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UPSTATE CEREBRAL PALSY INC
UTICA, NY · EIN 150543657 · Form 990 · FY2024 · NTEE G200 · Voluntary Health Associations · Very Large (>$50M) · upstatecp.org
revenue
$124.6M
expenses
$123.5M
net assets
$44.7M
employees
2,242
volunteers
32
program ratio
88%
mission · from form 990

UPSTATE CEREBRAL PALSY, INC. PROVIDES A COMPREHENSIVE ARRAY OF DIRECT CARE SERVICES AND PROGRAMS FOR INDIVIDUALS WHO ARE PHYSICALLY, DEVELOPMENTALLY OR MENTALLY CHALLENGED. SERVICES PROVIDED INCLUDE PRESCHOOL AND SCHOOL AGE EDUCATION, CLINICAL/MEDICAL DIAGNOSTIC AND TREATMENT, PRIMARY CARE, HOME AND COMMUNITY BASED WAIVER SERVICES, RESIDENCES, MENTAL HEALTH PROGRAMS, ADULT DAY TREATMENT, CRISIS CARE SERVICES, AND DAY CARE

profile · synthesized from sources

Upstate Cerebral Palsy Inc, operating as Upstate Caring Partners, provides direct care services for individuals with intellectual, developmental, and physical disabilities across Central New York. The organization offers education, residential support, behavioral health, and community-based programs. It operates through a mix of state-funded services and private philanthropy via its foundation.

irs program accomplishments · form 990 part iii · fy2024

What they reported doing

  1. #1 primary $31.51M
    UPSTATE CEREBRAL PALSY, INC. OPERATES 24 INDIVIDUALIZED RESIDENTIAL ALTERNATIVES (IRA'S) THROUGHOUT CENTRAL NEW YORK. THESE RESIDENTIAL PROGRAMS FOCUS ON INDIVIDUALIZED SERVICES THAT PROMOTE INDEPENDENCE. ADULTS LIVING IN AN IRA FOCUS ON BUILDING AND ENHANCING SKILLS FOR EVERYDAY LIVING SUCH AS; COOKING, CLEANING, LAUNDRY, HYGIENE, ETC. INDIVIDUALS ARE ALSO INVOLVED IN COMMUNITY VOLUNTEER WORK AND/OR SUPPORTIVE EMPLOYMENT OPPORTUNITIES, AS WELL AS INCREASED RECREATION OPPORTUNITIES IN THE COMMUNITY. 199 BEDS.
  2. #2 $23.19M
    UPSTATE CEREBRAL PALSY, INC. OPERATES INCLUSIVE PRESCHOOL PROGRAMS CALLED NEW DISCOVERIES LEARNING CENTERS FOR CHILDREN AGES 3 TO 5 YEARS OF AGE AT 6 LOCATIONS THROUGHOUT CENTRAL NEW YORK. THESE PROGRAMS WORK IN CONJUNCTION WITH AREA SCHOOL DISTRICTS TO PROVIDE SPECIAL EDUCATION SERVICES FOR PRESCHOOL STUDENTS IN A SETTING THAT INCLUDES CHILDREN AT ALL DEVELOPMENTAL LEVELS. UPSTATE CEREBRAL PALSY, INC. ALSO PROVIDES SPECIAL EDUCATION SERVICES FOR SCHOOL AGE CHILDREN, 6 TO 21 YEARS OF AGE, CALLED THE TRADEWINDS EDUCATION CENTER. THE TRADEWINDS EDUCATION CENTER IS A COMPREHENSIVE EDUCATIONAL AND RESIDENTIAL PROGRAM FOR CHILDREN WITH SEVERE BEHAVIORAL AND DEVELOPMENTAL DISABILITIES. USING A COMPREHENSIVE APPROACH WITH EACH CHILD, THE EDUCATION, CLINICAL AND RESIDENTIAL STAFF, IN CONJUNCTION WITH FAMILIES, DEVELOPS AND IMPLEMENTS GOALS AND OBJECTIVES FOCUSING ON THE OVERALL GROWTH AND DEVELOPMENT OF EACH STUDENT. 573 KIDS SERVED, IN 5 LOCATIONS.
named programs · 6 · from sources

What they call their work

Community Health & Behavioral Services
Outpatient mental health, substance use, and care management services for children and adults, including crisis stabilization and mobile crisis teams.
Early Intervention
Services for infants and young children with developmental delays, including therapy and family support.
Individualized Residential Alternatives (IRA)
Residential programs for adults with developmental disabilities focusing on life skills, community engagement, and supported employment across Central New York.
New Discoveries Learning Centers
Inclusive preschool programs for children ages 3-5 with developmental delays, offered in collaboration with local school districts.
Pieces of HeART
Art expression program for adults with developmental disabilities, promoting self-expression and well-being through creative media.
Trades Winds Education Center
Comprehensive educational and residential program for school-age children (6-21) with severe behavioral and developmental disabilities.
activities · 10 groups

What they do

  • Applied Behavior Analysis (ABA) Therapy Services 1 activity
    • Applied clinical research program
      Operates an applied clinical research program focused on evidence-based practices for individuals with profound autism and other intellectual and developmental disabilities, utilizing ABA principles to improve communication, food selectivity, and behavior regulation. The program is staffed by a Director of Applied Research, five PhD-level clinicians, and over 10 Board Certified Behavior Analysts.
  • Outpatient Mental Health Clinic Services 1 activity
    • Behavioral health and crisis intervention services
      Delivers outpatient behavioral health services including individual and group counseling, psychiatric care, play therapy, and peer support for children, adolescents, and adults. Operates 24/7 mobile crisis teams (STAR Mobile Crisis and Behavioral Health Navigator) providing crisis assessment and intervention across multiple counties, along with a Supportive Crisis Stabilization Center.
  • Early Childhood Education & Development Programs 1 activity
    • Early Intervention and early childhood development services
      Provides comprehensive Early Intervention services for infants and young children (birth to age 3) with developmental delays, including multidisciplinary evaluations, service coordination, and individualized treatment plans. Also offers early childhood education and licensed daycare programs for children ages 3 to 5 in Utica, Rome, and Westmoreland, integrating therapeutic supports such as speech, occupational, and physical therapy.
  • Special Education Support Services 1 activity
    • Educational services for children with developmental disabilities
      Provides inclusive special education services through six New Discoveries Learning Centers and the TradeWinds Education Center, a state-approved private school for children ages 3 to 22 with severe behavioral and developmental disabilities. Serves 573 students across multiple locations with individualized programs, therapy services, and family-informed care.
  • School-Based Mental Health and Family Support 1 activity
    • Family and systems navigation support
      Provides family peer advocacy services to help families navigate special education and mental health systems, including rights education and support during planning meetings. Also delivers personalized care management and behavioral health navigation to coordinate medical, mental health, housing, food, and public benefits services.
  • Respite Care for Developmental Disabilities 1 activity
    • In-home and caregiver support services
      Provides in-home respite services delivered by specially trained staff to support caregivers of individuals requiring supervision. Also offers self-direction services that allow individuals to manage their own service plans and budgets, including housing choices and personal care.
  • Residential Support for Developmental Disabilities 1 activity
    • Residential services for adults with developmental disabilities
      Operates 24 Individualized Residential Alternatives (IRAs) and other certified (ICF) and non-certified residential settings across Central New York, providing individualized support to promote independence, life skills development, community involvement, and employment opportunities for adults with intellectual and developmental disabilities. Each residence serves 4 to 12 individuals in Oneida, Madison, Herkimer, and Lewis Counties.
  • Outpatient Substance Use Treatment 1 activity
    • Substance use disorder treatment
      Provides substance use disorder services for adults using a harm reduction model, including counseling, therapy, care navigation, and peer support from specialists with lived recovery experience.
  • Day Habilitation Services 1 activity
    • Therapeutic and skill-building programs
      Offers structured daily living support including personal care, grooming, cooking, household management, and community engagement to build independence. Provides specialized programming such as the Pieces of HeART initiative for artistic expression, The Image Center for social and organizational skill development, and one-on-one mentoring for youth focused on social and mental health growth.
  • Supported Employment for Developmental Disabilities 1 activity
    • Vocational and employment support services
      Offers pre-employment transition services, vocational assessment, job training, resume writing, interview preparation, and ongoing job supports for individuals with disabilities aged 14 to 23. Supports hundreds of active job placements and internships through the Upstate Employment Associate program and provides on-site and community-based vocational experiences within educational programs.
financials · form 990 · fy2024
revenue
Total revenue$124.59M
Contributions & grants$6.38M5%
Program service revenue$111.38M89%
Investment income$3.32M3%
Other revenue$3.51M
expenses
Total expenses$123.50M
Program expenses88%
Admin / overhead12%
Fundraising0%
Salaries & benefits$99.38M
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$75.81M
Cash$6.30M
Investments$26.77M
Liabilities$31.07M
Net assets$44.73M
Liquid reserves3.2 mo
3 years on record · 2020–2024 · YoY revenue +10.8%
leadership · form 990 part vii · fy2024

Who runs it

paid leadership · 7
NameTitleHours/wkCompensation
MINHAJ SIDDIQI PSYCHIATRIST 40 $381K
GENO DECONDO EXECUTIVE DIRECTOR 40 $370K
KATHLEEN KLOSNER CHIEF PROGRAM OFFICER 40 $264K
PATRICIA HAYS CHIEF TALENT AND ADMINISTRATIVE OFFICER 40 $256K
DAN CROWELL CIO & FOUNDATION DIRECTOR 40 $252K
ROBERT J NOLE JR CHIEF FINANCIAL OFFICER 40 $224K
ERIK JACOBSON CHIEF PSYCHOLOGIST 40 $215K
board members · 18
  • ANDREW WARD — DIRECTOR
  • BRADLEY KOWALCZYK THRU MAY 2024 — DIRECTOR
  • BRANT FORD — TREASURER
  • CAROL TURI — 1ST VICE PRESIDENT
  • DAVID MATHIS — DIRECTOR
  • DEAN KELLY — 2ND VICE PRESIDENT
  • DYTE GIUFFRIDA — DIRECTOR
  • EDWARD NOONAN — DIRECTOR
  • EILEEN LABARBERA — DIRECTOR
  • EUGENE FALVO — IMMEDIATE PAST PRESIDENT
  • GARY HEENAN — DIRECTOR
  • GRETCHEN SPROCK — DIRECTOR
  • JAMES TURNBULL IV — DIRECTOR
  • JOHN BUFFA — DIRECTOR
  • NICOLE SIRIANO — DIRECTOR
  • PATRICK BRENNAN — PRESIDENT
  • PHILIP SBARRA THRU MAY 2024 — DIRECTOR
  • RALPH IMUNDO — SECRETARY
relationships · 19

Who they work with

  • ACCES-VR Government — Collaborates with ACCES-VR to provide employment services and fund vocational programs for individuals with disabilities.
  • Area School Districts Partner — Collaborates with local school districts to deliver special education services through the New Discoveries Learning Centers.
  • Delmonico’s Italian Steakhouse Partner — Presented the An Evening of Giving event hosted by Upstate Caring Partners.
  • Department of Labor Government — Collaborates with the Department of Labor to deliver employment services to people of all abilities.
  • Excellus BlueCross BlueShield Partner — Recognized by Upstate Caring Partners Foundation with a 2026 Health Equity Innovation Award.
  • Herkimer County Partner — Provides services and employs staff in Herkimer County as part of its regional operations.
  • Lewis County Partner — Provides services and employs staff in Lewis County as part of its regional operations.
  • MCAT (Mobile Crisis Assessment Team) Partner — Collaborates to provide 24/7 mobile crisis assessment services across multiple counties.
  • Madison County Partner — Provides services and employs staff in Madison County as part of its regional operations.
  • NYS Office for Persons with Developmental Disabilities Government — Licensing and certification authority for residential programs
  • New York State Education Department Government — Approved the Tradewinds Education Center as a private school.
  • New York State Education Department Government — Approving agency for the Children's Residential Program
  • Office of Children and Family Services Government — Oversees licensed childcare programs operated by Upstate Caring Partners.
  • Office of Mental Health Government — Partners with OMH to deliver employment services and support individuals with mental health conditions in vocational programs.
  • Office of People with Developmental Disabilities Government — Works with OPWDD to provide and fund vocational and employment services for individuals with developmental disabilities.
  • Oneida County Partner — Provides services and employs staff in Oneida County as part of its regional operations.
  • STAR Mobile Crisis Partner — Partners to deliver 24/7 mobile crisis intervention services in Oneida County.
  • Upstate Caring Partners Partner — Collaborative partner organization providing services to people of all abilities.
  • national experts in the ABA field Partner — Collaborates with national ABA experts to implement evidence-based practices in clinical services.
strategies · 5

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Applied Behavioral Analysis with Real-World Integration
    methodology: applied_behavioral_analysis
    By grounding clinical education and residential services in Applied Behavioral Analysis and integrating research directly into service settings, we develop more effective treatments for profound autism and developmental disabilities, because real-world application ensures clinical relevance and continuous improvement.
  • Community Inclusion as Pathway to Independence
    methodology: community_inclusion
    By embedding individuals in community-based programs, we foster social inclusion and independence, because regular interaction with the broader community builds life skills, belonging, and self-determination.
  • Harm Reduction with Peer Support
    methodology: harm_reduction
    By combining a harm reduction framework with peer specialists who have lived recovery experience, we increase engagement in mental health and substance use treatment, because trust built through shared experience and non-coercive support lowers barriers to sustained recovery.
  • Person-Centered, Integrated Care Approach
    methodology: person_centered_care
    By using a comprehensive, interdisciplinary model that integrates education, clinical, and residential services with family input, we produce holistic development for individuals with severe disabilities, because coordinated, whole-person care addresses interdependent needs more effectively than siloed services.
  • Self-Directed Care Model
    methodology: self_direction
    By allowing individuals to control their service budgets and choose personalized goals, staff, and activities, we increase autonomy and engagement in care, because personal agency leads to more meaningful and effective support.