irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $2.83MINDIVIDUAL/FAMILY SUPPORT SERVICES - SERVICE COORDINATION, DAY HABILIATION, IN HOME RESPITE AND AT HOME RESIDENTIAL HABILITATION, SUPPORTED EMPLOYMENT,AND FAMILY SUPPORT SERVICES. 351 INDIVIDUALS SERVED.
- #2 $3.08MINTEGRATED SERVICES TO CHILDREN (EARLY INTERVENTION AND PRE-SCHOOL SERVICES). 217 INDIVIDUALS SERVED.
named programs · 4 · from sources
What they call their work
Augustin Children’s Center
Early intervention and preschool services integrating education and therapeutic support for children with developmental disabilities
Clinical & Therapeutic Services
Outpatient clinical services including occupational therapy, physical therapy, speech therapy, psychology, psychiatry, and dental care for adults with disabilities
Community Habilitation
Person-centered support in home and community settings to increase independence in daily living skills, budgeting, meal preparation, and collegiate supports
Hourly Respite Services
Respite care programs including In-Home Respite, Recreation Respite, and Wrap Around Respite to provide relief for caregivers of individuals with developmental disabilities
activities · 5 groups
What they do
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Nonprofit Capacity Building Services 1 activity
- Connecting and supporting human service organizationsBuilds capacity across the human services sector by connecting and supporting organizations that serve individuals of all ages and abilities, enhancing collective impact and service delivery.
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Special Education Preschool Programs 1 activity
- Delivering early intervention and therapeutic services for childrenOperates the Augustin Children’s Center and provides integrated early intervention and preschool services for children, including education and therapeutic supports such as occupational therapy, physical therapy, and speech therapy. Served between 181 and 260 children annually according to IRS-990 reporting.
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Specialized Therapy for Children with Disabilities 1 activity
- Providing clinical and therapeutic services for adults with disabilitiesDelivers one-on-one clinical services including occupational therapy, physical therapy, speech therapy, psychology, psychiatry, and dental care for adults with developmental, neurological, and acquired disabilities. Services are provided in a fully accessible clinical facility on the Winton Road Campus, including use of an indoor warm water pool for therapeutic interventions.
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Day Habilitation Services 1 activity
- Providing comprehensive support services for adults with disabilitiesOffers a range of home and community-based programs for adults with developmental disabilities in Monroe County, including service coordination, day habilitation, supported employment, residential habilitation, and family support services. These person-centered services aim to promote independence, social inclusion, and skill development in daily living, with support reaching 692 individuals in the most recent reporting year.
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Special Education Support Services 1 activity
- Supporting higher education access for individuals with developmental disabilitiesOffers collegiate support services to individuals with developmental disabilities who are pursuing higher education, including assistance with classroom attendance, note-taking, and time management. These services enable inclusive participation in post-secondary education.
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financials · form 990 · fy2024
revenue
Total revenue$17.62M
Contributions & grants$3.22M18%
Program service revenue$13.21M75%
Investment income$308K2%
Other revenue$883K
expenses
Total expenses$15.54M
Program expenses90%
Admin / overhead10%
Fundraising0%
Salaries & benefits$10.44M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$16.18M
Cash$777K
Investments$5.83M
Liabilities$4.81M
Net assets$11.37M
Liquid reserves5.1 mo
4 years on record · 2020–2024 · YoY revenue +9.0%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 5
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| DARRELL WHITBECK | PRESIDENT (EFFICTIVE 3/202 | 20 | $252K |
| DIANE KOZAR | CHIEF OPERATIONS OFFICER | 20 | $132K |
| RENE SANDRONI | CHIEF FINANCIAL OFFICER | 20 | $116K |
| NICOLE CILENTO | VP WAIVER | 40 | $112K |
| ENDONG LI | DENTIST | 40 | $110K |
board members · 19
- ANDREA BONAFIGLIA — DIRECTOR
- ANN E KURZ — BOARD CHAIR
- CHRISTOPHER HARRIS — DIRECTOR
- DAVID G CASE — DIRECTOR
- EILEEN GAGE — ASSISTANT SECRETARY
- ERIC FOULKE — DIRECTOR
- JAMES KING — TREASURER
- JEFFREY W BAKER — DIRECTOR
- JOYCE W WEIR — 1ST VICE CHAIR
- KEVIN OVERTON — DIRECTOR
- MARY HERLIHY GEARAN — DIRECTOR
- MICHAEL A COPPOLA — DIRECTOR
- RACHEL KIELON — DIRECTOR
- ROBERT JOHNSON — DIRECTOR
- ROBERT MADDAMMA — DIRECTOR
- ROY BEECHER — ASSISTANT TREASURER
- SEAN OSSONT — SECRETARY
- THOMAS WHITE — DIRECTOR
- TIM P VAUGHAN — 2ND VICE CHAIR
relationships · 37
Who they work with
- Ability Partners Partner — United Cerebral Palsy Association of the Rochester Area operates under the name Ability Partners, indicating a rebranding or name change.
- Ability Partners Foundation Partner — Co-hosts fundraising events including the Francis 'Ben' Bonafiglia Golf Tournament and Bowling to Raise Bucks.
- Ability Partners Foundation Partner — Funds raised from the event support Ability Partners agencies' programs serving children, adults, and families in the Rochester & Finger Lakes communities.
- Ability Partners Foundation Partner — Provides golfer gifts for the Francis "Ben" Bonafiglia Golf Tournament.
- Aetna Partner — Accepted medical and dental health plan carrier for services
- Bonafiglia Family Foundation Partner — Coin provides golfer gifts for the Francis "Ben" Bonafiglia Golf Tournament.
- CP Rochester Partner — Member agency of Ability Partners
- CP Rochester Partner — Operates under the name CP Rochester, indicating a partnership or rebranding with the organization.
- Cigna Partner — Accepted medical and dental health plan carrier for services
- Delta Dental NY Partner — Accepted dental health plan carrier for services
- DenteMax Partner — Accepted dental health plan carrier for services
- Excellus Partner — Accepted medical and dental health plan carrier for services
- Excellus/Medicaid Advantage Plans Partner — Accepted medical health plan carrier for services
- Fidelis Partner — Accepted medical, dental, and behavioral health plan carrier for services
- Happiness House Partner — Member agency of Ability Partners
- Healthplex Partner — Accepted dental health plan carrier for services
- Justice Center for the Protection of People With Special Needs Government — Follows NY Justice Center regulations for reporting and managing incidents involving people with special needs.
- MVP Partner — Accepted medical health plan carrier for services
- MYourCare Health Plan Partner — Accepted medical health plan carrier for services
- Medicaid Government — Accepted health plan carrier for clinical and therapeutic services
- Medicare Government — Accepted health plan carrier for clinical and therapeutic services
- MetLife Dental PPO Partner — Accepted dental health plan carrier for services
- NA Homecare Options, LLC Partner — Accepted medical health plan carrier for services
- Niagara Advantage Health Plan, LLC Partner — Accepted medical health plan carrier for services
- Office for People With Developmental Disabilities Government — Complies with OPWDD regulations for incident reporting and program operations.
- Optum Behavioral Health Partner — Accepted behavioral health plan carrier for services
- Roberts Wesleyan College Partner — Partnership to support the Bridge to Earning, Learning, and Living (B.E.L.L.) program, which provides a collegiate experience for individuals in the Day Habilitation program.
- Rochester Rehabilitation Center Partner — Member agency of Ability Partners
- SportsNet Rochester Partner — Collaborates on recreation programs for individuals with developmental disabilities; directs to sportsnetny.org for program details.
- Strong Memorial Hospital Partner — Collaborated to organize the Diagnostic Clinic in 1945.
+ 7 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Peer Support Through Shared Experience 252 orgsmethodology: peer_support_through_shared_experienceBy leveraging lived family experiences with cerebral palsy, the organization builds trust and empowers other families because shared experience fosters emotional connection and practical guidance that formal services alone cannot provide.shared approach: Person-Centered Planning →
- Person-Centered Planning 252 orgsmethodology: person-centered_planningBy placing individuals at the center of goal-setting and service design, the organization produces greater independence, inclusion, and personal fulfillment because services are driven by personal aspirations and lived experience rather than standardized protocols.
- Collaborative Network Model 40 orgsmethodology: collaborative_network_modelBy connecting individuals, families, service providers, and community organizations, the organization expands access to opportunities and improves outcomes because collective action strengthens inclusion and resource sharing across systems.
- Interdisciplinary Care Coordination 15 orgsmethodology: interdisciplinary_careBy coordinating therapy, medical providers, and equipment vendors across disciplines, the organization improves functional outcomes because holistic, integrated care reduces fragmentation and aligns treatment with daily living needs.