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UNITED CEREBRAL PALSY ASSOCIATION OF GREATER SUFFOLK INC

HAUPPAUGE, NY · EIN 112568841 · Form 990 · FY2024 · NTEE G200 · Voluntary Health Associations · Very Large (>$50M)
revenue
$56.5M
expenses
$57.6M
net assets
$21.3M
employees
736
volunteers
6
program ratio
92%
mission · from form 990

TO ADVANCE THE INDEPENDENCE, PRODUCTIVITY & FULL CITIZENSHIP OF PEOPLE WITH CEREBRAL PALSY.

profile · synthesized from sources

Nonprofit organization serving individuals with cerebral palsy and related developmental disabilities in Suffolk County, New York. Provides educational, therapeutic, and habilitation services for children from birth to age 21 and adults over 21. Programs include early intervention, special education, day treatment, and day habilitation services aimed at increasing independence and community integration.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $6.19M
    SEE SCHEDULE O. UCP'S EDUCATION PROGRAMS ADVANCE THE PHYSICAL, COGNITIVE AND EMOTIONAL GROWTH OF CHILDREN WITH DISABILITIES, AGES BIRTH TO 21 YEARS, WITH YEAR-ROUND COMPREHENSIVE PROGRAMS, SCREENINGS, EVALUATIONS, THERAPIES, HOME/CENTER-BASED INSTRUCTION, FAMILY TRAINING AND SUPPORT GROUPS AND ASSISTED TECHNOLOGY SERVICES. THE EARLY INTERVENTION PROGRAM IS DESIGNATED FOR CHILDREN FROM BIRTH THROUGH TWO YEARS OF AGE AND THEIR FAMILIES. THIS PROGRAM PROVIDES INFANT AND EARLY CHILDHOOD SERVICES TO MAXIMIZE STRENGTHS AND MINIMIZE WEAKNESSES IN A CHILD'S OVERALL DEVELOPMENT. SERVICES ARE AVAILABLE IN THE HOME AS WELL AS AT UCP'S EDUCATION CENTER. THE PRE-SCHOOL PROGRAM IS FOR CHILDREN FROM THREE TO FIVE YEARS OLD, AND THE SCHOOL AGE PROGRAM IS FOR YOUNG PEOPLE AGE FIVE TO TWENTY-ONE, WITH MULTIPLE DISABILITIES. BOTH PROGRAMS ARE FUNDED BY THE NEW YORK STATE EDUCATION DEPARTMENT. UCP OPERATES TWO CLASSROOMS FOR THE PRE-SCHOOL PROGRAM AND SEVEN FOR THE SCHOOL AGE PROGRAM. THESE CLASSES ARE LOCATED AT UCP'S EDUCATION CENTER.
  2. #2 $2.32M
    SEE SCHEDULE O. THE DAY TREATMENT PROGRAM STRIVES TO INCREASE THE INDEPENDENCE OF INDIVIDUALS WITH DISABILITIES WHO ARE OVER 21 YEARS OF AGE (SENIOR CITIZENS INCLUDED) BY PROVIDING LIFE ENRICHMENT PROGRAMS AND PREPARATORY SERVICES FOR POSSIBLE WORK ACTIVITIES.THE DAY TREATMENT PROGRAM SERVES APPROXIMATELY 69 ADULTS, AMBULATORY AND NON-AMBULATORY, WITH DEVELOPMENTAL DISABILITIES SUCH AS AUTISM, EPILEPSY, MENTAL RETARDATION, NEUROLOGICAL SYMPTOMS AND CEREBRAL PALSY.
named programs · 5 · from sources

What they call their work

Day Habilitation Program
Facility- and community-based services to help individuals with developmental disabilities acquire independent living skills; certified for 123 participants at the Hauppauge center.
Day Treatment Program
Life enrichment and work preparation services for adults over age 21 with developmental disabilities, including autism, epilepsy, and cerebral palsy.
Early Intervention Program
Provides infant and early childhood services for children birth to two years and their families, available in-home or at the education center.
Preschool Program
Comprehensive special education services for children ages three to five, operating two classrooms at UCP's Education Center.
School Age Program
Special education and support services for individuals ages five to twenty-one with multiple disabilities, operating seven classrooms at UCP's Education Center.
activities · 7 groups

What they do

  • Day Habilitation Services 2 activities
    • Adult Day Programs and Day Treatment Services
      Operates a Day Treatment Program for approximately 69 adults over age 21 with developmental disabilities and a Day Habilitation Program certified to serve 123 individuals at the Hauppauge Center, providing life enrichment, work preparatory services, and skill development through facility- and community-based activities; serves over 250 individuals daily in renovated facilities in Hauppauge Industrial Park.
    • Community and Social Programs
      Offers socialization programs and community-based activities including Johnny’s Way, an adaptive art gallery and studio, and a Culinary Program with a fully accessible kitchen; supports construction of an adaptive playground through community partnerships.
  • Specialized Therapy for Children with Disabilities 2 activities
    • Assistive Technology Services
      Provides comprehensive assistive technology services including screening, evaluation, consultation, and training; equips classrooms with Smart Boards or Tapit and iPads to support learning and communication for individuals with disabilities.
    • Specialized Therapies and Medical Services
      Delivers physical, speech, and occupational therapies; medical, dental, and mental health services; and medical rehabilitation to children and adults with disabilities such as cerebral palsy, autism, Down syndrome, and spina bifida.
  • Supported Employment for Developmental Disabilities 2 activities
    • Employment and Vocational Services
      Provides comprehensive employment services including assessment and testing, job readiness training, job development, on-site job coaching, and follow-along career support; operates Supported Employment and Vocational Rehabilitation programs, and launched the Employment Connection Mobile Training & Education Center to deliver services across Long Island.
    • Information, Referral, and Advocacy Services
      Provides advocacy, information and referral services, and family support groups to individuals with disabilities and their families across Long Island.
  • Residential Support for Developmental Disabilities 2 activities
    • Residential Services for Individuals with Disabilities
      Operates residential services in 30 homes on Long Island for individuals with disabilities, including children; manages Intermediate Care Facilities and community residences, and developed Eaton Knolls, a 13-unit accessible apartment complex for individuals capable of independent living.
    • Respite Care Services
      Provides community residential and respite care services for individuals with disabilities.
  • Special Education Preschool Programs 1 activity
    • Education Services for Children with Disabilities
      Provides year-round education, therapies, screenings, evaluations, home- and center-based instruction, family training, support groups, and assistive technology services for children with disabilities from birth to age 21 through Early Intervention, Pre-School, and School Age programs; operates two pre-school classrooms and seven school-age classrooms at its Education Center.
  • Sensory-Inclusive Programming and Support 1 activity
    • Multi-Sensory Developmental Environment
      Operates a state-of-the-art multi-sensory indoor play space to support cognitive, language, physical, and social development in children with disabilities.
  • Special Education Support Services 1 activity
    • Transition Support for Graduating Students
      Operates the Partners for Graduating Students program to assist high school students with disabilities and their families in transitioning from school-based to adult services, including individualized testing, personalized recommendations, and service coordination.
financials · form 990 · fy2024
revenue
Total revenue$56.53M
Contributions & grants$522K1%
Program service revenue$54.51M96%
Investment income$173K0%
Other revenue$1.33M
expenses
Total expenses$57.64M
Program expenses92%
Admin / overhead7%
Fundraising1%
Salaries & benefits$42.58M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$43.10M
Cash$4.63M
Investments$11.11M
Liabilities$21.78M
Net assets$21.32M
Liquid reserves3.3 mo
5 years on record · 2020–2024 · YoY revenue -2.6%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 7
NameTitleHours/wkCompensation
COLLEEN CRISPINO PRESIDENT & CEO 38 $336K
KATHLEEN FRIGIOLA CFO 38 $250K
NARJIS ZAIDI DIRECTOR OF RESIDENTIAL SVCS. 38 $175K
DONALD ANTWI LICENSED PRACTICAL NURSE 38 $173K
STEPHANIE BELL-VEGA LICENSED PRACTICAL NURSE 38 $169K
KARI AMPOFO LICENSED PRACTICAL NURSE 38 $160K
ALISA CHARLES DIRECTOR OF NURSING 38 $148K
board members · 14
  • ANDREW F CORRADO — BOARD MEMBER
  • DR ERICA BEAUPLAN — BOARD MEMBER
  • EDWARD LEVINE — BOARD MEMBER
  • JAVIER EVANS — VICE CHAIR, MEMBERSHIP & DEVELOPMENT
  • KIM M SMITH — REC. SEC. & V. CHAIR, POL. & COMPL.
  • LAWRENCE LEVY — BOARD MEMBER
  • PATRICIA TUTIVEN — BOARD MEMBER
  • PATRICK EGAN — BOARD MEMBER
  • RICHARD C TAVAREZ — BOARD MEMBER
  • ROBERT BERNARD — VICE CHAIR, AUDIT & COMPENSATION
  • SABRINA BIVONA — BOARD MEMBER
  • STEPHEN LOURO — BOARD MEMBER
  • THOMAS LOWENBERG — VICE CHAIR, FINANCE / TREASURER
  • THOMAS PFUNDSTEIN — CHAIR
relationships · 22

Who they work with

  • ACCES-VR Government — State vocational rehabilitation agency providing career and education services for individuals with disabilities.
  • Cerebral Palsy Associations of New York State Partner — State-level affiliate organization.
  • John’s Crazy Socks Partner — Partnered to launch a CP Awareness sock in September 2020.
  • Long Island Elite Partner — Selected as 2022 charity partner, raising over $110,000 for an adaptive playground at The Children’s Center.
  • Long Island Museum Partner — Hosted a month-long curated art exhibit featuring artwork from 24 UCP-LI artists.
  • New York State Government — Acquired seven Intermediate Care Facilities from New York State for the Residential Program.
  • New York State Education Department Government — Funds the Pre-School and School Age education programs.
  • New York State Justice Center for the Protection of People with Special Needs Government — State oversight body for reporting and investigating incidents involving individuals with special needs.
  • New York State Office for People with Developmental Disabilities (OPWDD) Government — State agency regulating and overseeing services for individuals with developmental disabilities.
  • New York Therapy Placement Services (NYTPS) Partner — Commissioned UCP-LI artists to hand paint ceiling tiles for the NYTPS Kids waiting room.
  • Office for People With Developmental Disabilities (OPWDD) Government — Primary government funder providing funds to support UCP of Long Island's programs and services.
  • Parent to Parent of NYS Partner — Support network for families of children with special needs in New York State.
  • Self-Advocacy Association of NYS Partner — Statewide nonprofit organization supporting self-advocacy for people with developmental disabilities.
  • Stop & Shop Partner — Employer partner that hires individuals placed through UCP's Employment Services Program
  • Suburban Exterminating Service Partner — Employer partner that hires individuals placed through UCP's Employment Services Program
  • Suffolk County Dept. of Labor Partner — Employer partner that hires individuals placed through UCP's Employment Services Program
  • The Employment Connection Partner — Collaborates on delivering employment services for individuals with disabilities.
  • UCP of Long Island Network — Operates as a regional provider within the United Cerebral Palsy network, delivering residential services under the UCP brand.
  • United Cerebral Palsy Partner — Member organization within the United Cerebral Palsy network.
  • United Cerebral Palsy Association of Greater Suffolk, Inc. Government — Operator of UCP of Long Island, providing adult services for individuals with disabilities.
  • United Cerebral Palsy Association of Greater Suffolk, Inc. Network — Member of the United Cerebral Palsy network providing regional services on Long Island.
  • United Way of Long Island Partner — Partner organization providing community resources and support.
strategies · 3

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Family-Inclusive Early Intervention
    methodology: early_intervention_family_inclusive
    By delivering developmental services from birth to age two in-home and at education centers with active family participation, the organization maximizes developmental outcomes because early, family-embedded support strengthens caregiver capacity and child development simultaneously.
  • Individualized Employment Support
    methodology: individualized-employment-planning
    By using personalized assessment and job development, combined with on-site coaching and long-term follow-up support, individuals with disabilities achieve competitive integrated employment because tailored interventions address unique barriers and promote workplace integration and retention.
  • Life Without Limits Model
    methodology: life-without-limits
    By providing holistic, individualized services in fully accessible, home-like environments, the organization advances independence, productivity, and full citizenship for people with disabilities because such settings promote community engagement, family involvement, and personal autonomy.