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I'm Not Done Yet Foundation Inc

Garden City, NY · EIN 825036779 · Form 990 · FY2025 · NTEE T30 · Philanthropy & Grantmaking · Small ($100K-$1M) · imnotdoneyetfoundation.org
revenue
$694K
expenses
$602K
net assets
$293K
employees
0
volunteers
250
program ratio
89%
mission · from form 990

Helping adolescent patients with serious, long-term, and chronic illness transition from pediatrics to adulthood.

profile · synthesized from sources

The I'm Not Done Yet Foundation supports adolescent and young adult patients with serious, long-term, and chronic illnesses, particularly cancer, as they transition from pediatric to adult care. The organization funds programs focused on fertility preservation, peer support, and psychosocial care, primarily through grants to institutions like Duke University and NYU Winthrop. It was founded in memory of Bobby Menges, a Duke student who died from cancer in 2017.

irs program accomplishments · form 990 part iii · fy2025

What they reported doing

  1. #1 primary $207K
    Grant to Duke University Health System DCI Teen and Young Adult Oncology Program, Atlas Adolescent and Young Adult Fund and DCI Teen and Young Adult Oncology Fertility Program.
  2. #2 $48K
    Grant to Elephants and Tea Adolescent and Young Adult Program for Oncology Workforce Education and Resources.
named programs · 4 · from sources

What they call their work

Coffee-Shop Style Care Space
Supports development of a youth-friendly environment at NYU Winthrop Hospital designed to help older adolescent patients feel more at home during treatment.
Fertility Preservation Program
Funds fertility services for young adult cancer patients undergoing treatment at Duke University Medical Center.
Peer-to-Peer Support Program
Supports peer counseling and emotional well-being initiatives for adolescent and young adult cancer patients at Duke Cancer Institute and NYU Winthrop Hospital.
Psychosocial Care Research
Five-year, $500,000 pledge to Hospital for Special Surgery in New York City to study and improve psychosocial care for young adults with chronic illness.
activities · 5 groups

What they do

  • Blood and Marrow Donation Drives 1 activity
    • Bone marrow donor registry drives
      Collects bone marrow donor samples through cheek swabs at events like Shave & Buzz, contributing to national registries and expanding potential matches for patients in need of transplants.
  • Cancer Patient Financial and Practical Support 1 activity
    • Direct support services for AYA cancer patients
      Provides direct services including virtual peer support meetups for male adolescents and young adults, wish-granting programs for young adults lacking access to hope, and fertility preservation grants to reduce financial barriers for those facing cancer treatment. Also supports innovative research and offers trusted resources to the AYA cancer community.
  • Cancer Research Funding 1 activity
    • Funding programs for adolescent and young adult cancer patients and survivors
      Awards grants totaling over $3.2 million to support programs that improve quality of life, fertility preservation, peer support, education, and innovative research for adolescent and young adult (AYA) cancer patients and survivors. Funds are directed to institutions and organizations including Duke University Health System, Penn State University, First Descents, and Elephants and Tea.
  • Charity Event Organization 1 activity
    • Fundraising events for AYA cancer support
      Organizes and conducts fundraising events such as the Shave & Buzz and Hoops for Hope, raising over $1.55 million since 2016, including $285,000 in 2026 and $267,000 in 2025. All funds raised are directed to fertility preservation and peer-to-peer support programs at Duke University Medical Center and expanded to include UNC in 2023.
  • Volunteer Engagement and Capacity Support 1 activity
    • Volunteer and donor engagement
      Engages over 8,500 volunteers and donors across 45 U.S. states and 15 countries to support its mission and programs for AYA cancer patients and survivors.
financials · form 990 · fy2025
revenue
Total revenue$694K
Contributions & grants$481K69%
Program service revenue$00%
Investment income$7K1%
Other revenue$206K
expenses
Total expenses$602K
Program expenses89%
Admin / overhead2%
Fundraising9%
Salaries & benefits$0
Grants paid out$536K
Largest expense lineOther
balance sheet
Total assets$293K
Cash$187K
Investments$106K
Liabilities$0
Net assets$293K
Liquid reserves5.8 mo
6 years on record · 2020–2025 · YoY revenue +48.6%
leadership · form 990 part vii · fy2025

Who runs it

board members · 20
  • Alex Schlessinger — Young Adult Advisory
  • Alexandra Walker — Young Adult Advisory
  • Cameron Walker — Young Adult Advisory
  • Finn Doherty — Young Adult Advisory
  • George Gallagher — Young Adult Advisory
  • Henry Groome — Young Adult Advisory
  • Julia Merrill — Young Adult Advisory
  • Kyle Abrahm — Young Adult Advisory
  • Mark Schreiber — Young Adult Advisory
  • Max Huber — Young Adult Advisory
  • Megan Hardesty — Young Adult Advisory
  • Michael Shoichet — Young Adult Advisory
  • Nate Drebin — Young Adult Advisory
  • Ryan Fader — Young Adult Advisory
  • Samuel Reif — Young Adult Advisory
  • Sean Doherty — Young Adult Advisory
  • Tyler Fenton — Young Adult Advisory
  • Vik Manocha — Young Adult Advisory
  • Wyatt Bui — Young Adult Advisory
  • Zachary Glassband — Young Adult Advisory
relationships · 12

Who they work with

  • Circle of Care Partner — Administers the Education Award program in partnership with I'm Not Done Yet Foundation to support pediatric cancer survivors pursuing higher education.
  • Duke University Partner — Host institution for the Shave & Buzz Club and primary beneficiary of fundraising efforts
  • Duke University Health System Partner — Funded to support teen and young adult oncology programs and fertility services.
  • Duke University Medical Center Partner — Primary recipient of funds for adolescent and young adult cancer patient programs, including fertility preservation and peer support
  • Elephants and Tea Partner — Funded to support oncology workforce education and resources for adolescents and young adults.
  • First Descents Partner — Funded to provide life-changing outdoor adventures for young adults impacted by cancer or other serious health conditions.
  • Garden City Fire Department Partner — Hosted the Memorial Blood Drive at its facility on August 13th.
  • Penn State University Partner — Funded to support Four Diamonds Childhood Cancer's efforts to conquer childhood cancer.
  • Pi Kappa Alpha (PIKE) Fraternity Partner — Originating organization of the first Shave & Buzz event at Duke; ongoing partner in fundraising and event execution
  • Roosevelt Field Mall Partner — Hosted an upcoming blood drive in October.
  • University of North Carolina Partner — Collaborating institution through PIKE fraternity partnership to expand fundraising and awareness for AYA cancer patients
  • We Got This Partner — Partner organization providing curated resources for AYA patients and their families
strategies · 3

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Developmental Transition Support
    methodology: transition-support-for-adolescents
    By supporting AYA patients in transitioning from pediatric to adult healthcare systems, the organization promotes continuity of care and patient empowerment, because structured guidance during this vulnerable developmental phase reduces disengagement and improves long-term health outcomes.
  • Early Integration of Fertility Preservation in Cancer Care
    methodology: early-intervention fertility preservation
    By initiating fertility preservation discussions and interventions before cancer treatment begins, the organization increases the likelihood of future biological parenthood and reduces psychological distress, because preserving reproductive potential affirms normalcy, identity, and long-term life goals for young adults facing sterilizing treatments.
  • Patient-Centered Holistic Care Model
    methodology: patient-centered_care
    By addressing psychosocial, emotional, and developmental needs alongside medical treatment, the organization improves well-being and engagement in care for adolescent and young adult (AYA) cancer patients, because treating them as whole persons — not just patients — fosters resilience, hope, and autonomy during critical life transitions.