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INTERNATIONAL CHILDRENS CONTINENCE SOCIETY INC

CHAPPAQUA, NY · EIN 473519166 · Form 990EZ · FY2021 · NTEE H40 · Medical Research · Micro (<$100K) · i-c-c-s.org
revenue
$78K
expenses
$5K
net assets
$195K
employees
mission · from form 990

toprovideeducationtophysicians,nurses,physicaltherapist,andnursepractitionersaboutvoidingdysfunctionandcontinenceinchildren.

profile · synthesized from sources

International Children's Continence Society (ICCS) is a nonprofit organization focused on advancing research and healthcare for pediatric continence disorders. It aims to improve the quality of life for children with bladder and bowel dysfunction through education, research, and professional collaboration. The organization serves a global community of healthcare professionals and disseminates knowledge on lower urinary tract and anorectal dysfunction in children.

named programs · 4 · from sources

What they call their work

Annual Congress
Joint scientific conference with organizations like SPU and PUNS, featuring sessions on pediatric urology, continence care, and research updates.
Interpretation of Uroflowmetry Course
Computer-enhanced learning course designed to help practitioners understand uroflowmetry curves and EMG data for diagnosing lower urinary tract symptoms.
Paediatric Continence Care E-Learning Course
Online course for professionals covering anatomy, physiology, assessment, and management of pediatric urinary and bowel dysfunction.
Urotherapy Book: a case-based approach
Online educational resource to disseminate knowledge on urotherapy and functional mechanisms of lower urinary tract dysfunction in children.
activities · 4 groups

What they do

  • Medical Research & Education Dissemination 1 activity
    • Develop and distribute educational resources for clinical practice
      Produces and disseminates clinical tools and educational materials including an online case-based Urotherapy book, e-learning courses on pediatric continence care and uroflowmetry interpretation, literature updates, abstract databases, and standardization documents to support healthcare professionals.
  • Medical Professional Education & Training 1 activity
    • Host professional development events and educational programs
      Organizes annual congresses, scientific symposia, webinars, and specialized training courses—such as advanced urodynamics and e-learning on uroflowmetry—for pediatric urology professionals in collaboration with organizations like SPU and PUNS. Events include updated guidelines, case-based learning, and joint scientific sessions.
  • Disease-Specific Clinical & Patient Education 1 activity
    • Provide professional education on pediatric voiding and continence dysfunction
      Offers education to physicians, nurses, physical therapists, and nurse practitioners on childhood bladder and bowel dysfunction, including clinical resources such as frequency/volume charts, bowel diaries, and questionnaires. Also provides public and professional education to improve children's health and quality of life.
  • Uncategorized 2 activities
    • Advance research on pediatric lower urinary and anorectal tract dysfunction
      Conducts and stimulates research on normal and disordered functions of the lower urinary and anorectal tracts in children, including diagnostic methods, new therapies, and conditions such as neurogenic and non-neurogenic dysfunction, nocturnal enuresis, and constipation. Publishes consensus documents and scientific findings to inform clinical practice.
    • Standardize terminology and clinical practices in pediatric continence care
      Develops standardized documents on terminology, diagnosis, and treatment protocols to promote consistency in clinical practice and professional dialogue regarding lower urinary tract dysfunction in children.
financials · form 990EZ · fy2021
revenue
Total revenue$78K
Contributions & grants$68K87%
Program service revenue
Investment income$140%
Other revenue
expenses
Total expenses$5K
Program expenses
Admin / overhead
Fundraising
Salaries & benefits
Grants paid out
balance sheet
Total assets$195K
Cash
Investments
Liabilities
Net assets$195K
1 years on record · 2021–2021
leadership · form 990 part vii · fy2021

Who runs it

board members · 4
  • Anka Niewhoff — Board Member
  • Stephen Yang — Board member
  • Ubijara Barosso — board Member
  • Yoshi Ohtomo — Board member
relationships · 11

Who they work with

  • American Academy of Pediatrics – Section on Urology Partner — Collaborated on educational initiatives and leadership through joint course delivery and executive committee participation
  • Continence Foundation of Australia Partner — Co-administers the Paediatric Continence Care e-learning course, provides discount codes, and handles course inquiries.
  • ICCS Network — Member organization participating in governance through elections and nominations.
  • International Continence Society Network — ICCS was modeled after the International Continence Society and acknowledges its foundational work in the field of continence disorders.
  • Laborie Funder — Sponsored the Interpretation of Uroflowmetry e-learning course through an educational grant.
  • MD MENTOR Partner — Collaborates with MD MENTOR to deliver webinars on urinary tract infections and ketamine-induced uropathy.
  • Neurourology and Urodynamics Network — Published a consensus document in the journal Neurourology and Urodynamics, which became one of its most downloaded articles.
  • Pediatric Urologic Nurses and Specialists Partner — Co-hosts the annual congress with ICCS.
  • Pediatric Urologic Nurses and Specialists Partner — Collaborated on educational sessions, panels, and an advanced urodynamics training course
  • Societies of Pediatric Urology Partner — Co-hosted joint scientific sessions and annual congress programming
  • Societies of Pediatric Urology Partner — Co-hosts the annual congress with ICCS.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Advancing Evidence-Based Knowledge to Improve Pediatric Continence Outcomes
    methodology: evidence_based_knowledge_advancement
    By generating, synthesizing, and disseminating evidence-based clinical knowledge, the organization improves health outcomes and quality of life for children with bladder dysfunction, because standardized, research-backed practices lead to more effective diagnosis and treatment.
  • Independent Nonprofit Research Model to Ensure Unbiased Expert Contribution
    methodology: independent_nonprofit_research_model
    By operating as an independent nonprofit funded by membership fees and unconditional grants, the organization advances pediatric continence research without commercial influence, because expert-driven, non-compensated collaboration preserves scientific integrity and promotes trustworthy clinical guidance.
  • Innovative Clinical Education Using Case-Based and Computer-Enhanced Learning
    methodology: experiential_clinical_education
    By using case-based scenarios and computer-enhanced visualization tools to train healthcare professionals, the organization improves clinical competence in pediatric urodynamics, because experiential and interactive learning leads to better retention and application of complex diagnostic skills than passive instruction.
  • Multidisciplinary Collaboration as a Mechanism for Clinical Innovation
    methodology: multidisciplinary_collaboration
    By integrating expertise across medical specialties and professional disciplines, the organization advances understanding and treatment of pediatric continence disorders, because complex childhood conditions require coordinated insights from urology, nephrology, psychology, and related fields to produce holistic care improvements.