named programs · 4 · from sources
What they call their work
#lifeAhead April Awareness Campaign
Annual awareness campaign during Oral, Head and Neck Cancer Awareness Month featuring survivor stories to promote hope and survivorship.
Clinical Trial Finder
Resource to help patients and families find and explore clinical trials relevant to head and neck cancer.
News from SPOHNC Newsletter
Newsletter providing timely articles, research updates, and support information for survivors, families, and health professionals.
Your Guide to Head and Neck Cancer
Animated educational resource for patients, caregivers, and others interested in learning about head and neck cancer.
activities · 5 groups
What they do
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Cancer Awareness and Education Initiatives 2 activities
- Conducts awareness and community engagement eventsHosts awareness activities such as oral cancer screenings, educational fairs, tasting events, and movement-based classes during Oral, Head and Neck Cancer Awareness Month to engage the public and promote early detection and survivorship.
- Runs public awareness campaigns for head and neck cancerLeads advocacy initiatives such as the #lifeAhead campaign during Oral, Head and Neck Cancer Awareness Month, using personal survivor stories to raise public awareness and highlight the experience of living beyond cancer.
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Medical Research & Education Dissemination 1 activity
- Distributes educational resources and materials on head and neck cancerProduces and provides access to a wide range of educational content, including animated guides, webinars, articles on emerging treatments (e.g., AI in diagnosis), PDQ® cancer treatment summaries, and clarification on which cancers are classified as head and neck cancers. Materials are designed for patients, caregivers, and the public.
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Healthcare Provider Directories and Clinical Support Services 1 activity
- Facilitates access to clinical trialsOperates a Clinical Trial Finder tool and provides news and educational information about clinical trials—including their purpose, phases, and processes—to help patients and families locate and understand relevant research opportunities.
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Cancer Peer Support & Wellness Programs 1 activity
- Provides emotional and educational support to patients and caregiversOffers a supportive care program and network that delivers emotional and educational support to individuals affected by head and neck cancer, including access to trained survivor volunteers, recorded personal stories, and mentorship through the National Survivor Volunteer Network. The organization operates over 100 local chapters across the U.S. and enables the establishment of local support groups.
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Comprehensive Cancer Care and Survivorship 1 activity
- Provides follow-up care guidance for survivorsOffers detailed recommendations for post-treatment monitoring, including regular stoma, mouth, neck, throat, and dental exams, ongoing diagnostic testing (imaging, blood work), thyroid and pituitary function checks after radiation, and smoking cessation counseling to reduce recurrence and second cancer risks.
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financials · form 990 · fy2024
revenue
Total revenue$519K
Contributions & grants$425K82%
Program service revenue$10K2%
Investment income$84K16%
Other revenue$0
expenses
Total expenses$625K
Program expenses86%
Admin / overhead14%
Fundraising0%
Salaries & benefits$342K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$2.50M
Cash$649K
Investments$1.85M
Liabilities$0
Net assets$2.50M
Liquid reserves47.9 mo
5 years on record · 2020–2024 · YoY revenue -42.2%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| MARY ANN CAPUTO | EXECUTIVE DIRECTOR | 35 | $130K |
relationships · 14
Who they work with
- Alexander T. Pearson, MD, PhD Partner — Collaborates on educational content about advancing head and neck cancer treatment with artificial intelligence.
- Back40 Web Design Partner — Website design, support and hosting
- David P. Wolk, MD Partner — Head and neck surgeon who encouraged the founding of SPOHNC.
- Dr. London, MD Partner — Collaborates on educational content about sinonasal malignancies and nasopharyngeal cancer.
- Food and Drug Administration Government — Submits clinical trial data for FDA approval between phases of human testing.
- Grants from sponsors and partners Funder — Sponsors and partners provide financial support that enables SPOHNC’s work.
- James J. Sciubba, DMD, PhD Partner — Director of Dental Care at Long Island Jewish Medical Center who supported the founding of SPOHNC.
- Long Island Jewish Medical Center Partner — Collaborated with medical professionals from this institution in the founding of SPOHNC.
- National Cancer Institute Government — References NCI’s Follow-Up Medical Care page as a source of additional information.
- National Cancer Institute Government — Source of clinical trial information materials used by SPOHNC.
- National Cancer Institute Partner — Links to NCI's PDQ® cancer treatment summaries and references NCI-sponsored clinical trials and research.
- Ravindra Uppaludi, MD, PhD Partner — Collaborates on educational content about integrating immunotherapy into surgical management of head and neck cancer.
- Ryan S. Lee, DDS Partner — Collaborates on educational content about dental implants after head and neck cancer treatment.
- SPOHNC Medical Advisory Board Network — Comprised of distinguished head and neck physicians from top comprehensive cancer institutions.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Early Detection Through Structured Surveillancemethodology: early_detection_surveillanceBy promoting regular follow-up care as a standard practice, the organization improves early detection of recurrence and second cancers, because consistent monitoring enables timely intervention, particularly for high-risk, non-HPV-related squamous cell carcinomas.
- Education as Empowermentmethodology: education_and_awarenessBy delivering timely, accessible educational content about diagnosis, treatment, and clinical trials, the organization increases patient engagement and informed decision-making, because knowledge reduces uncertainty and empowers individuals to actively participate in their care and advocacy.
- Peer-Led Support Modelmethodology: peer_support_modelBy connecting patients with trained survivor peers through mentorship, storytelling, and local chapters, the organization enhances emotional resilience and practical coping, because shared lived experience fosters trust, reduces isolation, and increases engagement in care.