERVICES AND SUPPORTS TO ANY PERSON OF ANY AGE WITH ANY DISABILITY. THE FIVE CORE INDEPENDENT LIVING SERVICES ARE PEER SUPPORT, INFORMATION AND REFERRAL, ADVOCACY, INDEPENDENT LIVING SKILLS DEVELOPMENT AND TRANSITION SUPPORT. ADDITIONAL SERVICES INCLUDE ARCHITECTURAL BARRIER ASSESSMENT, BENEFITS ADVISEMENT, BUSINESS/INDUSTRY CONSULTATION, FAMILY SUPPORT SERVICES, HOUSING SUPPORTS, RECREATIONAL SERVICES, YOUTH SERVICES, VOCATIONAL SERVICES AND VOTER REGISTRATION. THE ORGANIZATION PROVIDED SERVICES TO ADULTS WITH A VARIETY OF DISABILITIES INCLUDING SENSORY, PHYSICAL, EMOTIONAL AND OTHER CATEGORIES.
- #2 $839KADULT MENTAL HEALTH SERVICES-THIS TEAM PROVIDES SERVICES AND SUPPORTS FOR ADULTS WITH BEHAVIORAL HEALTH DISABILITIES. THESE SERVICES INCLUDE ADVOCACY, BENEFITS ADVISEMENT, INDEPENDENT LIVING SKILLS DEVELOPMENT, INFORMATION AND REFERRAL, PEER SUPPORT AND VOTER REGISTRATION. THE ORGANIZATION PROVIDED SERVICES TO INDIVIDUALS WITH COGNITIVE AND MENTAL HEALTH DISABILITIES.
What they call their work
What they do
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Disability Rights Advocacy & Self-Advocacy Empowerment 2 activities
- Community education and outreach on disability rights and accessibilityConducts community engagement, public education, and outreach events—including ADA Celebrations and Mental Health Walks—to promote awareness of disability rights, accessibility requirements, and civic participation.
- Peer-run advocacy for disability rights and equityOperates as a peer-run organization that collaborates with communities to advance accessibility, equity, and rights for people with disabilities through systemic advocacy and education on laws such as the ADA.
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Peer-Led Mental Health Support Groups 1 activity
- Capacity building through peer-led support groups and family engagementSupports the formation and development of disability-related peer and family support groups and delivers family engagement activities, peer-led empowerment services, and caregiver skill-building programs.
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Supported Employment for Developmental Disabilities 1 activity
- Direct independent living services for adults with disabilitiesProvides core independent living services including peer support, information and referral, individual and systems advocacy, independent living skills training, and transition assistance to hundreds of adults annually across various disability types.
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Long-Term Care Advocacy & Provider Support 1 activity
- Long-Term Care Ombudsman Program for nursing home residentsProvides advocacy, complaint resolution, and support for resident and family councils in long-term care facilities, while educating government agencies and care providers on resident rights and quality care standards.
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School-Based Mental Health and Family Support 1 activity
- Mental health and behavioral support services for children and familiesDelivers psychosocial rehabilitation, prevocational training, family support, and caregiver education to children aged 0–19 with emotional, intellectual, or behavioral health disabilities and their families, serving over 400 annually.
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Who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| AILEEN MARTIN | EXECUTIVE DIRECTOR | 40 | $88K |
| BRITTANY PIERCE | FINANCE DIRECTOR | 40 | $53K |
- ANTHONY PISARSKI — BOARD MEMBER
- CLIFFORD BROWN — TREASURER
- DAVID LISCOMB — BOARD MEMBER
- DR JEANNE EMERY — BOARD MEMBER
- FELICIA PARKER — BOARD MEMBER
- JAYLYN YUHAS-HEAMES — BOARD MEMBER
- JUDY SHEAN — BOARD CHAIR
- KATELYN AUTRY-AGEN — BOARD MEMBER
- KEVIN MILLER — BOARD MEMBER
- LIREESA WHEELER — BOARD MEMBER
- PETER BOENNING — BOARD MEMBER
- RONALD GRIFFIN — VICE CHAIR
- SHANE BROWN — SECRETARY
- STEPHANIE HARRIS — BOARD MEMBER
Who they work with
- Child Adolescent Service System Program (CASSP) Network — Follows CASSP principles in the design and delivery of family support services.
- Disability Rights Education and Defense Fund Network — Cited as a source on the history of the ADA and aligned with the broader disability rights movement to which NRCIL belongs.
- Educational institutions Partner — Partners with educational institutions to arrange internships.
- Facebook Partner — Partnership includes member recognition and promotional mentions on Facebook.
- General Brown Superintendent of Schools Partner — Collaborates with school leadership to support families and students.
- New York State Education Department Funder — Provided the founding grant for NRCIL in 1987.
- Northern Regional Center for Independent Living (NRCIL) Government — NRCIL provides oversight to the Long Term Care Ombudsman Program in Jefferson, Lewis, and St. Lawrence Counties.
- communities Partner — Partners with communities to create sustainable accessibility and equity.
- community partners Partner — Collaborates with community partners to promote accessibility, inclusion, and independent living opportunities for people with disabilities.
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Consumer-Controlled Systems Changemethodology: consumer_driven_changeBy centering consumer feedback and self-direction in advocacy and program design, we produce more relevant and effective systems change because individuals with lived experience are best positioned to identify barriers and solutions to independent living.
- Family-Partnered, Child-Centered Caremethodology: family_partnered_careBy integrating family partnership and child-specific design into services, we improve outcomes because involving families as decision-makers and tailoring support to developmental needs increases relevance, engagement, and effectiveness.
- Integrated Community Participation Modelmethodology: integrated_community_participationBy advocating for inclusive, integrated environments over segregated settings, we improve societal participation and outcomes because all people with disabilities can contribute meaningfully when given equitable access and support.
- Peer-Led Empowerment Modelmethodology: peer_led_modelBy delivering services through staff and leadership with lived disability experience, we build trust, enhance engagement, and produce more effective advocacy and support outcomes because shared experience validates consumer expertise and fosters authentic accountability.