irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $4.51MREQUEST MANAGEMENT: FACILITATED 387 (368 IN 2023) COLLECTIONS OF BONE MARROW AND BLOOD STEM CELL PRODUCTS FROM UNRELATED VOLUNTEER DONORS, WHICH ARE TRANSPLANTED INTO PATIENTS, THUS PROVIDING A SECOND CHANCE AT LIFE FOR THOSE PATIENTS.
- #2 $1.66MDONOR RECRUITMENT: RECRUITED 39,102 (41,902 in 2023) VOLUNTEER BONE MARROW & BLOOD STEM CELL DONORS. THIS INCREASES THE CHANCES FOR PATIENTS DEALING WITH VARIOUS BLOOD CANCERS TO FIND A LIFE-SAVING DONOR MATCH. .
named programs · 4 · from sources
What they call their work
100 Club
Recognizes campuses that register at least 100 new donors in a single drive, encouraging competition and sustained engagement in donor recruitment.
College Program
Empowers college students to lead donor drives on campus, register new donors, and raise awareness about stem cell donation through peer-led events and clubs.
Donor Recruitment
Recruits volunteers aged 18–55 into the DKMS donor registry through public campaigns, social media outreach, and community events to increase match chances for patients.
Request Management
Facilitates the collection and delivery of bone marrow and blood stem cell donations from matched volunteers to patients in need of transplants.
activities · 2 groups
What they do
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Blood and Marrow Donation Drives 4 activities
- Conduct donor outreach and awareness campaignsPartners with organizations and leverages personal stories from donors and patients to raise public awareness about blood stem cell donation and the needs of blood cancer patients. Campaigns aim to increase donor registration and support.
- Facilitate bone marrow and blood stem cell collections for patient transplantsCoordinates the collection of bone marrow and peripheral blood stem cell donations from registered donors to enable life-saving transplants for patients with blood cancers and other diseases. Includes both in-person and contactless donation coordination.
- Provide swab kits and registration materials for at-home donor registrationDistributes tote bags and swab kits containing all necessary materials for individuals to register as potential donors from home, supporting broader access to the donor registry.
- Recruit and register potential bone marrow and blood stem cell donorsOrganizes in-person and virtual donor registration drives, including campus and community events, and distributes cheek swab kits for at-home registration to expand the international donor registry. Utilizes social media outreach and partnerships to increase donor sign-ups.
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Charity Event Organization 1 activity
- Support fundraising initiatives to advance donor registration and transplant accessEngages individuals and teams in fundraising activities, including charity racing through Team DKMS, to support donor recruitment, patient treatment, and transplant services. Provides race entries or covers fees for participants who fundraise.
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financials · form 990 · fy2024
revenue
Total revenue$69.11M
Contributions & grants$4.32M6%
Program service revenue$64.51M93%
Investment income$00%
Other revenue$272K
expenses
Total expenses$65.38M
Program expenses89%
Admin / overhead8%
Fundraising3%
Salaries & benefits$6.79M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$26.24M
Cash$10.85M
Investments$0
Liabilities$10.62M
Net assets$15.63M
Liquid reserves2.0 mo
4 years on record · 2020–2024 · YoY revenue +23.5%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 5
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Hannah De Simone | Head of Workup and Clinical Data | 40 | $160K |
| Tobias Riethmuller | Project Manager | 40 | $146K |
| Renata Fergusson | Team Lead, Administration, Transports, & Logistics | 40 | $140K |
| James Kirkland | Global Corporate Communications Manager | 40 | $137K |
| Kelly Taylor | Operations Manager | 40 | $130K |
board members · 9
- BENEDICT ABEL — DIRECTOR OF THE BOARD from 12/1/2024
- BERND WEINEL — TREASURER THRU 11/30/2024
- DR ALEXANDER SCHMIDT — SECRETARY OF THE BOARD THRU 11/30/2024
- DR EDITH WIENAND — SECRETARY OF THE BOARD from 12/1/2024
- DR ELKE NEUJAHR — VICE CHAIRWOMAN THRU 11/30/2024
- KATHARINA HARF — CHAIRWOMAN OF THE BOARD
- PROF DR RICHARD CHAMPLIN — DIRECTOR OF THE BOARD
- STEPHANIE BREUCHLE — TREASURER OF THE BOARD from 12/1/2024
- VINAY SUMANT — DIRECTOR OF THE BOARD
relationships · 25
Who they work with
- Aaron Clark Partner — DKMS donor who was matched and provided stem cells to Alec for a life-saving transplant.
- C.S. Mott Children’s Hospital Partner — Provides medical care for Kataleya, a patient in need of a bone marrow transplant.
- California Baptist University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Colorado School of Mines Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Creative Explained Partner — Collaborates with DKMS to produce digital content that promotes awareness of and engagement in blood stem cell donation.
- Elijah Partner — Patient with Acute Myeloid Leukemia who received a life-saving bone marrow transplant facilitated by DKMS.
- Emporia State University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Houston Christian University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Kim Hendrickson Partner — Encouraged her husband to register as a stem cell donor during a DKMS donor drive at her school.
- Montclair State University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Nicholls State University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Nick Partner — Bone marrow donor recruited and coordinated by DKMS to provide life-saving donation to patient Elijah.
- Saint Louis University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- South Plains College Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Stories that tell what we fight for Partner — Features patient and donor stories to illustrate the impact of its work.
- TCS New York City Marathon Partner — DKMS is a charity sponsor for the TCS New York City Marathon, engaging participants to fundraise in support of blood cancer patients.
- TD Five Boro Bike Tour Partner — Collaborates with the TD Five Boro Bike Tour to engage cyclists in fundraising efforts against blood cancer.
- Tarleton State University Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- United Airlines NYC Half Marathon Partner — Partners with the United Airlines NYC Half Marathon to mobilize runners raising funds for blood cancer patient support.
- University of Alabama Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- University of Central Arkansas Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- Vlogbrothers Partner — Collaborated with DKMS to raise awareness about stem cell donation and encourage public registration.
- WNDU Partner — Local news outlet that aired a segment on Kataleya’s story to raise awareness about the need for bone marrow donors.
- Williams College Partner — Campus that joined the DKMS 100 Club by registering at least 100 new stem cell donors through a donor drive.
- not specified Partner — Provides prepaid return envelopes for swab kit submissions, indicating a partnership with a postal or shipping service.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Integrated Patient-Donor Matching Systemmethodology: patient-donor_matchingBy maintaining a large, genetically diverse donor registry, we increase the likelihood of matching blood cancer patients with life-saving stem cell donors because match probability scales directly with registry size and genetic diversity.
- Minimal-Barrier Donor Enrollmentmethodology: minimal-barrier_enrollmentBy using a simple, painless cheek swab to enroll potential donors, we increase participation in the registry because low-friction, accessible methods reduce psychological and physical barriers to entry, especially among younger demographics.
- Peer and Influencer Amplification Modelmethodology: peer_amplificationBy activating social networks through peer-to-peer sharing, influencers, and volunteer coaching, we scale donor recruitment because trusted personal and public voices reduce skepticism and increase social proof and reach.
- Story-Based and Identity-Driven Engagementmethodology: story-based_engagementBy leveraging personal stories, the "genetic twin" narrative, and social identity (e.g., peer influence, student leadership), we motivate donor registration because emotional resonance and personal identification increase perceived relevance and moral obligation.
- Targeted Community and Demographic Recruitmentmethodology: age-targeted_recruitmentBy focusing on high-density, health-eligible populations—such as college students aged 18–55—we increase the efficiency and success of donor matching because younger, healthier registrants are more likely to be selected for donation and complete the process.