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END SEPSIS INC
NEW YORK, NY · EIN 461021898 · Form 990 · FY2020 · Small ($100K-$1M) · endsepsis.org
revenue
$368K
expenses
$379K
net assets
$475K
employees
3
volunteers
25
program ratio
88%
mission · from form 990

TO PREVENT UNNECESSARY DEATH AND ILLNESS FROM SEPSIS THROUGH AWARENESS, EDUCATION, AND PROTOCOLS.

profile · synthesized from sources

END SEPSIS is a nonprofit organization founded in 2012 following the preventable sepsis death of 12-year-old Rory Staunton. The organization works to prevent unnecessary deaths and disabilities from sepsis through public policy advocacy, public awareness campaigns, and education initiatives. It focuses on improving sepsis recognition and treatment protocols in healthcare systems and schools, primarily in the United States, with a growing national and international policy presence.

named programs · 6 · from sources

What they call their work

End Maternal Sepsis Initiative
A campaign launched in 2019 to address maternal sepsis in the United States, funded by the U.S. Department of Health and Human Services, including webinars, digital media, and public service announcements.
Fly to Fight Sepsis
Viral awareness campaign launched with Roche Diagnostics encouraging the public to learn and share sepsis signs and advocate for policy change.
National Forum on Sepsis
Annual convening since 2013 bringing together leaders in government, public health, medicine, and patient advocacy to advance sepsis policy and awareness.
Rory Staunton’s Law
Legislation requiring all New York State healthcare professionals and K-12 schools to receive infection and sepsis prevention education every four years.
Rory’s Regulations
Mandatory sepsis protocols for hospitals in New York State requiring rapid identification and treatment of sepsis, credited with saving over 16,000 lives between 2014 and 2019.
Sepsis Families United
National movement of families impacted by sepsis, established in 2015 to champion sepsis policies and awareness at state and national levels.
activities · 7 groups

What they do

  • Healthcare Policy Advocacy 3 activities
    • Advocacy for federal and state sepsis legislation and funding
      Advocates for federal and state policymakers to introduce, co-sponsor, and pass sepsis-related legislation such as the SEPSIS Act and Rory’s Regulations. Successfully advocated for first-time line item funding for sepsis in the U.S. national budget and secured $3 million in CDC funding for sepsis initiatives in FY24.
    • Building grassroots advocacy capacity through Sepsis Families United
      Founded and operates Sepsis Families United, a national grassroots network that mobilizes advocates, provides action alerts, and supplies tools such as letter templates to engage hospital leaders and policymakers on sepsis policy and protocol adoption.
    • Policy advocacy for hospital sepsis protocols and public reporting
      Advocated for the adoption of evidence-based hospital sepsis protocols, including New York’s Rory’s Regulations, and promoted nationwide implementation of CDC’s Hospital Sepsis Program Core Elements. Successfully petitioned for public reporting of sepsis outcomes and influenced national policy through testimony and engagement with federal agencies.
  • Medical Research & Education Dissemination 1 activity
    • Conducting and disseminating sepsis research
      Conducts and disseminates research findings from studies published in JAMA, including analyses of antibiotic administration practices, pediatric sepsis burden, and mortality outcomes in hospitals implementing sepsis protocols, to inform clinical and policy decision-making.
  • Leadership & Policy Dialogue Forums 1 activity
    • Convening national leaders through the National Forum on Sepsis
      Hosts the annual National Forum on Sepsis to bring together leaders from government, public health, medicine, industry, and patient advocacy to advance national and global sepsis initiatives.
  • Medical Professional Education & Training 1 activity
    • Implementation of institutional sepsis programs in healthcare facilities
      Leads institutional sepsis programs at healthcare institutions such as MD Anderson Cancer Center and Cohen Children’s Medical Center to improve sepsis outcomes through early recognition and treatment protocols.
  • Disease-Specific Clinical & Patient Education 1 activity
    • Public education on sepsis awareness and prevention
      Provides public education on sepsis as a life-threatening condition, emphasizing early diagnosis and treatment to prevent fatalities. Offers downloadable materials, fact sheets, and a sepsis knowledge quiz to inform the public about signs, symptoms, and prevention of sepsis, including specialized resources for maternal and pediatric sepsis.
  • Grief Support Groups and Counseling 1 activity
    • Support for sepsis-affected families and survivors
      Provides resources, information, and support to families affected by pediatric sepsis, grieving families, and sepsis survivors, including educational and emotional support materials.
  • Uncategorized 3 activities
    • Advocacy for CDC and federal agency action on sepsis
      Successfully petitioned the CDC to add sepsis to its disease directory in 2012 and to release comprehensive Hospital Sepsis Program Core Elements in 2023. Secured designated funding for CDC and CMS to support sepsis data collection, guidelines, and public awareness.
    • K-12 sepsis and infection prevention education program
      Provides a comprehensive K-12 infection and sepsis curriculum free of charge to all public schools in New York State annually under Rory Staunton’s Law since 2017.
    • Public awareness campaigns on sepsis burden and impact
      Highlights national sepsis statistics, including 1.7 million annual diagnoses, 350,000 deaths, and sepsis as a factor in one out of every three hospital deaths, to raise public and policymaker awareness.
financials · form 990 · fy2020
revenue
Total revenue$368K
Contributions & grants$368K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$379K
Program expenses88%
Admin / overhead8%
Fundraising4%
Salaries & benefits$245K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$478K
Cash$473K
Investments$0
Liabilities$3K
Net assets$475K
Liquid reserves15.0 mo
1 years on record · 2020–2020
leadership · form 990 part vii · fy2020

Who runs it

paid leadership · 2
NameTitleHours/wkCompensation
ORLAITH STAUNTON CO-FOUNDER 30 $142K
CIARAN STAUNTON DIRECTOR 40 $53K
board members · 5
  • ANNE GOLDMAN — DIRECTOR
  • DR EDWARD CONWAY — DIRECTOR
  • LUCIA DESPAGNO — DIRECTOR
  • NIALL O'DOWD — DIRECTOR
  • ROSEMARY DEVLIN — DIRECTOR
relationships · 33

Who they work with

  • Agency for Healthcare Research and Quality Government — Conducted sepsis research following advocacy by END SEPSIS
  • Albany College of Pharmacy and Health Sciences Partner — END SEPSIS advisory board member is an adjunct faculty member in the Public Health Program
  • American Hospital Association Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • BARDA DRIVE Funder — Awarded a federal contract to END SEPSIS (Rory Staunton Foundation) in 2019 to develop a program reducing maternal sepsis in New York State.
  • CDC Government — Collaborates with CDC on sepsis guidelines, data collection, public awareness, and securing designated funding.
  • CMS Government — Advocated for directives to CMS to enhance sepsis outcome measures and coordination with CDC.
  • Centers for Disease Control Government — Collaborates with and supports the implementation of CDC-developed Hospital Sepsis Program Core Elements.
  • Centers for Disease Control and Prevention Government — Partnered with END SEPSIS to advance sepsis data integration and hospital program adoption
  • Centers for Medicare & Medicaid Services Government — Collaborates on development of national sepsis quality measures
  • Congress Government — Works with Congress on public policy and investments in sepsis care.
  • END SEPSIS Partner — Collaborates with END SEPSIS to advocate for policy improvements, raise awareness, and support sepsis survivors and grieving families.
  • Federation of American Hospitals Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • Global Sepsis Alliance Network — Ciaran Staunton joined the board of the Global Sepsis Alliance in 2023, aligning END SEPSIS with global sepsis leadership.
  • Global Sepsis Alliance Partner — END SEPSIS advisory board member serves on the Executive Committee and chairs the GSA Advance program
  • Greater New York Hospital Association Partner — END SEPSIS advisory board member previously served as Chief Medical Advisor for Quality and Health Care Delivery
  • Home Care Association of New York State Partner — END SEPSIS advisory board member is President and CEO
  • Infectious Diseases Society of America Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • MD Anderson Cancer Center Partner — END SEPSIS advisory board member is a clinical lead of the Institutional Sepsis Program at MDACC
  • New Jersey Hospital Association Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • New York State Department of Health Government — END SEPSIS advisory board member held leadership roles including Chief Medical Officer for the Office of Quality and Patient Safety
  • Northwell Health Partner — END SEPSIS advisory board members hold leadership roles at Northwell Health, including chief quality officer and healthcare administrator
  • Pediatric Infectious Diseases Society Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • Senator Chuck Schumer Government — Proclaimed September 13 as National Sepsis Awareness Day in 2022 at the request of END SEPSIS.
  • Sepsis Alliance Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • Sepsis Families United Coalition — Grassroots community of families impacted by sepsis that conducts sustained advocacy on behalf of END SEPSIS INC.
  • Society for Healthcare Epidemiology of America Partner — Endorsed the SEPSIS Act alongside END SEPSIS
  • State University of New York at Albany Partner — END SEPSIS advisory board member teaches in the MSW Program and serves on the Curriculum Committee
  • Surviving Sepsis Campaign Partner — END SEPSIS advisory board member is a founding and current member of the SSC executive committee
  • US Department of Health and Human Services Funder — Funded the End Maternal Sepsis initiative launched by END SEPSIS in 2019.
  • White House Government — Collaborates with the White House on sepsis policy initiatives.
+ 3 more
strategies · 3

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Education-Driven Early Detection and Empowerment
    methodology: patient_education_and_empowerment
    By equipping the public and high-risk populations with knowledge and tools to recognize sepsis symptoms and advocate for care, the organization improves early detection and treatment outcomes because informed individuals are more likely to seek timely medical intervention.
  • Evidence-Based Hospital Sepsis Programs with Leadership Accountability
    methodology: evidence_based_hospital_sepsis_programs
    By implementing standardized, CDC-aligned sepsis protocols within hospitals supported by leadership commitment and multidisciplinary teams, the organization improves sepsis care because institutional accountability and evidence-based frameworks ensure consistent, timely treatment.
  • Grassroots Advocacy Powered by Lived Experience
    methodology: lived_experience_advocacy
    By mobilizing families and survivors of sepsis to share personal narratives, the organization drives public awareness and policy change because lived experience generates authentic, compelling advocacy that influences both healthcare systems and lawmakers.