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EAST END DISABILITY ASSOCIATES INC

RIVERHEAD, NY · EIN 113318718 · Form 990 · FY2024 · NTEE P80 · Human Services · Large ($10M-$50M) · eed-a.org
revenue
$40.7M
expenses
$40.7M
net assets
$7.7M
employees
1,229
volunteers
20
program ratio
91%
mission · from form 990

DEDICATED TO CREATING PRACTICAL SOLUTIONS AND PROVIDE INNOVATIVE SUPPORTS TO PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ON THE EAST END OF LONG ISLAND, NY

profile · synthesized from sources

East End Disability Associates Inc. (EEDA) is a nonprofit organization founded in 1992 by parents advocating for children with intellectual and developmental disabilities (IDD). The organization provides a range of supports and services on the East End of Long Island, NY, including residential, day, and self-direction programs. EEDA operates as part of the Kinexion Network and serves over 800 individuals through person-centered, community-based models.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $10.20M
    HCBS SUPERVISED IRA: NINE (9) PERMANENT RESIDENCES FOR DEVELOPMENTALLY DISABLED INDIVIDUALS LOCATED IN COMMUNITIES IN THE EASTERN END OF LONG ISLAND NY 20,967 UNITS OF SERVICE.
  2. #2 $4.27M
    HCBS GROUP DAY HABILIATION: DAY PROGRAMS FOR DEVELOPMENTALLY DISABLED CONSUMERS. MULTIPLE LOCATIONS LOCATED ON THE EAST END OF LONG ISLAND, NY 19,383 UNITS OF SERVICE.
named programs · 9 · from sources

What they call their work

Adult Socialization Services
Social and recreational activities for adults with IDD to build friendships and explore leisure interests through games, arts, and community outings.
Community Habilitation Program
Supports individuals with IDD in their homes and communities to develop independence in budgeting, cooking, transportation, and social skills.
Crisis Supports
24/7 in-home crisis intervention for families of individuals with IDD, including behavioral support and caregiver emergency assistance.
Day Program
Three day programs focusing on community involvement, life skills, arts, fitness, and vocational training for individuals with IDD.
Individualized Support Services (ISS)
OPWDD housing subsidy program assisting individuals with IDD in paying rent, mortgage, and utilities to support independent living.
Kindness Compass Social Club
Social club offering peer-based recreation and community engagement opportunities for individuals with IDD.
Overnight Respite Program
Recreational overnight stays for adults and children aged eight and older with IDD, providing relief for family caregivers in Suffolk and Nassau Counties.
Residential Program
Ten community-based homes providing supervised living for individuals with intellectual and developmental disabilities on the East End of Long Island.
Self-Direction Services
Support brokerage and fiscal intermediary services enabling individuals with IDD to customize their care plans, hire staff, and manage budgets.
activities · 9 groups

What they do

  • Residential Support for Developmental Disabilities 3 activities
    • Administrative and Financial Support to Affiliate Organizations
      Provides shared administrative and financial services—including Finance, IT, HR, Compliance, Purchasing, Maintenance, and Logistics—to a network of seven disability service organizations across Long Island, enabling cost-effective operations and collective service delivery to over 10,000 individuals.
    • Community Habilitation Services
      Provides individualized community habilitation services to support individuals with intellectual and developmental disabilities in achieving personal goals such as budgeting, shopping, socialization, volunteering, medical appointment attendance, home maintenance, and household safety; services are offered several hours per week and include participants living independently or with family members.
    • Residential Services for Individuals with Developmental Disabilities
      Operates nine to ten supervised residential homes for individuals with intellectual and developmental disabilities on the East End of Long Island, providing permanent or supported living arrangements.
  • Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
    • Advocacy for Full Inclusion and Equity
      Advocates for individuals with disabilities by promoting a community centered on full inclusion, equity, and self-advocacy, including through leadership development programs and training.
  • Community Art Education Workshops 1 activity
    • Creative Arts Partnership Program
      Introduced and operates a creative arts program in partnership with The Gateway Performing Arts Center of Suffolk County, offering drum classes, theater workshops, and museum-inspired art activities to build life skills and self-expression.
  • 24/7 Crisis and Warmline Support Services 1 activity
    • Crisis Support Services
      Provides 24/7 crisis support services for families of individuals with developmental disabilities in Nassau and Suffolk Counties, including in-home assessments and development of crisis intervention plans.
  • Day Habilitation Services 1 activity
    • Day Habilitation and Community-Based Day Programs
      Operates three to multiple day programs on Long Island offering structured activities in self-advocacy, culinary arts, health and fitness, horticulture, visual and performing arts, computer training, financial literacy, and socialization for individuals with intellectual and developmental disabilities.
  • Emergency Rental Assistance and Eviction Prevention 1 activity
    • ISS Housing Subsidy Program Administration
      Administers the ISS housing subsidy program to assist individuals with paying rent or mortgage, utilities, and other expenses, including providing Community Habilitation services to support household management and safety for participants.
  • Respite Care for Developmental Disabilities 1 activity
    • Respite Care Services
      Provides overnight respite care for individuals aged eight and older with intellectual and developmental disabilities in Suffolk and Nassau Counties, offering temporary relief to family caregivers and promoting personal growth during stays.
  • Guardianship and Representative Payee Services 1 activity
    • Self-Direction Support Services
      Provides self-direction services including Support Brokerage and Fiscal Intermediary services to assist individuals in developing and managing self-directed service budgets, with support in billing, payment processing, fiscal accounting, Medicaid compliance, and administrative functions.
  • Intake and Referral Coordination 1 activity
    • Service Coordination and Referral
      Follows up with individuals seeking services to collect documentation and information for access, and makes referrals to affiliate organizations or external programs for those who cannot be served directly.
financials · form 990 · fy2024
revenue
Total revenue$40.74M
Contributions & grants$927K2%
Program service revenue$39.83M98%
Investment income$20K0%
Other revenue$-31K
expenses
Total expenses$40.74M
Program expenses91%
Admin / overhead9%
Fundraising0%
Salaries & benefits$29.23M
Grants paid out$848K
Largest expense lineCompensation
balance sheet
Total assets$17.81M
Cash$2.90M
Investments$0
Liabilities$10.12M
Net assets$7.69M
Liquid reserves0.8 mo
3 years on record · 2020–2024 · YoY revenue +11.3%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 11
NameTitleHours/wkCompensation
WALTER STOCKTON CEO/PRESIDENT 4 $807K
MARY BETH LICHTNEGER CHIEF OPERATING OFFICER 4 $585K
LISA MEYER FERTAL EXECUTIVE DIRECTOR 12 $536K
FRANK LOMBARDI FORMER COO 0 $440K
DANUTA PONIATOWSKI CFO AS OF DEC. 2024 4 $315K
JOY O' SHAUGNESSY ASSOCIATE EXECUTIVE DIRECTOR 40 $273K
MICHELLE NARVAEZ SR DIRECTOR OF OPERATIONS 40 $154K
JOHN HATTAN DIRECTOR OF RESIDENTIAL 40 $152K
DIANE LAGOUMIS DIRECTOR OF F I 40 $148K
NADINE MONTUORI RN 40 $125K
JAMES MARTINSEN TRUSTEE 0 $3K
board members · 14
  • BRIAN BOYLE — TREASURER
  • CHRIS MCCANN — VICE CHAIRMAN
  • DONNA LODUCA — TRUSTEE
  • DR FREDIC WEINBAUM — TRUSTEE
  • DR JOSEPH MORRIS — SECRETARY
  • GARY BENCIVENGA — TRUSTEE
  • HONORABLE PAUL PONTIERI — CHAIRMAN
  • JAY I ZUCKERMAN — TRUSTEE
  • JOHN AICHER ESQ — TRUSTEE
  • JOSHUA D GLEIBER — TRUSTEE
  • LEAH-MICHELLE JEFFERSON — TRUSTEE
  • LEONARD FEINSTEIN — TRUSTEE
  • MICHELE M KNAPP — TRUSTEE
  • NELLA HAHN — TRUSTEE
relationships · 31

Who they work with

  • C.A.S.T. Partner — Volunteer partnership.
  • Center for Developmental Disabilities (CDD) Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • Day Program Staff Partner — Coordinates with EEDA's Overnight Respite staff during drop-off and pick-up to support smooth transitions for individuals with disabilities.
  • East End Arts Partner — Partnership for drum classes and theater workshops.
  • Hallock State Park Preserve Partner — Volunteer partnership for park maintenance.
  • Head Injury Associates (HIA) Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • Heart of the Hamptons Partner — Volunteer partnership.
  • Independent Group Home Living (IGHL) Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • Island Harvest Partner — Volunteer partnership for food distribution.
  • Jim Lennon Partner — Contributed to the support of the America 250 building banner.
  • Kinexion Network — EEDA representatives serve on the Kinexion Board of Directors.
  • Kinexion Network Network — Member of the Kinexion Network and makes referrals to its affiliates.
  • Kinexion Network Network — Proud affiliate of the Kinexion Network.
  • Kinexion and Affiliates Network — East End Disability Associates operates under the Kinexion and Affiliates network.
  • Long Island Lending a Helping Hand Partner — Volunteer partnership for creating care packages.
  • Maryhaven Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • Max Moran Partner — Longtime supporter who donated original artwork and allows EEDA to sell prints, with all profits supporting the organization.
  • Medicaid Government — Funding source for EEDA's services, supporting individuals with intellectual and developmental disabilities.
  • NYS OCF Government — State oversight and funding agency for EEDA programs.
  • New Interdisciplinary School (NIS) Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • OPWDD Government — Primary oversight and funding agency for EEDA's services, including housing subsidies and program support.
  • OPWDD Government — Provides the housing subsidy used in EEDA's Individualized Support Services (ISS) program.
  • Office for People with Developmental Disabilities Government — Collaborates with EEDA to create residential homes for people with developmental disabilities.
  • Parrish Art Museum Partner — Partnership for touring exhibits and creating art inspired by museum visits.
  • Riverhead Chamber of Commerce Partner — Supported the America 250 building banner and local celebration initiatives.
  • Social Security Government — Funding source supporting individuals served by EEDA.
  • The Association for Technology Dependent Children ("Angela’s House") Partner — Affiliate organization within the Kinexion network providing services for people with disabilities.
  • The Dooner-Rockwell Charitable Trust Funder — Provided financial support for the America 250 building banner.
  • The Gateway Performing Arts Center of Suffolk County Partner — Partner organization with which EEDA established a partnership through its Creative Arts Program.
  • Town of Riverhead Partner — Supported the America 250 building banner and celebration efforts.
+ 1 more
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Experiential Learning in Real-World Contexts
    methodology: experiential_learning
    By embedding skill development in daily community activities, nature-based responsibilities, and creative arts, the organization builds life and social skills because hands-on, contextual learning deepens retention and self-expression.
  • Integrated Network Model for Lifelong Support
    methodology: networked_continuum_of_care
    By coordinating a network of affiliated agencies and centralizing administrative functions, the organization enables cost savings and resource reallocation to person-centered services, sustaining a continuum of lifelong supports because shared infrastructure enhances efficiency and service focus.
  • Person-Centered Planning with Family Collaboration
    methodology: person-centered_planning
    By developing individualized support plans in partnership with individuals and their families, the organization ensures services reflect personal goals and unique needs, improving quality of life because collaborative planning strengthens relevance and ownership of care.
  • Self-Directed Support Model
    methodology: self-direction
    By enabling individuals with intellectual and developmental disabilities to direct their own care, choose providers, and manage personalized service budgets, the organization increases autonomy and engagement because control over supports leads to more meaningful and effective outcomes.