named programs · 3 · from sources
What they call their work
Annual Walk for Brain Tumor Research
Community fundraising event held in recognition of Brain Tumor Awareness Month, supporting both the foundation and Cold Spring Harbor Laboratory research
Community Education and Awareness
Programs to educate the public about brain tumors, including information on glioblastoma and anaplastic astrocytoma, and resources for patients and families
Healthcare Professional Liaison Service
Provides patients and families with access to a healthcare professional who helps explain diagnoses and treatment options, serving as a resource alongside the patient’s medical team
activities · 3 groups
What they do
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Cancer Research Funding 2 activities
- Funding glioblastoma research at Cold Spring Harbor LaboratoryRaises and distributes funds to support research on glioblastoma multiforme at Dr. Mills' lab at Cold Spring Harbor Laboratory, including awarding a $25,000 grant; proceeds from the annual walk event are split between the lab and the foundation.
- Supporting immunotherapy research for glioblastomaSupports scientific research into immunotherapies for glioblastoma multiforme, including immune checkpoint inhibitors, therapeutic vaccines, and combination treatments.
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Charity Event Organization 1 activity
- Organizing annual community events for awareness and fundraisingHosts an annual walk event at Sunken Meadow State Park during Brain Tumor Awareness Month, combined with a picnic brunch, bake sale, and raffle to raise awareness and funds for brain tumor research and support services.
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Cancer Patient Financial and Practical Support 1 activity
- Providing patient and family support servicesDelivers knowledge, emotional support, and medical guidance to brain tumor patients and their families, including access to a healthcare professional who serves as a resource and liaison. Programs are designed to support patients throughout their treatment journey.
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financials · form 990EZ · fy2022
revenue
Total revenue$34K
Contributions & grants$34K100%
Program service revenue$00%
Investment income$330%
Other revenue—
expenses
Total expenses$35K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$30K
balance sheet
Total assets$30K
Cash—
Investments—
Liabilities—
Net assets$30K
1 years on record · 2022–2022
relationships · 9
Who they work with
- Alea Mills Partner — Supports research led by Dr. Alea Mills at Cold Spring Harbor Laboratory focused on identifying molecular vulnerabilities in glioblastoma.
- Cold Spring Harbor Laboratory Partner — Collaborates with the foundation to support glioblastoma research through funded grants.
- Cold Spring Harbor Laboratory Partner — Funds and collaborates with researchers at Cold Spring Harbor Laboratory, including Dr. Alea Mills' lab, to advance glioblastoma research.
- Cold Spring Harbor Laboratory Partner — Receives half of the proceeds from the annual walk event to support brain tumor research.
- Dr. Alea Mills Partner — Receives funding from the foundation to conduct research on glioblastoma at Cold Spring Harbor Laboratory.
- Dr. Kevin Mullins Partner — Neurosurgeon who provided medical guidance throughout Darlene's brain tumor journey.
- Facebook Network — Has a presence on Facebook to share information and engage supporters.
- Instagram Network — Has a presence on Instagram to share information and engage supporters.
- LI Brain and Spine Partner — Employer and medical practice where Darlene received neurosurgical care and guidance during her treatment.
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Funding Targeted Research Through Collaborationmethodology: collaborative_research_partnershipBy funding molecular research and fostering collaborative partnerships between scientific institutions and patient-family foundations, the foundation accelerates progress toward effective glioblastoma treatments, because scientific innovation is enhanced when researchers and patient advocates work together toward shared goals.
- Patient-Centered Support and Navigationmethodology: patient_navigationBy providing emotional support, knowledge, and a dedicated liaison service, the foundation improves patient and family well-being during brain tumor diagnosis and treatment, because informed and supported patients are better equipped to navigate complex medical decisions and systems.